LizGrirl
03-04-2006, 07:40 AM
Ok :)
I just posted the letter below to Montel Williams. I know that sometimes he does an episode or two on diseases and conditions and the hopeful human spirit and what not. And well, he does have MS so I am hoping for a little sympathy from him. :)
If you guys are truely serious about getting this disease pubilicity, then please do the same. Tell him your story. Say that Elizabeth wrote to him and you are writing a follow up letter to tell him your story.
Here is the link to his website. http://www.montelshow.com/about/mail/
or
http://www.montelshow.com/tell/
or by mail
The Montel Williams Show
433 West 53rd Street
New York, NY 10019
Attn: Viewer Services
----
Dear Montel,
I want to talk to you about a very rare and disabilitating disease called interstitial cystitis. Those are big words for what is basically a weaking in the lining of the bladder and can be very painful. The experts have no idea how it is caused and to date there is no cure. Most people have never even heard of it. The people (all ages) who get it are typically female (about 90%) and come from every walk of life. I never even heard about it until I was diagnosed this year in January.
The reason why I say disabilitating is because some of us are on disability. On my bad days, it is hard for me to walk from one end of the house to the other. On my good days, I have to limit my activities to make sure that it doesn't flare up. What we experience is the pain from the acid in our urine on the open wounds in our bladder.
Many of the people that I have met have gone YEARS in pain until they were diagnosed with IC. They are discriminated against by their work places (if they are lucky enough to still be able to work) and their friends. The problem is we look like everyone else and we are still sick (sometimes for days but oftentimes for months and even years). We are tired of hearing that it is all in our head and that there is no such thing as IC from friends, co-workers, and even doctors just because they have never heard of it or have never seen the symptoms of our condition before.
An IC patient's life changes dramatically. Activities that were once common place are now hard to do and even taboo to us.
What do we need from you? Television is a wonderful thing. It can get a message and information out to the public in a matter of minutes. If it were more wide spread about what IC is, then perhaps we are that much closer to a cure or at the very least a little more understanding. Please... please help us.
You should really see some of these people's stories for yourself. It is touching to say the least. www.ic-network.com/forum These people are amazing. They struggle each day with the hope that some day we will find a cure.
I just posted the letter below to Montel Williams. I know that sometimes he does an episode or two on diseases and conditions and the hopeful human spirit and what not. And well, he does have MS so I am hoping for a little sympathy from him. :)
If you guys are truely serious about getting this disease pubilicity, then please do the same. Tell him your story. Say that Elizabeth wrote to him and you are writing a follow up letter to tell him your story.
Here is the link to his website. http://www.montelshow.com/about/mail/
or
http://www.montelshow.com/tell/
or by mail
The Montel Williams Show
433 West 53rd Street
New York, NY 10019
Attn: Viewer Services
----
Dear Montel,
I want to talk to you about a very rare and disabilitating disease called interstitial cystitis. Those are big words for what is basically a weaking in the lining of the bladder and can be very painful. The experts have no idea how it is caused and to date there is no cure. Most people have never even heard of it. The people (all ages) who get it are typically female (about 90%) and come from every walk of life. I never even heard about it until I was diagnosed this year in January.
The reason why I say disabilitating is because some of us are on disability. On my bad days, it is hard for me to walk from one end of the house to the other. On my good days, I have to limit my activities to make sure that it doesn't flare up. What we experience is the pain from the acid in our urine on the open wounds in our bladder.
Many of the people that I have met have gone YEARS in pain until they were diagnosed with IC. They are discriminated against by their work places (if they are lucky enough to still be able to work) and their friends. The problem is we look like everyone else and we are still sick (sometimes for days but oftentimes for months and even years). We are tired of hearing that it is all in our head and that there is no such thing as IC from friends, co-workers, and even doctors just because they have never heard of it or have never seen the symptoms of our condition before.
An IC patient's life changes dramatically. Activities that were once common place are now hard to do and even taboo to us.
What do we need from you? Television is a wonderful thing. It can get a message and information out to the public in a matter of minutes. If it were more wide spread about what IC is, then perhaps we are that much closer to a cure or at the very least a little more understanding. Please... please help us.
You should really see some of these people's stories for yourself. It is touching to say the least. www.ic-network.com/forum These people are amazing. They struggle each day with the hope that some day we will find a cure.