Need some support please -

[rosesitty]

Hey Ladies - I went for a consult with with of the leading uros in Seattle, WA on Friday. I was hanging in there symtom-wise prior to the visit, until she decided she was going to manually check my pelvic floor and bladder/urethra. She was very vigorous and it really, really hurt. I've been having major problems since then. Friday I could barely void, period. Saturday and today, I'm voiding, but the stream is weak and I'm having urgency discomfort and the sensation I need to go. A set back unfortunately. Do you think this expected or is something else going on you think? It actually made me depressed -- thinking I was doing something to improve my situation and then end up worse off. Any input you could give would be greatly appreciated.

[Kara Isabel]

I think it is normal for me to have increased discomfort/pain for a few days after an exam. I'd give her a call and let her know. You always have the risk of getting a UTI...so maybe I'd have them check for that.

Hugs!
Kara

[creatingkarma]

Ouch! I hate it when they go pushing & prodding on me! It usually makes me sore for a couple days. Now when I go, I ask them to either not do that or be very gentle & they usually comply. I hope you start to feel better soon!

[rosesitty]

Kara - of course the doc's office is closed because of President's Day! Something always happens on the weekend or a holiday! Maybe my neighbor might be willing to take a look! :-)

[Kara Isabel]

LOL!!!!!!!!

Yeah, well my doc just had a vacation in Bermuda. Heard him talking about it the other week I was in there.......Must be nice, ehh??? I'm sure I paid for his diving trip and Dom Perignon......

Why can't these docs just have a *magic wand* and fix us??????? lol

hugs,
Kara

[ICB]

Consult with your healthcare provider to make sure that you do not have an infection. The exam probably caused you initial pain, which may have caused you to contract the pelvic floor muscles and/or for the pelvic floor muscles to spasm. It is very likely that you are experiencing a Pelvic Floor Dysfunction flare-up. Remember to relax the pelvic floor muscles during the day. If your healthcare provider has prescribed a muscle relaxant (such as Valium), continue to take it. If it is not an infection, let them know about your new symptoms. Ask them if it could be a PFD flare?

I suggest that you consult with your healthcare provider if you believe that the information above may be helpful; your healthcare provider will determine the appropriate treatment regimen for you.

The contents in this post are provided for informational purposes only. The contents are not intended in any way to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition.

Best wishes, ICB

[Katrina]

I agree with ICB...hope you feel better soon!! :grouphug:

[allmart]

Rosesitty-I can completely understand what you are going through right now. I just got home from my first visit with the physical therapist for PFD. I am in pain hell right now. She told me that my pelvic floor is a mess and with a lot of work, I'll feel ok eventually. She said that I might be surprised to discover that my pain is almost all from the PFD, not IC. My bladder didn't look too bad at my hydro/cysto last month, so that would make more sense. I still think I have IC, just a mild case. I can at least say that my therapist was very nice and understanding as I cried through the prodding. She said I have a LOT of trigger points in the vaginal walls. My supposed relaxed state, isn't relaxed at all. I had no clue I was like this, until I started researching PFD after finding this site. How can an ob/gyn not catch this during all the exams I've been through??? Feel free to pm me if you need to vent or want to speak privately. We all help each other through this stuff. I'd be pretty lost without these boards. :grouphug:

[emilyrose197377]

I hope you feel better soon.

:grouphug:

[Bianchi]

I hope you have called the Dr. back (since today is Tuesday) and got a positive response from her, maybe some meds to make you more comfortable, while you are recovering from her exam. It's only fair.
Bianchi

[rosesitty]

Well, I did call the dr. office today, but I rec'd a call from them first. Even tho I had an instill on Thursday and the urine looked good, FRIDAY the consulting uro saw a lot of WBC's and prescribed Macrobid. They cultured and it came back positive for infection. Interesting I had no infection on Thursday, but less than 24 hrs. later I have one (I haven't had a known infection in three years). Also, I'm still battling the yeast thing, which the Macrobid certainly isn't going to help. So today, the pelvic floor is still a mess and I'm having some burning upon voiding. The office told me to take ibuprofen - yeah, right.
IBC - she was prodding and poking not only the pelvic floor but my bladder and urethra too. Looking for gold - I'm thinking! So, I'm on valium and soaking... hopefully things will calm down - I was hoping it would happen by today. Thanks for your input! If it's not one thing it's another.

[Kara Isabel]

:grouphug:


(((((hugs Steph))))))

You have had such a rough last few weeks!!! I really hope you start to feel better soon.

