blueyedgirl
07-05-2006, 09:16 AM
Hi Everone!:hi:
First I just want to say that I'm not exactly new to the board. I ended up having to re-register, because I had not been on here for awhile and had forgotten my password and the original email address I used to register is no longer valid---so that brings us to here.
So, first I'll just give a brief history. I had frequency my whole life:toilet: , the doctors thought I would always have it due to some surgeries they had done when I was younger (removing a blockage from my urethra and then dilating the opening.) When I was 18 I started having horrible lower abdominal pains. Finally 3 years later I was in and out of the emergency room and ended up dropping out of college because I was in so much pain. After a lot of horrible doctors and unhelpful diagnoses (it's all in your head!):headbang: --I finally found a doctor who said it was either endometriosis or IC. They decided to do a laporocopy and a cystoscopy with hydro at the same time. This is when we found out it was IC. Then, after trying several meds for it and a horribly failed interstim trial--I finally got admitted to the pain clinic--which has been a blessing! I finally have doctors who care about what is going on with me and are actually trying to help. I have since been diagnosed with Fibromyalgia, IBS and Facet Syndrome.
Ok, so now my questions---first I've noticed every month I tend to have blood in my urine (this usually occurs midway between my periods) Is this a normal thing with IC? I've asked my doctor about it but at the time I had a cyst on my ovary and she contributed it to that but at the last ultrasound the cyst was gone--the bleeding however is not. And my second question concerns retention, I've noticed lately that sometimes I feel like I have to go so bad but then I have a really hard time getting it to start. Anyone else have that problem?
Thanks.
First I just want to say that I'm not exactly new to the board. I ended up having to re-register, because I had not been on here for awhile and had forgotten my password and the original email address I used to register is no longer valid---so that brings us to here.
So, first I'll just give a brief history. I had frequency my whole life:toilet: , the doctors thought I would always have it due to some surgeries they had done when I was younger (removing a blockage from my urethra and then dilating the opening.) When I was 18 I started having horrible lower abdominal pains. Finally 3 years later I was in and out of the emergency room and ended up dropping out of college because I was in so much pain. After a lot of horrible doctors and unhelpful diagnoses (it's all in your head!):headbang: --I finally found a doctor who said it was either endometriosis or IC. They decided to do a laporocopy and a cystoscopy with hydro at the same time. This is when we found out it was IC. Then, after trying several meds for it and a horribly failed interstim trial--I finally got admitted to the pain clinic--which has been a blessing! I finally have doctors who care about what is going on with me and are actually trying to help. I have since been diagnosed with Fibromyalgia, IBS and Facet Syndrome.
Ok, so now my questions---first I've noticed every month I tend to have blood in my urine (this usually occurs midway between my periods) Is this a normal thing with IC? I've asked my doctor about it but at the time I had a cyst on my ovary and she contributed it to that but at the last ultrasound the cyst was gone--the bleeding however is not. And my second question concerns retention, I've noticed lately that sometimes I feel like I have to go so bad but then I have a really hard time getting it to start. Anyone else have that problem?
Thanks.