kaganlmf
06-11-2006, 05:43 PM
:hi: Hi everyone!
I was diagnosed about 2 years ago after a cystoscopy. As long as I can remember (I am currently 45) I have urinated from 10-30+ times a day. What made me speak with my doctor is that is got so bad that I had to stay on the toilet for 5 minutes to allow my bladder to feel empty – sometimes if I didn’t do that, I experienced leakage.
The cystoscopy was a BAD experience. My Urologist didn't tell me what medication he intended to use before he put me out. He gave me morphine (which I was unaware of and which tends to shut down my digestive tract). I have a high tolerance for pain - so I was surprised the first time I urinated after I woke up because I had such severe pain I could hardly get myself back up off the toilet.
I still had no idea what I had been given or what was happening and I went home. The pain continued and got worse every time I urinated. I had to lay on the floor for 10 minutes until I could get up to walk back to my bed. When I called the Dr. he told me to take more Vicodin. I'm sure that only made things worse. I called him again the next day and told him again the pain was severe and he told me he had no idea what the problem was, but if it got worse I should go to the ER.
I ended up going to the ER. They took an xray and told me that I had a blockage in my bowel. When I asked where - the Dr. told me EVERYWHERE. They had me drink a laxative there and sent me home with an enema. I waited an hour or so then called my GI doctor (I have Crohn’s). He told me to take 2 more enemas and several laxatives and if no improvement return to the ER. I went back and was hospitalized for tests and released the next day (after things got moving again :). When I went back to the urologist he said - "So I heard you got a little constipated" I wanted to smack him - he hadn't even given me a stool softener after the procedure. Needless to say - I never went back to see him again - nor did I decide to have any treatment for the IC.
I got so sick from this experience that when I ate solid food my gut would blow up like a balloon. I ended up on a liquid diet for 4 weeks, then pureed food and gradually back to solid food over the course of 2 months.
ANYWAY…..More recently I began to have pain in my right lower abdomen – which I assumed was from my ovary (I do not have a uterus). So after tests, consults, etc.(GI endoscopies, ultra sounds, CT scans, barium studies, etc) my Gynecologist and my GP have decided the problem is most likely the IC – since we have pretty much eliminated everything else.
FINALLY MY QUESTION: I am curious if others with IC have the same type of pain I am experiencing, that is very low on my right side near my right ovary. Also – I have had 3 abdominal surgeries and this pain is in the area of my scar (scar goes from right to left across my abdomen very low – “bikini cut”). I believe in all 3 surgeries the doctors cut at the same location. I have been tested several times and no cysts were found in this ovary.
THANKS!
I was diagnosed about 2 years ago after a cystoscopy. As long as I can remember (I am currently 45) I have urinated from 10-30+ times a day. What made me speak with my doctor is that is got so bad that I had to stay on the toilet for 5 minutes to allow my bladder to feel empty – sometimes if I didn’t do that, I experienced leakage.
The cystoscopy was a BAD experience. My Urologist didn't tell me what medication he intended to use before he put me out. He gave me morphine (which I was unaware of and which tends to shut down my digestive tract). I have a high tolerance for pain - so I was surprised the first time I urinated after I woke up because I had such severe pain I could hardly get myself back up off the toilet.
I still had no idea what I had been given or what was happening and I went home. The pain continued and got worse every time I urinated. I had to lay on the floor for 10 minutes until I could get up to walk back to my bed. When I called the Dr. he told me to take more Vicodin. I'm sure that only made things worse. I called him again the next day and told him again the pain was severe and he told me he had no idea what the problem was, but if it got worse I should go to the ER.
I ended up going to the ER. They took an xray and told me that I had a blockage in my bowel. When I asked where - the Dr. told me EVERYWHERE. They had me drink a laxative there and sent me home with an enema. I waited an hour or so then called my GI doctor (I have Crohn’s). He told me to take 2 more enemas and several laxatives and if no improvement return to the ER. I went back and was hospitalized for tests and released the next day (after things got moving again :). When I went back to the urologist he said - "So I heard you got a little constipated" I wanted to smack him - he hadn't even given me a stool softener after the procedure. Needless to say - I never went back to see him again - nor did I decide to have any treatment for the IC.
I got so sick from this experience that when I ate solid food my gut would blow up like a balloon. I ended up on a liquid diet for 4 weeks, then pureed food and gradually back to solid food over the course of 2 months.
ANYWAY…..More recently I began to have pain in my right lower abdomen – which I assumed was from my ovary (I do not have a uterus). So after tests, consults, etc.(GI endoscopies, ultra sounds, CT scans, barium studies, etc) my Gynecologist and my GP have decided the problem is most likely the IC – since we have pretty much eliminated everything else.
FINALLY MY QUESTION: I am curious if others with IC have the same type of pain I am experiencing, that is very low on my right side near my right ovary. Also – I have had 3 abdominal surgeries and this pain is in the area of my scar (scar goes from right to left across my abdomen very low – “bikini cut”). I believe in all 3 surgeries the doctors cut at the same location. I have been tested several times and no cysts were found in this ovary.
THANKS!