KLathin
06-21-2006, 10:22 AM
Hi,
I am new here and new to IC. I was recently diagnosed during a lap for endometriosis through a cystoscopy. A little background on me: I am 23, I have had endo since I was 11 and just had excision surgery at the CEC in Atlanta. (I also have had almost every other treatment for endo, so feel free to ask Qs about endo/treatment/etc, I would love to help if I can!) I also have fibro, which was mild when I was younger but after going on Lupron, for endo, when I was 17 it really hit me hard.
I currently am on a fairly restricted diet (I have *no* idea if it's an IC diet) and seem to do well on it. I am vegan (no animals or animal products of any type, again, if anyone has Qs since vegan is suppose to be good for endo and fibro, please ask, I would love to help!) for moral reasons and wheat and gluten free due to allergies and intolerances.
I didn't get a ton of info from the urologist who did the cystoscopy, as that was just an extra procedure they threw in there since I had some bladder issues. But I do have pictures! (And not a clue what they mean :) )
My symptoms are hard to define, as I am not sure what is causing what. Fibro is suppose to cause some bladder issues, as is endo. But, here is what I think is attributable to IC. When I don't drink enough water I have to constantly use the bathroom, it lessens when I drink enough water, but I still need to go frequently. It also has become harder to urinate, esp before and after my period. I also have extremely sensitive skin in my vaginal area. Also, since my last surgery, if I let my bladder get full, I start to get terrible shooting pain down the front of my pelvic area.
I live near Ann Arbor, MI and am hoping to find a wonderful doctor (aren't we all?) somewhere near me. I have been through so many horrible doctors and "treatments" for my other medical conditions, so I am very afraid to go through that again. Especially as I was told that my IC is very mild and in the starting stages, so if I can find a good doctor I have a good chance of beating this. This is really, really important to me, as all my other conditions are chronic, and even though the endo should be better after my last surgery, I still need to cope with the fact that it can come back. So if anyone can help me to find a good doctor, please feel free to respond here or email me privately at klathin@emich.edu.
Thank you so much for reading this and being here for support!
Karin
I am new here and new to IC. I was recently diagnosed during a lap for endometriosis through a cystoscopy. A little background on me: I am 23, I have had endo since I was 11 and just had excision surgery at the CEC in Atlanta. (I also have had almost every other treatment for endo, so feel free to ask Qs about endo/treatment/etc, I would love to help if I can!) I also have fibro, which was mild when I was younger but after going on Lupron, for endo, when I was 17 it really hit me hard.
I currently am on a fairly restricted diet (I have *no* idea if it's an IC diet) and seem to do well on it. I am vegan (no animals or animal products of any type, again, if anyone has Qs since vegan is suppose to be good for endo and fibro, please ask, I would love to help!) for moral reasons and wheat and gluten free due to allergies and intolerances.
I didn't get a ton of info from the urologist who did the cystoscopy, as that was just an extra procedure they threw in there since I had some bladder issues. But I do have pictures! (And not a clue what they mean :) )
My symptoms are hard to define, as I am not sure what is causing what. Fibro is suppose to cause some bladder issues, as is endo. But, here is what I think is attributable to IC. When I don't drink enough water I have to constantly use the bathroom, it lessens when I drink enough water, but I still need to go frequently. It also has become harder to urinate, esp before and after my period. I also have extremely sensitive skin in my vaginal area. Also, since my last surgery, if I let my bladder get full, I start to get terrible shooting pain down the front of my pelvic area.
I live near Ann Arbor, MI and am hoping to find a wonderful doctor (aren't we all?) somewhere near me. I have been through so many horrible doctors and "treatments" for my other medical conditions, so I am very afraid to go through that again. Especially as I was told that my IC is very mild and in the starting stages, so if I can find a good doctor I have a good chance of beating this. This is really, really important to me, as all my other conditions are chronic, and even though the endo should be better after my last surgery, I still need to cope with the fact that it can come back. So if anyone can help me to find a good doctor, please feel free to respond here or email me privately at klathin@emich.edu.
Thank you so much for reading this and being here for support!
Karin