Going to Doctor in a hour

[YoungDancer]

So I'm off to the doctor again to try and get a diagnosis for this pain.

All the info is kind of over wellming, so I have questions.

Should I get a cystoscopy with hydro for a true diagnosis for IC?

Should I get a cystoscopy alone (in office or in hospital?) Is it painful? Do I need to be put a sleep for this for awhile?

What about a potassium solution test? painful? Asleep?
Is it the same as pst test? If not what is pst test?

What's draconian, urodynmics, laparoscopy???

Please reply soon. I have to go there soon. Thanks.

:help:

[IC SARAH-CPP]

Hmm lets see. I personally would go with a pst, which is a potassium sensitivity test. I wouldnt get the cysto w/hydro again, because it hurt me really bad. urodynamics is this test when they hook you up to this machine and put a cath in you and then monitor basically how you pee and how your bladder works. Laparoscopy is a surgery where they make small cuts in your tummy and put a camera in there to look around. I am not too sure abot Draconian. The only way I know to use that word is in saying something is an old practice that is inhumane.
Hope it goes well!!
Love Sarah

[Dixiefireball]

The potassium test is normally what all Dr's start with to see if will react to it but some people with normal bladder may react to it and those with IC may not so that is kind of Iffy. the only full sure way to get a real dx is have the hydro/c in the O.R. while your a sleep. after you wake up if you have any pain they will control it in the recovery room. some have no pain at all. others its very painful, but once they heal some go into remission for months on in some longer.
If i was you I would want a real answer and the only way to find out a real answer is to have the hydro/c. in the o.r. this is done as an out-patient in most cases..
Good luck and please let us know what you decide.
sending you hugs and prayers
Rhonda

[YoungDancer]

Thank you for the information. I went to the doctor (again) and he said that my symtoms were not normal for IC but he did think that is what I have. (Whatever that round about answer was?) So he wants me to have a CT scan. Sadly the soonest time is two weeks away then another week until seeing the doctor again to review the scan. So three more weeks of pain and no active... life. And that's just until the next test.

The next step he wants after reviewing the CT scan is a cystoscopy with hydro. Of course that will take forever to get an apointment time for. I'm just tried for waiting for this to have an answer and some meds that will work. This pain has gone on for so long. I cried at the doctor's office when he told me it would take so long to get help with this. He seemed shocked that I was crying, but he doesn't have this pain everyday.

:rolleyes:

[MelindaP]

Young Dancer,

I am so sorry you are in so much pain. I can totally relate with some Dr's just not getting it. A year ago when my symptoms started I had a burning in my urethra 24/7. I had to sit on ice packs all day it was so uncomfortable. I rarely left the house. It was horrible! The naturopath I was seeing at the time seemed so unsympathetic. I broke down & cried in her office due to the pain, but she just didn't et it. I think until you actually experience that kind of pain, you just don't quite get it. I wish I had know enough then to seek a pain management doctor. They could prescribe something to help you manage your pain until you can get a difinitive diagnosis. I would call my doctor & ask for a referral to a pain management center if you can. I know some uros do not like to prescribe narcotics to control pain.

Has he given you at least Pyridium or Urised to control the burning/spasms?
There is no reason why you should have to keep suffering for weeks on end until you get a diagnosis! I hope you find some relief soon!

Melinda :)