Don't Know What's Next

[YoungDancer]

Hi. I posted in the "New People" area, but I thought I would ask a question or two here also.

I have been told that I had a UTI even though it never showed in tests, then after countless doctors I went to an OBGYN and she said it could be IC.

After looking it up I am very upset. I'm a dancer and wanted this six month illness to have a cure so I could get back to being very active. Now I cannot do anything. And I'm only 23 years old. I want to go back to before, I want to dance.

So I go back to the bladder doctor this week. It's almost like the guy is guessing. What now? What test will they do? Will it say if I have IC for sure? What happens in the test? Like what do they do? Is it going to hurt or be embearussing (spelled wrong, but you know)?

I'm stressed out. And scared. And sad... and really mad. Everything was fine a few months ago. Why now? Why me?

Edit: Oh yeah. When ever I pushed on my lower tummy it hurts, now I don't even have to push it's just always painful. I do feel like I have to pee a lot but it doesn't hurt when I do. Maybe a little burning at the tip. Does that sound like IC? Does it sound like something else?

[tbokay]

Please don't think that you can never dance again. Don't tell IC control your life .. you control it. This website has great information about IC and treatment options. Please get as much information as you can and write down questions you have for your doctor.

My first appt with my urologist after I learned of IC (and before I was diagnosed) I took in pages and pages of information and questions .. that way I felt like I wasn't just going in blind.

I won't lie .. some of the tests are uncomfortable (and some are painful) but no more embarrassing then going to the ob/gyn (atleast for me).

Please let us know how your appointment goes.
:welcome: :grouphug:

[YoungDancer]

More info on my diagnostic pathway:

I went to the doctor (again) and he said that my symtoms were not normal for IC but he did think that is what I have. (Whatever that round about answer was?) So he wants me to have a CT scan. Sadly the soonest time is two weeks away then another week until seeing the doctor again to review the scan. So three more weeks of pain and no active... life. And that's just until the next test.

The next step he wants after reviewing the CT scan is a cystoscopy with hydro. Of course that will take forever to get an apointment time for. I'm just tried for waiting for this to have an answer and some meds that will work. This pain has gone on for so long. I cried at the doctor's office when he told me it would take so long to get help with this. He seemed shocked that I was crying, but he doesn't have this pain everyday.

:rolleyes: