Baba Yaga
03-16-2006, 04:48 AM
I am posting this thread in the areas most likely to be populated/visited by IC sufferers for whom pregnancy is not a significant probability: men, patients over fifty, and women with hysterectomies or considering them.
I know that there must be some men who end up feeling out of place in our heavily female-dominated board, not to mention alienated by the occasional male-bashing that we women occasionally can't resist -- obviously inspired by men outside the ranks of ICN posters or IC patients. I have wondered if this has prevented some men from hanging out on the ICN long enough to discover all of its subfora and occasional hidden gem. (For example "ihurttoo"-Amy only recently discovered the involved discussion of drug that seems to have put a few women into remission quite easily.)
I am posting in hope that the men seeking information here will give some attention to the discussion of cytotec, and, if other things have been failing them, consider if they might try it. Because so many IC patients are women and this drug is so strongly contraindicated for pregnancy, and because this drug is no longer patented, it may have been a truly overlooked weapon so far in the fight with bladder pain/frequency/urgency. The more patients try it for IC, the greater the body of experience with it will be, and the greater the word-of-mouth-created awareness of it will be as one option in the doctor's pharmaceutical arsenal. (If I read correctly, it was an ICN reader who recently presented the idea of misoprostol for IC to Robert Moldwin himself.) But, again, the most effective way to begin is with anyone for whom pregnancy is a non-issue. Those for whom pregnancy is a possibility in the minds of their doctors will stand to benefit greatly from the initiative and experience of those who went ahead before them because it was easier for them to get their foot in the door for merely trying it out. And it seems that some of those who go first will stand to find some degree of relief form their IC.
Here are the two areas that contain misoprostol/cytotec discussion:
http://www.ic-network.com/forum/forumdisplay.php?f=156
http://www.ic-network.com/forum/forumdisplay.php?f=99
I'll be very interested in your thoughts.
I know that there must be some men who end up feeling out of place in our heavily female-dominated board, not to mention alienated by the occasional male-bashing that we women occasionally can't resist -- obviously inspired by men outside the ranks of ICN posters or IC patients. I have wondered if this has prevented some men from hanging out on the ICN long enough to discover all of its subfora and occasional hidden gem. (For example "ihurttoo"-Amy only recently discovered the involved discussion of drug that seems to have put a few women into remission quite easily.)
I am posting in hope that the men seeking information here will give some attention to the discussion of cytotec, and, if other things have been failing them, consider if they might try it. Because so many IC patients are women and this drug is so strongly contraindicated for pregnancy, and because this drug is no longer patented, it may have been a truly overlooked weapon so far in the fight with bladder pain/frequency/urgency. The more patients try it for IC, the greater the body of experience with it will be, and the greater the word-of-mouth-created awareness of it will be as one option in the doctor's pharmaceutical arsenal. (If I read correctly, it was an ICN reader who recently presented the idea of misoprostol for IC to Robert Moldwin himself.) But, again, the most effective way to begin is with anyone for whom pregnancy is a non-issue. Those for whom pregnancy is a possibility in the minds of their doctors will stand to benefit greatly from the initiative and experience of those who went ahead before them because it was easier for them to get their foot in the door for merely trying it out. And it seems that some of those who go first will stand to find some degree of relief form their IC.
Here are the two areas that contain misoprostol/cytotec discussion:
http://www.ic-network.com/forum/forumdisplay.php?f=156
http://www.ic-network.com/forum/forumdisplay.php?f=99
I'll be very interested in your thoughts.