Little update,

[dwdwdw]

Hey guys hope you are okay,

I have now been on Elmiron for almost a full month.
I havent done well but as a matter of fact the last couple of days my symptoms have fluctuated alot more then they usually do.

Its gone from times where I can go 6 or 7 hours without peeing (though i am in nasty discomfort the whole time), then for no apparent reason itll worsen severely and ill have to go 3 times an hour for a day...then have it ease up a little bit again, making it so i have a few hours where i can do small things.

Yesterday and the day before that I had them ease up a litlte and i could go and play basketball just for 45 minutes though, but still and then today I could go for a little picnick with my wife and take a walk.
It was hard to do those things but i was able to which is something, eventhough I was in discomfort.

Then tonight when I came home, it hit me again for no reason and now I am back to peeing at least once an hour, tiny volumes...and tomorrow or the day after it might ease up a little again.

I dont know if I should see this as a good sign, I have forced myself not too eventhough its been easy sometimes when its felt a bitbetter to think, maybe just maybe these pills are slowly starting to do something.

Then you just get so bloody dissapointed when your symptoms worsen majorly again and you are back in complete and utter agony :(

I am keeping at the Elmiron that is the only treatment I am on now and I really pray it will get better now, I need it and my wife need it.

Hope you are feeling alright and enjoying your summer,
Daniel :)

[vm]

Oh, I so remember those feelings from the first few months on Elmiron. I would start to feel good, but then feel like I was back at square one again. Just when I would start to let myself feel good about feeling good, back would come the symptoms full force.

What I found was that the longer I was on Elmiron the longer the good times became and the shorter the bad times got. There started being a lot more space in between bad times. It has continued to be that way for 4 and a half years! Just gets better. I sure hope this is the case for you - hang in there!!!! :)

[traceann]

I agree with Kim, I too went through that. I also discovered sometimes I was my own worst enemy - I did much more than I should have. But I was feeling pretty good, so I over-did the activities, lol. I learned to temper myself, just because I felt good - don't push it, LMAO!! I am so glad to hear that you are at least starting to see some better days! WOO HOO!!!

[poetgirl]

It took me a while to see some major improvement too. I'd have good days and not-so-good days. But like Traceann and VM have said, it's already hopeful that you're starting to be able to do some activities you enjoy again. Lots of prayers that your improvement will continue and the good days will outnumber the bad ones. Also keep in mind that since your bladder is still healing, you may feel a little bit worse right after doing physical activities because you're putting more stress on your body. But if you are feeling generally well enough to play some basketball, go for a walk or enjoy a nice day in the park with your wife, by all means do it anyway (just don't go overboard!) because psychologically it will make you feel better and that really does count for a lot in the long run.

Are you taking any other meds besides Elmiron?

[dwdwdw]

Thanks for all encouraging words guys!

I am just hoping this is just a prelude of things to come, the way it is now there is indeed a difference but I still cant enjoy things, but I can force myself to do them if you know what i mean..:)

But on the bad days, I couldnt evendo that so there is indeed a difference and it fluctuates alot.
I am still experiancing this nagging unrelenting bladder discomfort thats there no matter what i do, 24/7.
I am hoping that will ease up as I keep takingthe pills so i can really enjoy things again.

Its a real struggle right now i sometimes dont know how im going to make it but i keep fighitng and hope these pills will heal me so i can at least live somewhat decently again!

[emilyrose197377]

Hi Daniel, good to hear from you. Don't get discouraged it can take 6 months to a year before the elmiron works.