back Again

[Dayz]

Hi everyone
It's been a while since i posted. Well since this frequency thing started I have been from pillar to post. I saw my Gp who thinks it is anxiety related. My symptoms did improve for a while, about 2-3 weeks, I felt back to normal, it was wonderful. i saw urologist and had an ultrasound and cystoscopy, the bladder was healthy, i even saw inside myself, scary huh. I was put on vesicare which started to help a bit with the full feeling. BUT this past week symptoms have flared up again and got gradually worse. I have felt like I need the toilet after about an hour, I have awful buring pain around the urethra, which is so sensitive i eel incontinent. i also feel like when I am going to the toilet i am not emptying properly which is not helping. I am afraid to eat anything, i have not eaten anything 'bad' in a long time. I've lost so much weight because i am scared to eat now. I just don't know where to turn, i am seeing the urologist again in two weeks for a follow up visit. i feel so desperate and depressed. I just want an answer to this. if it's OAB that's fine but why the burning? Why the feeling of constant fullness? I feel at my wits end. Sorry this is so negative!

[ICNDonna]

First of all, while anxiety can cause IC to flare, anxiety does not cause IC! That's an "old school" theory and is usually not considered in this day and age.

If the cysto was done in the doctor's office, it's not surprising that your bladder looked healthy --- so did mine --- but when my bladder was distended under anesthesia, the IC was very apparent, complete with Hunner's ulcers.

I hope your urologist will have some answers for you.

Warm healing thoughts,
Donna

[Sheltie Lover]

Dayz, i am soo sorry to hear yur are not doing well! Can you call and see if they had a cancellation to get you in any earlier? maybe ask them to do the PST test? I dont know. Donna is right. Your bladder will look normal most of the time when an in office cysto is done. Please keep us posted. i hope things starting clearing up soon!
Amy

[ICB]

You should see your healthcare provider to make sure that it is not a UTI. If it is not a UTI, you may be experiencing inflammation due to Mast Cell Degranulation; an anti-histamine may be helpful.

Another possibility could be Pelvic Floor Dysfunction; ask your healthcare provider to check, if you have PFD ask for a prescription for physical therapy and if your healthcare provider believes that Valium 2mg three times per day (will help to relax the pelvic floor muscles) is appropriate for you.

Consult with your doctor, Amy gave you great advice, the sooner the better!

I am not a fan of a PST test; specially if you are in a flare - it may make you worse. Furthermore, it may give you a false positive since you are in the middle of a flare-up. If you would like a fact sheet on the PST test and/or PFD, email your request to icrelief@verizon.net and I will send it to you via email.

Best wishes, ICB :flower:

[Dayz]

I am seeing the urologist on the 11th July. i've done all this privately which has cost me. I was in the operating theatre when the did the cystoscopy and my bladder was filled with saline, it was quite uncomfortable, I saw it all on the screen which was interesting. I have had a better day today, I have not needed the toilet very much at all but i think i might be retaining urine due to the vesicare. The burning on urination is quite uncomfortable but the sensation eases off after about half an hour and then i feel fine. i just don't get this. My anxiety level is good today so i don't know if that has any bearing on it. Who knows i just want an answer.
Thanks girls :bunny:

[sami4]

As another poster suggested the burning, stinging urethral pain could be pelvic muscle dysfunction. Nerve pain is shooting, burning, stinging and can be caused by pelvic nerve entrapment. I know it sounds weird, but I have the same symptoms and was recently sent to a physical therapist by a vulvar specialist and when the PT pushed on some internal muscles near the rectum I had the shooting urethral pain, go figure?
I go back again for treatments on Tuesday with the physical therapist and she said they would be painful. Oh Joy!
Sammie