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daybyday
02-26-2006, 12:50 PM
Just wanted to double check some things. I sent out a former email saying how much pain I was in. The doctor did a cystoscopy Jan 27. I was at a out patient surgery with only a general numbing near my ureather (sp) so he could put the tube and look around. He also inserted fluid to check my bladder level. He did not think I had IC but an overactive bladder and a very small bladder. I am still with pelvic pain, and very frequent urges, and over 15-20 trips a day to the bathroom. In a previous email, someone responded that the only way to check for IC is with a cystoscopy under anthesia )sp)

Is this being put to sleep, is this the only way. I am planning on calling my urologist Monday. Still in pain, but he said the Detrol could take a few months to reduce the frequency. 15-20 is not a reduction, I was always overactive, but not with pelvic pain.

I guess things could be worse, it's very sad to want to go on my seven year olds field but thinking I need the bathroom every hour. I don't really want to get that into her head. I can know see why people would be homebodies, I can deal with the frequent urination, the constant urgency sucks. I am trying to reduce the water intake. I know it's sometimes 70 ounces of water. After six, I try to reduce to only about 8 oz. I am so thirsty lately with taking the Detrol and everything.

Just Venting, but did have a question on the cystoscopy.

Hanging in, Judi

emilyrose197377
02-26-2006, 01:39 PM
cytsocopy and hydro under ansethia is one way to detect ic and the other is a pst test which is done in the dr.'s office and you are awake. good luck .

VickiB
02-26-2006, 02:22 PM
Hi Judi,

The hydro-distension is one tool doctors use to diagnose IC. I was diagnosed by the Potasium Sensitivity Test (PST) Emily mentioned, and some are diagnosed by symptoms alone.

I had the in-office cystoscopy too, as my doctor said it would rule out other possible causes for my pain. But he told me he couldn't 'see' IC with that procedure.

It is hard to become a home-hostage to your bladder! (I used to be one before diagnosis & treatment) I guess I just want to say don't give up on looking for the source of your problem as you shouldn't have to live that way! If it is IC that you're dealing with, most of us do get our lives back through lifestyle changes and/or meds!

Keep hanging in there!

Vicki

Rosalie
02-26-2006, 03:24 PM
An alternative to having your cysto/hydro done under full anaesthsia is to have a spinal block. You are awake and know what is going on.

marsi4
03-19-2006, 03:12 PM
I would recommend the general anaesthesia, because with the spinal epideural you are going to be awake and nervous and it won't be easy for the doctor to do the procedure and you'll be scared. The reason an in office cystoscopy isn't recommended for a hydro-distention is because when yhe doctor starts filling the bladder with water the patient will quickly complain that they are having pain as soon as they start feeling the slightest pain out of being scared and nervous. When this happens the doctor doesn't want to continue filling the bladder with water and will stop before the bladder is hardly stretched. That's why it's best under general anaesthesia where the patient is asleep and feels no pain and the doctor can go ahead and fill it until it starts to show pin point bleeding.

Marsi4