A list of IC pills?

[pottywoman]

I'm not sure where to post this but could someone tell me where I can find a list of the pills that are tried for IC? :help:

[BellaTutu]

hmmm...lets see how many I can remember..

Elmiron
Elavil
Neurontin
Gabatril
Nortriptilyne
Valium
Flexeril
Skelaxin
BusPar
Celexa
Celebrex
Ditropan
Detrol
Detrol LA
Ditropan XR
Effexor
Effexor SR
Fentanyl
Lortab
Lorcet
Vicodin
Darvocet
Demerol
Oxycontin
Percocet
Codiene
Morphine
MS Contin (also morphine)
Kadian (24 hour morphine)
Methadone
Ultram
Ultracet
Tramadol
Toradol
Benedryl
Atarax


Non Pill form treatments:

DMSO
silver nitrate
Chlorpactin
Heparin
Marcaine
Lidocaine
Baking soda (ingesting it)
RS4I Stimulator
ESTIM
TENS Unit
Hydro's (theraputic type)
Pelvic Massage for PFD
Coritisone Injections
Trigger point injections

And any other antidepressants I missed.

(still thinking*.......)

These are things I've tried...and most failed or I had reactions to.

Anyone else have some to add?? I know this cant be all of them..

I'm currently on: Kadian 30 mg, Vicodin 5/500, Zanaflex (amazing for sleep and pain with fibro), Cytomel, Synthoid, Premarin, Donnatal, Zelnorm, NuLev

[Katrina]

http://www.ichelp.com/TreatmentAndSelfHelp/medsguide.html ICA treatments and Meds
http://www.remedyfind.com/hc-Interstitial-Cystitis.asp This is a link to a site with IC treatments rated by patients.
These lists don't just include pills but it may help.

[Mel53H]

How about...Hydroxyzine and Pyridium ??

[Imustpee]

Here is a list of all the pills and stuff I was taking almost daily before the surgery: :toilet:


Daily meds and treatments

Hydroxizine 50 – 100 mg 1 per day
Elmiron 6 caps daily
Macrobid 1 x day until Dec 23rd….day of surgery
Prilosec 2 x day
Aloe-Vera Gel 1-2 Tbls 3 x day
Prelief 2 – 4 with meals
Elmiron Cocktails - 3 Elmiron - Sodium bi-carb - Lidocaine
Pyridium 3- 4 day for severe burning & bladder spasms
Oxybutynin 3 – 4 x day for severe bladder spasms
Anestacon as needed for severe urethral pain
Loestrin 1 x day
Tums 2 – 6 per day
Hydrocodone 500 – 750mg 4 – 6 day as needed for severe bladder pain


Compression of Lateral Femoral Cutaneous Nerves:

Gabapentin 1 – 3 100mg – 300 mg 3 x day
Diclofenac 2 x day
Lidoderm every 12 hours



For back spasms:
Cyclobenzaprine 10 m 3 – 4 x day
Hydrocodone 750mg


For high blood pressure:
Quinapril 20 mg 1 x day

Sleep aid:
Lunesta 1 x night

Fluid retention
Lasix 1 x day as needed

For Psoriasis breakouts:
Flurandrenolide Tape
Tea Tree Oil
Hydrocortosone Cream 1%

Meds and treatments I do as needed:

Nortriptyline
Cipro
Leviquin
Hydro- Distention
Claritin
Amoxicillin
Trazodone
3 - Cystoscopies


Ibuprofen
Benedryl
Ditropan XL
Miconazole 3
Zyrtec
Hydrochlorothiazide
Lidocaine - Hydrochloride Jelly
In- dwelling Foleys


Meds/ treatments I have tried over the years:

DMSO
Bladder Retraining
Yoga
Aroma Therapy
Acupuncture
Uristat
Cysta-Q

[pottywoman]

Wow Bella, did you remember all that by memory? Thanks for the lists and web sites. Just have to sort through what I have taken. It's kind of mind numbing.

IMUSTPEE---I just read your signature. I'm am sooooooooo happy for you! :woohoo: :woohoo: I almost started crying from joy. That was such a great thing to read. :woohoo:

[BellaTutu]

yeah pottywoman, I did - long term memory is great, its the short term thats awful :D I've been on every one of those meds in the past 10 years or treatments listed, wish they would have worked though.

I hope in something listed will work for you

IMUSTPEE - wow hun, you've sure been through it. I'm so happy that you found so much relief with having your bladder removed :D. You're braver than I am - that was mentioned to me wayyyyyyyy back when but I"m too much of a chicken to have it done ;)

[tigger_gal]

lol... think we all get pill names stuck in our heads...
ambien helps you sleep also, and hydroxizine and adrax are the same... and I used urised for spasms.

[ICNDonna]

The Patient Handbook (link at the top of this page) is a good source for finding out about the various medications and treatments.

Donna

[emilyrose197377]

Lidocaine gel, lyrica

[Baba Yaga]

PW, Enablex is a new one. I think it is supposed to work like Detrol and ditropan. It's mentioned in remedy find, but has only one review.

You can poke around remedyfind and read up on depression medications too. The Topamax is listed in several places, including weight loss -- there are a lot of cautionary tales there about it, so make sure you read all the Topamax reviews.

[ihurttoo]

You will see the meds I take currently for each of my conditons in my signature. I have also tried Elavil, (gained too much weight, and had no symptom improvement) and I have tried many differant anti-inflammatories. I tried almost all of these at one point or another for pain control and inflammation, but felt no improvement or only minimal improvement with most of them, pain-wise. I am currently taking Volteran, (aka Diclofenic) for an anti-inflammatory. I have also done the DMSOs, and still get an occasional "booster DMSO". I also get rescue instills done when I am flaring. I have also tried Skelaxin for a muscle relaxor. (didnt help much.) Now I am on Zanaflex for that. It helps alot. I also drink almond milk, follow the IC diet, and use Prelief. The only other one I have tried, (that I remember), is Ditropan XL, but I gave it up b/c it worsened my IBS, (made me terribly constipated and also gave me a bothersome dry mouth. So I now take Vesicare instead. All my other meds are listed below. Hope this helps you. Dr. Robert Mouldwin's book "A Survival Guide to Interstitsal Cystitis" has a very valuable section regarding IC meds. His book was an invaluable source of information to me when I was newly diagnosed. I found it to be an extremely valuable tool to take with me to my Dr. when I wanted to try something new. I found it easer to persuade my dr to let me try something, when he saw that it was a generally accepted treatment used by experts in the treatment of other ICers. Hope this helps you! Hugs, Amy