Pelvic exams are the worst! But when I was on Macrobid, I actually felt a little bit better for a few days. :)

[littlemyrn]

I also went to a PT for PFD. I tell you what, each time it sent me into a flare. For 3 weeks, solid and to tell you the truth ever since. I believe that the Valium, that my new doctor gave me is the only thing that has helped with that issue. I take 2 mg. in a.m. By 1:00 or so in the afternoon, I feel I need either a pain pill or something. I go tommorrow for URO dynamics test and office visit (exam???). I am going to talk with her to get her suggestions. MY PT said she did all she could and since I had such terrible pain after each session, she told me to disconinue the exercises at home. Hope you are feeling better.

[markcolle]

Could using a vibrator have caused PVD? It is embarrassing to ask, but I'm trying to figure out what caused my current problems and the only thing I can think of is either sex or a hard bm. My symptoms seem to match PVD. :confused:

[rosesitty]

markcolle - it's probably both. Using the vibrator you're going to contract those muscles, which might cause spasming. Also, a hard bm's going to do the same thing. Just because you have pelvic floor spasming doesn't mean you have PVD. As my doc put it - you have a leg and it's fine, but you can still get a cramp in it. Just love his pearls of wisdom! LOL. My recommendation, don't use the vibrator until you get it figured out, soak in warm water twice a day, and see if you doc will prescribe you a muscle relaxer. Don't push whatever you do (either for a bm or trying to void) - take colace or senekot to help move things along. My personal favorite...valium!

[Phantomscore200]

I think that any exam, especially for us women, is painful. My cystoscopy gave me so much pain that I ended up in the hospital needing morphine through my i.v. just to pee. I went home and it still severely hurt to pee for about 3 months. Hang in there. I would call your doctor just to let her know though.
Sweet thoughts,
Kim

[rosesitty]

It took nearly two weeks to get over the bread kneading pelvic exam. I'm better, but still not where I'd like to be. I think you're right, touch anything in that area and it can set things off.

[purpleviolet]

Hi Rosesitty - who are you seeing in Seattle? I'm seeing Bradley and I she sent me to a PFT Talcott. I had gone to another one before, but I like this one. But the therapy did send me into a flare, even though on the 1st exam she avoided hitting the bladder, so I didn't feel it then, but later I did. She recommended lots of Kegels and stretching out my C-sect scar (which I got after IC). I left the last PFT because I got too sore from it. I'll see what this one does.

[lisacar]

My supposed relaxed state, isn't relaxed at all. I had no clue I was like this, until I started researching PFD after finding this site. How can an ob/gyn not catch this during all the exams I've been through???through this

Oh boy! Can I ever relate to your posts! And to the discomfort of pelvic floor therapy. Doctors don't seem to check you in the "that" way. This may be TMI, but...it was a guy I dated after my divorce that let me know I was "tight", and then then my new husband said the very same thing. I never knew, because my ex-husband was a virgin, so he had nothing to compare to. I gave birth vaginally to 3 kids and nobody (doc or nurse) said word one.

When most doctors think of pelvic floor problems my (now educated nurse's) hunch is they think too loose. Wrong! And repeated kegels, just make tight muscles tighter. Kegels have to be very controlled, and you have to be able to learn to relax the muscles again after doing them, and that's hard (at least it was for me).

How many of us clench these and any other muscles? Jaws hurt from clenching, necks and shoulders, etc. Too much stress in life and/or our responses to them. I always feel like I'm bracing for a car accident - like I'm going to be rear-ended or something. It's nuts, and Lord knows how long I've been carrying my body this way. I'm also a believer that my mother's words about making sure to squat over public toilets added to all this mess. Who'd have thunk it? :)

I've read Dr. Moldwin's pelvic floor dysfunction article long before being diagnosed with IC. I remember his comment about soaking in the tub. It does help.

I find the pelvic floor therapy does hurt, but it helps. If you have a supportive mate/significant other, they can be taught to do it as well.

Lisacar

[rosesitty]

PurpleV - I'm here in Portland, Oregon. My cousin is an internist and set me up with one of the top IC specialists in Seattle for a consult. Her name is Karney Jacoby and she was great with lots of good info. The only problem is she did a comprehensive pelvic exam - the kneading bread kind - and set me up for a huge set of symptoms. I couldn't even void after the exam! We set up a treatment plan and I'm implementing it, but it's not going quite like I had hoped. I'm impatient - and you know - it's not the docs, it's our bodies!

[purpleviolet]

Rosesitty - Oh yeh, she does trials. I was in her RTX trial and the cysto for it and the instill itself about killed me. She is doing these other trials now, but I am not in them.

[rosesitty]

PV - yeah, she asked me if I wanted to be in a trial - like I can just hop in the car and drive to Seattle on a whim. The other thing is...I had to pay out of pocket because my insurance doesn't cover her visit. I was willing to pay because I was looking for some additional help. I can't do that every visit or it would be the poor house for me!