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walton54
06-03-2006, 05:23 PM
Hi everyone,

It has been a while since I last posted. I was diagnosed with IC about two years ago, although my current urologist (he is a sort-of IC expert who has been interviewed on this site in the past) thinks I may not actually have it because my symptoms these days are so different than typical IC symptoms. I've also been diagnosed with some sort of pelvic floor disorder and have been through physical therapy for it.

My most recent confusing symptom is pain in my pubic area and I am very curious as to whether anyone else here has experienced this. I've not yet discussed this one with my urologist, but I plan to. The pain feels as though my pubic hair is being pulled at and is sore. But there is no redness, iritation, etc., in this area, and my gynocologist said it's probably nothing (very reassuring!:rant:). It hurts more when touched and is worse in a few areas. It does not seem better/wose after/before urination, eating, etc.

Has anyone experienced this or anything like it? It is very confusing and it is so frustrating not being able to find anything online about this symptom. :confused: I realize it may not be IC-related but just thought I'd ask. I look forward to reading any thoughts you might have!



By the way, I may have posted about this before, but I also have intense pain in the morning before urinating when I have to urinate badly. I can avoid it by setting the alarm to wake up in the middle of the night to go, but this really does not seem normal. The pain stretches from my chest to my pelvis and can linger for hours even after the intial relief of urinating. Sound familiar to anyone? I have told both my urologist and gynocologist about this but neither knew what it could be. My general practitioner prescribed anti-inflammatory and muscle relaxer for it, but I want to know the root of the problem -- the pain is intense and can make it hard to even get up. The pain also makes it hurt to breathe in or talk before I urinate. Someone before mentioned perhaps it is IC or a bladder spasm. ? Thanks!

Kip
06-03-2006, 06:37 PM
I experience severe bladder spasms and often experience similar symptoms to what you are describing. I find the muscle relaxants and not sitting down as the best way to deal with the pain when it does get bad.

Alternatively it could be a condition called vulvodynia or vestibulitis. Although you describe your symptoms, the main symptom of this is an intense burning sensation, I don't know if this is what happens with you. If it is then a drug called amitryptilline is the best way in which to control the pain.

Kip

Mrs. Burschman
06-04-2006, 10:26 AM
I've heard of people with problems with their pudendal nerve (or vulvodynia) complaining of the hair-pulling feeling.

Amy (Mrs. B) :bunny:

July
06-04-2006, 11:24 AM
I get the hair pulling feeling, and it seems to randomly come and go. I'm not sure about diet triggers, but I have discovered that if my intestines/bowels are irritated in any way, the genital pain is also there. Is it possible that you are dealing with some intestitinal pain? If the pain is higher up like you described, it could be intestinal in nature.

I have also read that vulvodynia/vestibulitis and the hair pulling feeling often go together.

Also, in the past when I've had a yeast infection, it has hurt up front.

It can be so miserable. Hope you feel better soon! I'll keep you in my prayers.

Elle
06-04-2006, 03:23 PM
I have the same symptoms and have found some relief from Lyrica and Cymbalta, since they target the nerve ending aspect of IC. I know it's painful (not to mention one more aggravating thing to deal with!). I've often wondered at times if I may have small kidney stones that make the feeling that starts high in my shoulder blades and goes all the way to my urethrea. It seems like as once this starts, it has to kinda work it's way down over several days or as long as a couple of weeks. The uro said it's very possible that it could be tiny stones. Just wondering, Walton54 (if you don't mind answering)...did you have any pelvic surgeries before your IC symptoms started? Mine started the day I had a c-section (my bladder was also nicked). Just wondering :). I hope you can figure out exactly what your symptoms stem from. If you do, I'd be very interested to hear the cause. Hope you feel better soon...:kissing: