upate

[malone]

I hope Louise logs on to read this. Iffel so bad b/c I did email you back but I have problems doing it--Duh! Anyway Louise or anyone, ?I am on 200mcg 4X a day. I started at 200 2X a day and worked up every other day.I havr\e had no bad side effects (and I always do!) except for an occassional stomach cramp. It has one wonders for me!! I am still cutting back on my pain meds--It is amazing!!!Louise--I hope you are able to start it--please let me know how you do--it has been a miracle drug for me. Good Luck!!!!

[louise]

HI MALONE,

THANKS SO MUCH FOR POSTING THE INFO ABOUT YOUR EXPERIENCE WITH CYTOTEC. I APPRECIATE YOUR HELP SO MUCH AS A LOT OF US DO.
I AM SEEING MY GP THIS AFTERNOON AND I AM GOING TO ASK HIM ABOUT GIVING ME A RX FOR IT. I ALSO HAVE SENT A FAX TO MY URO WITH A COPY OF THE STUDY IN BELFAST THAT WAS POSTED HERE. SO BETWEEN THE TWO, I AM HOPING ONE OF THEM WILL WRITE ME A SCRIPT.
I HAVE BEEN HAVING UTIS FOR THE PAST 2+ MONTHS AND SOMEONE POSTED THAT THEIR DOCTOR SAID IT TAKES AN IC BLADDER 3 TO 4 WEEKS (I HOPE I GOT THAT RIGHT) TO HEAL FROM AN UTI SO IT IS NO WONDER I AM HAVING ALL THIS PAIN!!!

I WOULD LIKE TO START ON A LOW DOSE OF THE CYTOTEC ALSO BECAUSE LIKE A LOT OF US ICERS WE ARE VERY SENSITIVE TO NEW DRUGS. I KNOW MYSELF I HAVE STOPPED TRYING NEW TREATMENTS FOR QUITE A WHILE BECAUSE THEY JUST MAKE ME WORSE AND THEN IT TAKES ME SO LONG TO RECOVER. BUT WITH ALL THE SUPER AFFIDAVITS (ESPECIALLY YOURS IS VERY ENCOURAGING, THANK GOODNESS!!!) I AM PREPARED TO DEAL WITH ANY SIDE EFFECTS THAT MAY HAPPEN, BUT IT SOUNDS LIKE IT MAY BE A DRUG THAT IS RELATIVELY EASY TO TOLERATE.

I WILL KEEP YOU POSTED WHEN I SEE MY GP OR HEAR BACK FROM MY URO.

AND THANKS AGAIN FOR GETTING BACK TO ME AND THE REST OF THE BOARD THAT ARE SO ANXIOUS TO HEAR FROM SOMEONE WHO IS DOING SO WELL.
SPEAKING FOR MYSELF, I AM VERY PLEASED FOR YOU - I AM HAPPY TO HEAR OF ANYONE WITH IC WHO GETS SOME RELIEF FROM THIS MISERABLE DISEASE AND IN YOUR CASE IT SOUNDS AS IF YOU ARE DOING ABSOLUTELY
GREAT ON CYTOTEC. HIP HIP HOORAY!!!!!

SINCERE THANKS,

LOUISE

RSMONTY@TELUSPLANET.NET (MALONE, IF YOU WANT TO E-MAIL ME ANY TIME I WOULD LOVE TO HEAR FROM YOU. I LIVE IN EDMONTON, ALBERTA,
CANADA.)

[louise]

Malone,

Thanks For All The Info You Have Posted Regarding Cytotec.
I Saw My Gp Yesterday And He Gave Me A Rx For The 200 Mcg. But I Asked My Pharmacist To Give Me The 100 Mcg. So I Can Start Small And Work Up The Dose. A Pharmacist Friend In Fact Suggested I Cut The 100 Pill In Half And Take That For A Few Days To See How The Drug Affects Me. It Sounds Like Some People Taking Cytotec Are Having Problems With Stomach Pains And Cramps.

I Know You Said You Had Minimal Problems In That Area. I Am Glad For You. Do You Take The Cytotec With Meals To Try And Avoid Any Side Effects? You Also Said You Started Taking 100 Mcg. Twice A Day. Do You Recall How Many Days You Stayed On That Dose Before You Increased To 200 Four Times A Day? Are You Still Not Having Any Problems With Side Effects As I Believe It Sounds Like You Have Been Taking Cytotec For More Than A Month Now, Is That Correct?

If You Have Any Other Pearls Of Wisdom To Offer Me And Others Who Are Just Starting Cytotec, I Know I Would Sure Appreciate Any Help. I Also Really Really Want The Drug To Work Because Like You And Many Others Nothing Else Is Helping Me And I Am Becoming Very Frustrated And Depressed After More Than Thirty Years Of Dealing With This Miserable Pain And Disease. Sorry To Sound So Unpleasant, But I Really Am At The End Of My Proverbial Rope With Living With Interstitial Cytitis Along With Other Medical Problems.

Many, Many Thanks, Malone, For All The Help You Have Offered To Me And Others On This Board Who Are Desperately Hoping That Cytotec Will Be Their "miracle Drug".

Take Care,

Louise

[purpleviolet]

Thats what I did - cut 100 in half at first. PV