blueyedgirl
07-30-2006, 04:09 PM
:hi: Hey Everyone!
I posted on here before that we need to do something about the way we are treated as IC patients and we also need to educate the medical community as well as the public about IC.
So, the first thing I would like to do is get some info from my fellow IC sufferers. I set up an email account on yahoo. I would like it if people would email their stories especially people who have been dropped by their doctors and who have had problems with the medical community. Also, let me know what kind of changes you feel should be made in the treatment of IC and what information you feel is most important to get out there. Thank you for your help. I plan to compile the information and in the meantime try to figure out the next step. Any advice there will be appreciated as well.
The email address is icactivist@yahoo.com
You don't have to identify yourself in the email and you can keep it as anonymous as you want. Thank you again.
I posted on here before that we need to do something about the way we are treated as IC patients and we also need to educate the medical community as well as the public about IC.
So, the first thing I would like to do is get some info from my fellow IC sufferers. I set up an email account on yahoo. I would like it if people would email their stories especially people who have been dropped by their doctors and who have had problems with the medical community. Also, let me know what kind of changes you feel should be made in the treatment of IC and what information you feel is most important to get out there. Thank you for your help. I plan to compile the information and in the meantime try to figure out the next step. Any advice there will be appreciated as well.
The email address is icactivist@yahoo.com
You don't have to identify yourself in the email and you can keep it as anonymous as you want. Thank you again.