IC from Florida

[ChristineW]

I am new to the message board. Im a Floridian, 34 year old Mom of 3. I was diagnosed this past week with IC. My bladder also isnt emptying. I suffer w sever pain every day of my life. The pain I experience is lower abdominal cramping and lower back cramping. I sometimes even feel like Im in labor or something is about to fall out of me. I had a hysterectomy for the pains Im in, my ob thought it would cure me..geuss what, it didnt! It sent me to tons of drs, and many crying fits to finally get where I am today...a diagnosis. However , I have to admit although I have a diagnosis (thank God) I would rather have a diagnosis with one could be CURED completely of..I am sure you undertsnad. BUT I have read around and see there are ways to COPE.....I mean I have coped with the pain thus far. have too. I have my 3 kids and need to take care fo then, a home, a PT job taking care of kids...and I have a life. It has decreased my way of living in the way that because I am in pain all the time I tend to do less...I see the urologist again in 2 weeks to discuss further options. My next one is some procedure done every week in the office w a catheter. Can I get some feedback on that....is it painful, does it work? I have had this for a VERY long time ...no one has been able to find what was wrong til now. My bladder apparantly is displaced and is red in color whoch he said is normal with IC but not with the NORM patient without IC. I do SOMETIMES latley get spasms in CERTAIN areas..is that apart of this..this is a new thing and only hope its not my bladder moving or doing something....but when this happens (it happened yesterday) I bend over and wanna fall down.

Thanks for listening! hi

[ICNDonna]

Welcome to the IC Network. You'll find a lot of helpful people, as well as a lot of information, on this site.

The procedure of putting a medication in the bladder through a catheter is called an instillation --- there are different solutions that can be used and different people react differently.

Are you following an IC diet? That can be very important to help control your symptoms.

I do suggest you read the information in the Patient Handbook at http://www.ic-network.com./handbook/

Sending warm healing thoughts,
Donna

[SharonA]

hi and welcome...

I do not have personal experience with instillations but, I do want to welcome you to the boards. There is a wealth of information on this site and a bunch of very caring and supportive people who will do everything they can to help you.

grouphug and kissing

[Kathi]

Hi Christine, Welcome to ICN. I'm in Fl too, near Tampa. I did DMSO instills when I was first diagnosed & they helped me with my frequency. It's an anti inflammatory to get the red out. Go look at the treatments on this site & read about what is out there. Hugs,Kathi hi

[Dani72]

Hi My name is Danielle and I live on the East Coast of Florida, around the Cocoa Beach area. There is no support groups around here, so I was wondering if there is anyone in this area that would like to talk or whatever. My email is italianprncss72@aol.com. Hope to here from someone soon.

[Kathi]

Hi Dani, Welcome to ICN! I know that we have some east coast Floridians here & I hope some will respond with the name of a support group near you. Big smiles, Kathi:D