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dancemomof2
01-28-2003, 08:24 AM
Hi from WV, I haven't seen much on the site from anyone here with IC. I have a wonderful doctor for support, but would like to have a friendly ear to listen close by. Any bendable ears?

vm
01-29-2003, 01:38 AM
Sending you a PM. :)

radstudent
02-12-2003, 02:14 PM
Hi,

I am from Grafton, WV. I have ben trying to find somebody around here with IC. If you want to talk e-mail me braddo6@aol.com.

djrs
02-16-2003, 01:05 PM
Hi...I too am from WV....Charleston.

Dobrzynski
02-17-2003, 01:12 AM
Hi! I'm from Wheeling WV, Boy does this snow stink. We have atleast two feet. Can't go anywhere. Yuck!!!!!!!!!! Send me a message anytime! Shannon :)

deborah b.
02-17-2003, 02:05 AM
HI SHANNON I HAD MY IMPLANT TAKEN OUT LAST WED. I FELL SO SORRY FOR YOU WITH ALL THE SNOW. I TALK WITH MY GIRL FROM BACK HOME AND SHE WAS TELLING ABOUT ALL THE SNOW. I HOPE YOU ARE DOING OKAY!!! WILL CALL YOU SOON. DEBORAH

dancemomof2
02-17-2003, 02:11 AM
I was beginning to think I was alone in WV, thank goodness for some replys. I live in Elkins, so I am close to some of you. Thanks for being out there.

deborah b.
02-17-2003, 02:21 AM
I WOULD LIKE TO HEAR FROM YOU IN ELKINS!!! I USE TO LIVE IN ELKINS. MY DAD WAS A VET IN ELKINS AND LIVED ACCROSS THE STREAT FROM SHONNEY'S MY MOM SOLD HER HOUSE TO A DENTIST IN TOWN. I WILL BE LOOKING FORWARD IN TALKING WITH YOU. WHO IS YOU DOCTOR IN ELKINS?? TALK WITH YOU SOON. DEBORAH

dancemomof2
02-17-2003, 02:32 AM
Hi from Elkins, I know where your house was, I just forget who lived there. My doctor is Dr Zaslou in Morgantown, he is wonderful. I am a 30 year old daycare provider with 2 children ages 6 &10. I was originally Leslie Ryan. Who is your doctor? any help is wonderful to hear. My email is stasny@sunlitsurf.com if you wantt to talk later.

deborah b.
02-20-2003, 04:58 AM
hi

IT WOULD NICE THAT WE ALL GET TOGETHER SOMETIME SOON. MAYBE WE ALL COULD MEET IN MORGANTOWN. I WILL NOT BE BACK UNTIL APRIL FROM FLORDIA. DEBORAH

radstudent
02-20-2003, 01:37 PM
Hi

Deborah -I think it would be great for us all to get together sometime. It would be nice to actually meet others with IC.

DJRS - I am going to be in Charleston next month.

Hope everybody is well.

Louise

djrs
02-25-2003, 01:20 PM
Louise,

I just saw your post. If you would like to get together while you're down here, email me and let me know! I haven't met anyone here with IC...Debbie

Char
02-26-2003, 03:32 AM
Hello to those in WV with ic. I'm in Harrison Co., the Salem area, west of Clarksburg. Would love to get together face to face to discuss medical history and therapy! Charlotte

deborah b.
02-27-2003, 02:45 AM
IT WOULD BE NICE IF WE ALL COULD START A SUPPORT GROUP MEETINGS!! I AM GOING TO TRY TO GET HOLD OF THE UROLOGY DEPT AT THE RUBY IN MORGANTOWN. TO SEE IF THEY CAN HELP US TO GET SUPPORT GROUP STARTED THERE. I WILL NOT BE BACK HOME TILL MIDDLE OF APRIL. DEBORAH

Katherine
02-27-2003, 03:04 AM
Hi I am from Tennessee but if you like to write I answer. vkge@pchnet.com Take care be safe
katherine

dancemomof2
02-27-2003, 06:37 AM
A support group would be nice, none of us are to far away from each other. i'm in Elkind and go to clarksburg often. I have to see Dr. Z at WVU on 04/04/03. I 'll ask about some help to get a group started. Email is stasny@sunlitsurf.com feel free to contact me anytime.

Leslie

deborah b.
03-03-2003, 04:31 AM
LESLIE I SENT YOU A PRIVATE MESSAGE TODAY AND HOPE TO TALK WITH YOU SOON. DEBORAH

radstudent
03-04-2003, 04:19 PM
Hey everyone,

Dr. Zaslau at WVU has mentioned to me before that he would like to start an IC support group. I just emailed him to see if he is still going to do that and ask what we could do to get one started.

Louise

deborah b.
03-05-2003, 05:28 AM
hi THAT'S GREAT LOUISE. IS YOUR DOCTOR AT THE WVU OUT PATIENT GROUP. I USE TO GO TO DR. STAN KANZARI. LET ME KNOW WHAT HAPPENS. YOU CAN E-MAIL ME AT ANYTIME deborahbush1952@yahoo.com I USE TO WORK AT THE OLD WVU MEDICAL CENTER UP IN THE OR. TALK WITH YOU SOON AND LET ME KNOW WHAT HAPPENS. DEBORAH kissing

radstudent
03-05-2003, 03:09 PM
Hi everybody,

Great news. I just got an email from Dr. Zaslau at WVU about starting an IC support group in WV. He said he would be the advisor and would be glad to help get one started. :D I will be keep in touch with him and will let you all know more as soon as I know anything else. :)

dancemomof2
03-05-2003, 11:31 PM
Louise
Thats great I'll be happy to help in any way I can. Keep me up to date on what I can do.

Leslie

deborah b.
03-06-2003, 11:04 AM
LOUISE LET ME KNOW WHAT HAPPENS. I GRADUALLY HELP YOU WITH SET IT UP. I HAVE FRIEND IN AKRON, OH THAT HAS SUPPORT GROUP AND MAY ASK HER ABOUT IT. TALK WITH YOU SOON. I WILL BE HOME ON APRIL 11 FROM FLORDIA. BE PRAYING FOR ME ON THE 17TH. BECAUSE I AM GOING TO GET THE BOTOX INJECTION INTO MY BLADDER AND HOPE IT WILL HELP ME. DEBORAH