My baby boy got a UTI

[anxious one]

Hi guys,

Things have been an absolute mess of late, hence i haven't been on the boards much. We have had one thing after another. last week Alex stopped feeding and was crying inconsolably so I raced him to my GP who sent us straight up to the hospital. As they were very worried about dehydration they put a canular in :( and insisted on taking a catheter sample which nearly gave me a break down. I know it's routine to test young babies for UTI's whenever they are presented to hospital but I really didn't think for a second that was the problem. Anyway, after 2 days they finally concluded it was a bad UTI (after we had spent 2 days in the childrens ward with him on fluids,) and as you can imajine, I lost it. I cried probably more inconsolably than ALex! :rolleyes: To top it off, my daughter has another UTI at the moment.

Now I know that evryone insists that IC is not hereditary, but I don't believe it and I refuse to believe that there is no genetic connection between mine, my daughters and now my sons, bladder problems. My daughter has had an ultrasouns which was clear and the pediatric urologist we took her to said that she simply has a "lazy bladder" which doesn't empty properly and causes retention which leads to infections. I don't know whether to believe him or not.

Now my tiny 10 week old baby boy has to have not only an ultrasound but a scan where radioactive dye is inserted via a catheter into his bladder to check for "structual abnormalities." :mad: The thought horrifies me. Apparently 50% of babies who develop UTI's have a structual problem, eg. reflux. I am absolutely horrified at the thought of subjecting him to that and really don't know that I can. Is it really neccessary after 1 infection?? His peadiatritian is saying that he could be on low dose antibiotics for the next two years. My poor baby. I am so upset at the thought of him going through pain. I know that the antibiotics could prevent more infections but what if he never grows out of them????? What if both my children are heading down the same path I have??? :mad: They could both end up hating me. I am just so upset at all of this I don't know what to do.

Anyway, I'm sorry to rave on. We came out of hospital after 4 days and this morning he has a mild fever and I am terrified he has picked up something else while in hospital.

My poor babies. :shake:

Please pray for me that my children will get better as I couldn't cope if they had these problems for life. :pray: Hope everyone else is ok.

sara

[Cohen3]

Oh Sara, I am so sorry you & Alexander are going through all this, I can only imagine what you are feeling right now. I didn't reliaze that Claudia had troubles as well, it really does make you wonder about the conection????
My girlfriends little one is going through the same thing with her youngest daughter, she is about 8 months now but noticed trouble from very early on. She has just been over to a spec. DR. in Adelaide & she was told about the "lazy bladder" thing & hopfully she should grow out of it. But her problem is also that the valve from the Uretha to the bladder does not open & shut properly & she can not empty all her urine as it is just sitting in her bladder then going back up & causing infections. They are also keeping an eye on her kidneys. As well as the poor thing has been on antibodicits for months & will be for at least another year.
If you need to talk to anyone about it I am she Katrina woudn't mind sharing her story with you, so just let me know.
Hope things get better for Alex as we can not bear to see our little one's not well & in pain. I had to spen a few day's in Hospitial with Cohen for an infection & fever once & it was the most horriable time ever. All he wanted to do was rip the drip out of his arm.
Take Care, and I will be thinking of you.
Big Hugs , Andrea :grouphug: :angel:

P.S I forgot to say this is Andrea ( Andcohen my name has changed)

[Mel53H]

I just hate it when little ones are sick. I rather be sick and or in pain, than to see them suffer. I am so sorry! Poor baby!

Mel

[work it]

oh how awful, sounds like you have been through alot lately, I do hope everything turns out to be okay, you and your little ones are in my prayers.

[creatingkarma]

I'm so sorry to hear this! I would be beside myself if this happened to one of my babies. Even if this is something hereditary, it is not your fault!!! We can't pick which genes we pass on & which ones we don't. Your kids will not hate you for this! I have inherited many things from my parents & I don't blame them for it at all. That is so scary watching your baby go through this. The 1st time I had an IVP I was 3 years old. I still remember parts of that hospital stay. You & your family will be in my prayers. I hope everything turns out ok.

[Babs RN]

Prayers for you and your little angels. Hang in there, Mom and know we are all here for you.

Hugs,
Barb :grouphug:

[anxious one]

Hi everyone,

thanks for your kind words and sympathies :grouphug: I just rang to book the appointment for his horrible test and insisted on speaking to the radiographer about exaxtly what it involves. She said that they don't know exactly how much "discomfort" the procedure involves for babies as they can't give feedback! Excellent. Very reassuring. :rolleyes: Apparently the bright side is that at his age he won't remember it!

I can't believe that I have to put my tiny baby through a test that i wouldn't even put myself through.

As for Claudia, I might have to take her back to the pediatric urologist although I don't know how much good that will do.

Andrea, does your friend have an e-mail?? Would she mind if I spoke to her??

I will keep you all posted, thanks for being here. :)

sara

[Rosalie]

Sara, I am so sorry that you and your babies are going through this.Think of this: the fact that you are attending to this now may mean that they Don't have worse problems down the track. Sometimes I think that is why I it wasn't until nearly fifty before I got a diagnosis and some relief!

