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songbird7
04-24-2006, 12:09 PM
For years I've considered this site very important as I feel so isolated with this disease otherwise. I spent about 15 minutes posting about a week ago only to find it vanished. It was nothing that would give offense. I feel my online support group has been taken away from me. I joined in 2000.
Songbird

Imustpee
04-24-2006, 12:19 PM
When the ICN went to the new servers Sat a bunch of us got bumped and couldn't get back on for over 24 hours...I know because I was one of them...I have seen a couple other people posting about missing posts...I would guess that's what happend... :)

tigger_gal
04-24-2006, 02:12 PM
I am sure that it was not done on purpose.. (((((((((hugs))))))))) I had to keep trying to get on and it kept telling me invalid user name.... I finally got her.. I made a reply to a couple of post and I was logged in and it told me that only members could reply :biglaugh:
the good thing is we are all here, a couple people resigned up and then after that could get in with there reg names.. Imustpee I thought your new name was too cute.. ;)

MarthaB
04-24-2006, 02:21 PM
:) Songbird, I had some of my posts missing too, don't be upset, like cindy said it happened because of the change over on saturday, it had nothing to do with your post! :grouphug:

ICNDonna
04-24-2006, 03:43 PM
When all of the boards were moved to a new server, unfortunately some posts just disappeared. We should be back to normal now.

Warm hugs,
Donna

P.S. Any time I have to delete a message, I contact the individual who posted it, letting them know why it was deleted.

Katrina
04-24-2006, 04:12 PM
I had some posts missing too. I don't think it happened on purpose.

songbird7
04-24-2006, 04:26 PM
I'm really glad I checked back and found out that it was just something to do with the server. I was getting depressed about it without knowing that. All I was doing was explaining some of the red tape I am needing to go through to get to the urologist recommended to me. I haven't had the strength mental or physical to completely deal with it, dealt with part of it and that was a lot of work, stress and caused a horrible flare. I was and still am asking for prayers that this transition to the new urologist which is UCSF Med Center Urology Clinic is a smooth one. It's been 3 weeks at least since the other urologist said I have a severe case of IC and he no longer can help me. It remains to be seen if the benefits of the new place will be better than the pain the travelling most likely will cause getting there . Sigh, and saying the Serenity Prayer. By the way, I would never post anything offensive which would cause a post of mine to be deleted. No wonder I was confused. I thought I'd lost my online community. I am glad that is not the case.
All the best,

tigger_gal
04-24-2006, 04:44 PM
nope you didn't lose us, they just got lost somewhere along the line.. Idon't know if you tried the interstim or not it has been a bledding for me.. but I am not suggeting you get it because that is sometihng that someone must consider on there own.. however, if you don't have it you may want to consider the bon... I posted to a post on bion i the stim boards, from al letter I got in the mail.. it has no wires and I think it might become a better success then the stim..
sending you hugs and wisihng a very smooth transfer to your new uro and hope he finds sometihng to help you.. also why I am thinknig of it they are researching a new med now called mn-oo1.