Endometriosis symptoms?

[boohiss13]

Oh, God, I don't even want to say this out loud, don't even want to type it. It scares me to death.

I have now not gotten my period in a little over 3 months, and I'm freaking out. I've had pregnancy tests run, and they're negative (and I know they're accurate, as we haven't been too hot in the bedroom lately; IC doesn't turn ME on, that's for sure). I've never had this happen before; skipping more than one period. And I haven't even skipped ONE period, since I was in High School I think. Now, this has only started since my IC symptoms have gotten to be the worst; I"m having a hard time believing one isn't related to the other.

Now, it does run in my family,too......my Aunt AND my sister had it.

And, yes, I've got an appt. set up with my OBGYN, but it's not for a while; he can't fit me in (couple weeks).

Anyone here have Endometriosis set in like this? What should I be looking for?

This is upsetting me so badly this is the first I've even said the word. I'm so terrified that something will happen as a result of the IC that will cause me to not be able to have children. My husband and I have waited, his idea, and now I"m turning 35 in April. I'm sure you understand what I'm getting at. :help:

[Katrina]

I have now not gotten my period in a little over 3 months,
Could a med be affecting your hormones? When I was in college I went through a time when my periods kept getting farther apart....all because of a medication I had been on for years (Depakote an anticonvulsant).
I"m turning 35 in April. I'm sure you understand what I'm getting at. Ya, don't freak out yet. :grouphug:

Me and Endo...my hormones went wacky right before or during my first endo symptoms arrived. It was like metapause and so far no doctor has explained it but I know it was Endo. I don't recall missing any periods but I had hot flashes and other hormone changes symptoms.

I will subscribe to this thread to see if I can answer any questions. :grouphug: :kissing:

[boohiss13]

Thanks!

I guess I'll just have to see what the doctor says. My sister had a hell of a time with it, and was getting puke-sick with her period every other month. I finally talked her into going, and she had it. My Aunt, on the other hand, had NO symptoms. NONE. Now, this was in the 50's I think; maybe the 60's. She went to her doctor, and he was poking around on her stomach. When he was done with the examination, he told her she was pregnant! He could feel the baby. So, my Aunt went home with that information......totallly and utterly confused.........because she had never had sex!!!!!!!! Believe it or not, she convinced herself she must have gotten pregnant off a toilet seat. Can you stand it? Anyway, SHE had it the worst; had a cyst the size of a grapefruit; lost one ovary entirely and only a little bit was left of the other. She ended up not being able to have kids; they adopted.

That toilet seat story gets passed around our family, from generation to generation. Poor kid, ya know? Bless her, but it IS funny!

[Katrina]

Wow! It is certainly not the same disease for everyone....The things it can make a body do and where it can grow....ICers seem to not always fit the norm with it. (at least from some of the fellow IC endo patients. I know there was some research done on IC and Endo by the endometriosis society or something at one time. I don't know if it will help you. Please keep us updated as to what the doctor says! :grouphug:

[wingirl1999]

Hi. Please don't freak out yet...although I know how you feel. Only I was diagnosed with Endo first and IC about 10 months after. I remember looking down at my body and being sickened to think it had "turned against me" and all that gross tissue was growing in there. The maybe not being able to have kids thing depressed me too, but you know, lots of people with endo DO have kids and actually sometimes pregnancy makes the endo BETTER. Plus, you may not even have it...and please don't let them diagnose you with it without laparoscopic surgery to do a biopsy. I hope everything goes well with you! :grouphug:

[boohiss13]

Thanks, guys! I"m trying not to freak out. I'm betting it's one of these meds I'm taking or something...I hope so anyway. I can't believe my body would turn against me THIS badly and THIS quickly! I've already developed Fibro, and symptoms of Chronic Fatigue too, since the IC symptoms; I just can't believe I'd show up with Endo this fast.....so, it's probably a med or stress, let's hope! I'm gonna try to get an appt next week; I'll let you guys know...

[sandi303]

My daughter was told she had endo four years ago. She suffered horribly from it. She had laproscopy surgery and the doctor told her that she should consider never having children. She was so upset & sad. Then two years ago she got pregnant. She switched doctors (the first was a male, the new one was a woman) and the new doctor kept a close eye on her through her pregnancy & she delivered with no problems. Since her delivery, her endo pain has been much less severe. (And I have a wonderful grandson, who is the apple of my eye!)

[BellaTutu]

BooHiss,

Not to freak you out or anything ;) HOWEVER...you didnt mention what TYPE of pregnancy test you've taken, I assume its a urine test? I will tell you I had endometriosis and fibriods - my periods since I started them were all out of whack. I went 6 months without having a period and the last 8 weeks of those 6 months EVERY WEEK I was tested by my Gyno for pregnancy via urine, it always turned out negative. UNTIL the FINAL week (week 8) when they thought I was going through early menapause (at the tender age of 20 mind you) - and the final urine test showed up positive. Doc said "you cant be more than a week pregnant"...turns out the blood test they did that day came back 2 days later..I was 6 weeks pregnant!

I highly recommend getting a blood test done to confirm 100 percent you are not pregnant - some people just do not react the same with HCG (pregnancy hormone) with the urine testing.

Dont freak out though *laughing*....just see your gyno and make sure you arent - then go from there. I ended up having a complete hysterectomy at the age of 30 - but had 2 beautiful children prior to that.

Good luck with everything

[sami4]

Dont freak out, it probably isnt endometriosis as endo is very, very painful. When I had it my periods were very hard, not absent.
Sammie

[Katrina]

IC bladder pain can be way worse than endo pain....and don't disagree that endo pain is terrible....but although the norm is heavier harder periods.....we aren't all the same with it....it has caused a variety of symptoms. None the less you shouldn't freak out.

[boohiss13]

Yeah; I'm getting a blood test today. I shouldn't be pregnant though; we've used condoms and haven't been gettin' down too much anyway; I feel like a mine field down there!

Sami & Bella: My sister and my Aunt both had Endometriosis, and both of them started skipping their periods (it had wrapped around their ovaries), and my Aunt had no pain at all, and my sister's wasn't too bad. My Aunt's period stopped all together, I think, and my sister's started coming only every other month.

So, it concerns me. I have the OBGYN next week, so we'll see!!

[ihurttoo]

Boo, I just now saw this thread. Saw that you went to the dr yesterday and had the blood test. Well? What did it say? I am assuming that you arent pregnant, since I dont see a freaked out post on here from you! :) But, I just wanted to make sure. When is your gyno appt? I had endo, and ended up having to have a total abdominal hysterecomy last Oct. (But mine was VERY SEVERE.) My main symptoms with it were pelvic pain, painful periods and painful ovulation, accompainied by horrible cramps, diarrea (sp?) and back aches, painful sex, heavy bleeding during periods, and irregular periods. The pelvic pain was different than the IC pain for me. My IC pain is centered over my bladder, and radiates outward to my hips, flanks, and sides. Whereas the endo pain flanked my bladder on either side, and was kind of above it and a worse on the very top of my bladder. (They found endo on all of these locations. The endo and pelvic adhesions had actually grown thru the lining of my bladder.) Although the location of pain differs in each individual, according to the location of their endo sites. I will be glad when you can get into see your gyn for a complete work-up. Endometriosis can only be diagnosed conclusively with laproscopic surgery. You dr may have a hunch just by hearing your symptoms, but laproscopic surgery is the only definative way to diagnose endometriosis. I hope you and your doctor get to the bottom of this soon. IC is enough for anyone to deal with, without having to worry about other diseases too. Hope you feel better soon! Hugs, Amy :grouphug: