creativeheart
07-28-2003, 10:46 AM
Hi Everyone,
I am 25 and have been diagnosed with IC for about 4 years now. No one seems to have heard of it and most people are very unsympathetic to what they don't understand. I just found this website and it is such a relief to find out I am not alone.
According to the post, there aren't currently any support groups in the orlando area?! However, I would love to know if there are any IC sufferers in my area anyway. Also, if anyone knows a good doctor in central florida. I have tried so many different treatments and nothing has worked. I tried elmiron and my hair started to fall out, so I had to stop.
I'd appreciate any info or love to just have an understanding friend to talk to.
Thanks :-) Jillian :-)
I am 25 and have been diagnosed with IC for about 4 years now. No one seems to have heard of it and most people are very unsympathetic to what they don't understand. I just found this website and it is such a relief to find out I am not alone.
According to the post, there aren't currently any support groups in the orlando area?! However, I would love to know if there are any IC sufferers in my area anyway. Also, if anyone knows a good doctor in central florida. I have tried so many different treatments and nothing has worked. I tried elmiron and my hair started to fall out, so I had to stop.
I'd appreciate any info or love to just have an understanding friend to talk to.
Thanks :-) Jillian :-)