I had an infection for almost 3 months. The results came back.

[Kara29]

For 3 months, I've had a Klepsiella all this time and based on my tries to get urine cultures done this whole time, the Urologists would not culture or give me any antibiotics. Even though I had two catheters in me for 2 months and one left in catheter for 3 months. Even though I told them I knew I had an infection from day one, they didn't listen or care. My urine was full of junk and smelled so foul and it was green and came out like syrup. Finally I decided to go to my Primary Care Doctor to ask him to please do a culture and to put me on an antibiotic while we waited because I was getting sick to my stomach, had severe back pain, and a bad headache. There were also huge chunks of blood coming out of my Suprapubic. He agreed with me that it should have been taken care of sooner and he was sorry I was treated that way by the Urology team. The results came back with the Klepsiella infection count over 100,000. I am going to stay on the Leavaquin until my surgery on Tuesday. I feel better in the sense that I am not sick to my stomach, no more back pain, and no headache. The phantom urgency is still spiked due to ovulation so I will have to wait 2 weeks until my period comes to get some relief and we'll go from there. One month at a time. This is what can happen during the recovery time of 6 months to a year when dealing with bladder removal. At least I am on antibiotics. You have to be ready for anything. It just sucks when doctors don't listen to their patients.

Kara

[Mel53H]

That does suck!! It is too bad they would not listen to you.That is horrible what you had to go through. Some doctors you just want to kick them!!

[Imustpee]

Kara, geeze, when will we catch a break? :confused:
I am glad you are starting to feel better, rest and take it easy.....this is a very tough recovery, and we knew going in it was going to be a battle, but we did this to have a better life, and we will, we just have to keep fighting back...:) ..the UCLA dr's took out my PNT but I now have a capped drainage tube hanging out my back in case the stent fails,( Feels like I have had tubes coming out of my body for months,,,,oh yeah, I have...hahaha) but at least I don't have to deal with the bags at this time..I am on Cipro for 2 weeks....let's keep on supporting each other, we can do this!

[sacausa]

Is the doctor that didn't listen to you the one that will be doing your surgery next week? I would have no trust in someone that does not take me seriously! If there are other urologists in your area that you haven't seen maybe it's time for a change. A good doctor patient relationship is vital for adequate treatment! Just my two cents.

[Kara29]

Sacausa

I've been to around 21 Urologists between Rochester, Syracuse, and Buffalo, and that doesn't include the ones I saw in Boston and NYC. You see the problem is that the doctors dont want to touch or deal with anyone who has had a Neobladder and then a Continent Urinary Diversion. I even asked all of those doctors that I saw if they knew of anyone that could help me and they all said no. I even asked the nurses that they worked with and they said no. My Primary Care and Myself have searched high and low for someone who will care for me and the BEST we could do was to find Dr. R. He is the only one willing to work with the cards I have been delt. See the cards I have been delt, all of the other Urologists I went to would not even look at. They were too scared and ran in the other direction. My Primary Care has been with me all the way for the past 4 years. He said he was putting a call into this Urologist to tell him about the infection and my concerns that I had it for so long. Plus the fact that I should have been on an antibiotic the whole time these tubes were in. I had a great Urologist in Boston that could not help me with this past surgery, I had a great Urologist in NYC, and now I have to take what I can get here in Western NY and Central NY. Believe me if were up to me I'd keep looking but there is no one left to try.

Kara Lynn

[ICLori]

I'm so sorry for what you've gone through and I'm so mad at the doctor for not listening to you sooner. I'm glad at least that you are better now.

Blessings,
Lori

[Imustpee]

Kara..I know what you mean about the dr's not wanting to touch you...I have come across the same thing..I was told by my PC nurse that I was " Posion" and none of the local uros would touch me...the Seattle uro WILL help me since he was a student of Dr R 25 years ago and he does bladder removal with the outside bag...he also told me he would take care of me since he does have more knowledge of the surgery, so that was a relief. He was the one that did my PNT...I am taking this whole thing one day at a time...I KNOW that by this time next year we will be healthy and happy only peeing 6 - 8 times a day......

[sacausa]

Kara-
I'm sorry if I offended you.

[Kara29]

No offense taken, I just wanted to explain that I have been down a long road and have hit the end with trying Urologists.

That's all. Some people on here are familiar with my path and some aren't.

Kara

[vm]

I'm so glad your primary care doctor took you seriously. I have found that to be true when I think I have a UTI, too - my family doctor helps me more.

[sandramac]

:cat: :cat: :cat: Kara Im so sorry about the infection!! I cant belive how they have treated you! Its horrible! Darin and I will be thinking of you tomorrow, and so will my little kitties! Love to you and Allen! Sandra:cat: :cat: :cat:

[Judith56]

MY primary doctor does almost my care. If my pouch has a problem that needs closer looking at I go to my urologist a 2 hour drive away. For all my infections, etc. my primary does all the care- he took the time to contact my uro and they worked out a plan for when I get septic. It makes things easier for everyone.