And your children will not hate you for this. How could they hate your for loving them and worrying about their health?
It is a horrid time watching your little boy in hospital going through these procedures. My son was often in hospital with asthma. Once it was for over a week and they had him on the pump every hour, day and night. He shook so much from the ventolin it was unbearable to see.
We are all here to listen, help and support you in any way we can.
I wil pray for you and your little ones :pray: :grouphug:

[SharonA]

I am so sorry. It is so hard when your kids get sick. :grouphug: :kissing: :pray:

[deviation72]

Sara,

Sorry I'm late in replying, have been busy dealing with my "other" condition (Type 1 diabetes, urgh). I'm really sorry to hear your precious angel has been unwell. I hope he is feeling better soon and these UTIs aren't something he has to experience for long. Thinnking of you :grouphug:

[BellaTutu]

oh my goodness hun! You are going through so much and those poor babies. Many prayers your way....I'm sorry you're going through this. :angel:

[emilyrose197377]

you and your children are in my thoughts and prayers.

[Cohen3]

Sorry Sara I only just checked the boards & found your posts on Alex. How is he doing? Yes I do have Katriana's email, I did mention to her the other night that I knew of someone that's son sounded like he had the same thing as her daughter. I will give her a call & check if if she would mind if you contacted her by email, although I'm pretty sure it would be ok. She's a great friend & I'm sure that she would be happy to help if she could.
I will let you know.
Take Care
Andrea :grouphug:

[Cheries]

I totally understand how worried you must be. Hopefully it will turn out to be an isolated event for your little ones and they will outgrow whatever it is. Both of my girls have had infections before and I PANICKED!! I cannot imagine one of my kids getting IC. And this is most likely not IC in your kids, but perhaps other issues which are treatable.

Hopefully there will be a way to test for the APF factor in the future so we can help protect our children if they are going to be effected. Right now it is as if I have to wait and see if they ever develop IC. I get so worried sometimes as out of the blue I will think about what I would do if they did.

I am so sorry you are going through all of this. Please keep us updated on what happens with the proceedure. Is there some way they can sedate your little boy during the test?? By the way, if they say he "doesn't respond" to pain they are wrong!! If a baby is in pain, they are going to cry. It only makes sense to me. You need to insist that he is made comfortable during the proceedure so you can have peace of mind.

[anxious one]

Hi guys,

Alexander had his horrid tests last week- it was awful. They stripped him down and held him on the table while they inseted the catheter and filled his bladder up with dye. He was hysterical and I was sobbing. Luckily, a friend came with me and she ended up holding him because I was so upset they sent me outside. The only upside was that it didn't last very long and the results were NORMAL. :) No structural problems. So, he is off the antibiotics now and it is just a "wait and see," The worst thing is worrying about more infections- when he screams longer for a minuite I'm convinced he has another one. How can you really tell with a baby? he has colic also so screaming isn't unusual for him! :rolleyes:

I pray that it was just a one off and won't happen again...

With my daughter, i found this stuff in the chemist called "Ureze"... it is effervescent cranberry tablets, (like Berrocca.) She is drinking one every morning. I am hoping this will help prevent infections.

Mr Alex has just woken up, but I will try and post again soon.

Hope everybody else is well, have a happy easter! :) (Not that we can eat any chocolate, but hopefully the bunny will bring some white chocolate or carob :) )

Sara

[MarthaB]

:) Sarah, I'm so glad that alex's result was normal, the poor thing, having to go through these test at such a young age is terrible,....it makes me wonder too if IC is genetic since both your children have bladderproblems, I can understand your worry about him getting more infections, if only babies could talk it would makes things easier, at least you would know if he is crying because of his colic or his bladder.

I hope you all have a happy easter, and hopefully you will get some white chocolate!

[Rosalie]

Sara those tests sound like an awful thing to go through for both you and Alexander. Fingers crossed that everything will settle down for him. Both my kids had colic. Whenever they would cry I would think it was the colic. It got very confusing trying to work out what was wrong.
I used to be able to get a wonderful colic remedy from my doctor but it has been taken off the market. What do they give babies these days?

[Cohen3]

Sara,
I am so glad that Alex's test was Ok. I am sorry but I forgot to let you know my friend Katrina's email, she said she would be happy to talk to you if you wanted. Just let me know if you want it & sorry it took so long just haven't been on the boards for awhile.
Take Care
Andrea

[ICNDonna]

It's not unusual for children to have bladder infections. I have a niece who was like your Claudia and she had to take antibiotics for several years. She's grown now and doesn't have any bladder problems now. I know it's worrisome for you, but just remember that your little Alex was tested and is normal. And it's good that you have a doctor who doesn't just ignore things, hoping they will go away. I like a doctor who is thorough.

Warm hugs,
Donna

[deviation72]

Sara, glad Alexander's test results were OK after all that worry, and hope you and the family had a great Easter together.