Ditropan Question

[Sher E]

I posted this under pain management but didn't get any answers to my question.

This morning was the first time ever that I sat down to pee and it didn't start. It took about 15 seconds for me to pee and it wasn't much. I had already gone at around 4am and all was fine, so I didn't have much to let out, but I have never had that feeling before of the urine stream just not starting immediately.

Reminder: I have not been diagnosed with IC, infact two Uro's think "no". I had decided to take myself off the Ditropan XL (.5mg) and last night was my 2nd night of not taking it and I wondered if this is a side effect of coming off the this medication?

I've asked my GYN to schedule a LAP so that we can see what's going on in there from an Endometrial point of view (we know I definetly have that).

I've been taking one Neurontin (300mg) at night and that has helped as well.

So, I'm curious as to what causes retention? Even a small level of it?

I have been going through this baldder ordeal for 3.5 months now and have no answers. It's all my own theories since I can't find anyone to give me an answer.

Thanks Girls!

[di52]

Hi,
I found the ditropan xl that I take does that to me. But it does help me not get up as much either.
I'm curious, my dr. said I have chonic cystitis, but not IC. He said only the top layer of my bladder is inflammed. He also said to stay on the IC diet. I don't know if I'll stay on the elmiron...but I am taking gotu kola too now.
Neurontin is an anti inflammatory...I'm glad that's helping you!

[ICNDonna]

I do think it would be a good idea to call your doctor before stopping taking any ordered medication. Just be sure you don't strain to urinate --- it will make it worse.

Donna

[Sher E]

Thank you Di & Donna~

I feel so distraught almost. I stopped the Ditropan for two days and I had that brief episode of retention and then it seemed to be ok. But the pain came back and so I started it again on Saturday afternoon. As of this morning I feel fine.

What bothers me the most is that I have no clue what this is. Food doesn't seem to be the issue anymore now that my bladder has calmed down inside. I feel so frustrated that I have made little head way with getting a diagnosis and that these Doctors will not move forward because my symptoms are not like the classic case of IC.

Considering I have no frequency or urgency issues, the Ditropan for me keeps my bladder calm from pain. Go figure.

I lay in bed and wonder what is wrong with me. What is causing this pain? What if I have cancer even though my blood tests and the cystoscopy showed negative findings or all within normal range? Possible?

I don't want to be on this medication indefinitely. I feel at a complete loss.