Does this sound like Fibromyalgia to you?

[boohiss13]

Now, I know you guys aren't doctors, and I"m going to ask my Uro about this when I see him next week, but I'm thinking I may be in the beginning stages of Fibromyalgia, and I just wanted to make sure I wasn't being a hypochondriac. :loco:

Over the last year I've noticed these symptoms:
1) Running a low grade fever ALOT
2) Tired and unmotivated; constantly
3) Waking up in the middle of the night from back pain

Over the past 8 months or so, I've noticed these:

1) SEVERE soreness and stiffness in the morning. My hips and knees are so sore and stiff, I can barely stand when I go to get off the bed. For probably about 2 hours after I get up, when I pee, I can't get up off the potty on my own, and have to grab the wall on one side and the bath tub on the other, and pull myself up
2) The bottoms of my feet hurt, terribly, in the morning. The whole bottom of my foot; both of them. It hurts awful to walk; so I'm limping from my knees and hip, and then about to screech from my feet hurting.
3) I have pain in my most upper back now; in between my shoulder blades
4) I fall asleep during the day now; NEVER happened before. I couldn't even take a nap if I wanted to.
5) I feel like I"m getting the "crud" or a light case of a cross between the flu and a cold 4-5 days out of the week
6) My scalp hurts. When I press on it, it's sore.

Anyone who has Fibromyalgia here, how did it start for you? I know some of these symptoms ARE symptoms of it, but some of the others have me stumped.

???????????

[creatingkarma]

Short & simple - Yes! It sure sounds like fibro to me. I wake up feeling like I just got ran over.

[Tracey5399]

I was curious about the same thing. I don't have as many symptoms as you, but i have the irritated scalp & i am sooooo very very tired all the time and my bones ache. Is there a diagnosis or blood test they do for this?

Thanks,
Tracey

[dansfever]

I have Fibro. I think it can be ginetic because my two aunts have it.With Fibro I have heard that it can make people stiff and achy, not wanting to do anything but to stay still, and it waking you up in the middle of the night, basicly everything you discribe that's the kind my aunts have. But for me it is different, I have headaches or migraines every day 24/7 I was taking Excedrin until I was taking more then just two a day as it perscribes. I was taking about 4-5 a day and it only subdude it. My headaches would start in the back of my head and travel to the frontal lobe( right behind the eyes having me to believe it was a migrain). I talked to the primary care doctor and I went and saw a nerologist he diagniosed me. He put me in therapy 3x/week for 4 weeks and I'm on meds. The problem with me was that I was so tight in my back and neck that the tightness was making the headaches worse. Some poeple with Fibro like my aunt can't drink or eat certian things because it triggers the Fibro. I would not even bother with the uro I would call your primary dr and get some highly recommended nero. I see Dr. Murcus and thats in Michigan. Hope this helps a little bit let us know how it turns out. You can ask all the questions you want. I'll look for a site tonite and let to you know what I've found. good luck

____________
Veronica

[dansfever]

Here's some websites www.fmnetnews.com & www.fmaware.org. They're a lot more when you Google search likes diagriams and stuff. Hope it helps.

Veronica

[boohiss13]

Ahhhhhhhhhhhhhhh.PHOOEY! :rolleyes: I knew it.

I've been having symptoms like this; mostly the fatigue and the fever, for a long time now. I didn't want to say anything to my Primary doc (who is an awesome doctor, I must say); I have so many things wrong with me already, I didn't want one more. But the symptoms have exacerbated. And ya know, when I went to see the IC-specialist-Uro week 1/2 ago, he asked if I had fibromyalgia, press on my collar bone on both sides, and I said "no, not yet, anyway". I don't know WHY it didn't occur for me to tell him. I think maybe I've been ignoring it for so long I just forgot.

And I already get migraines 3-4 times a week; that's nothing new....been happening for almost 10 years now (my Neuro says I'm 100% disabled from my migraines alone).

Oh, and something else I'm noticing......my jaw is sore. I can't open my mouth very far before it hurts. Like, if I take a bite of a cookie; that's fine...but if I try to bite anything thicker than that, my jaw hurts on both sides. I've had some clicking; I guess that's what you would call it, on my left side (of the jaw), too. I don't know what the hell that's all about.

I feel like I'm just falling apart over here... :headbang:

[Kimchi]

Just curious, how is fibro dx'd and what meds do they normally give for it?

[dansfever]

I don't know exactly what meds there are but I have two. Ones for the migrians and the other is for anxity and sleeping. You would have to talk it over with either a nero (better) or your primary. My nero besides giving me those meds put me in Pt 3x a week. It is really helping. See what they will do at the PT is they wil strengthen and strech you out. One thing that contributes to the fibro is stress so I would start with that if you have a lot of it in your life.


As for the clicking in the jaw you could ask your primary doctor but I believe it is called lock jaw but don't quote me on it. Hope this helps a little more.

__________________
Veronica

[boohiss13]

Well, Fibromyalgia is not always properly diagnosed, as many doctors don't even believe it truly exists. My Uro believes in it, and he's sending me to a Rhumetoid Doc to test for arthritis, just in case, and then she's supposed to be the best in the area for alternative therapies for Fibro.

Fibromyalgia is "unexplained" pain in 'trigger points" on the body. It can be extremely painful. Here's a bit on it:
http://www.fmnetnews.com/pages/criteria.html (http://)

As far as I can tell, there isn't a certain drug FOR Fibro. There are only alternative therapies, normally. Now, I wouldn't doubt that some doctors prescribe some medications for chronic pain, stress, swelling, things like that, to help with it.

Now, the jaw popping and clicking is a symptom of TMJ, which is fairly common among IC patients as well as Fibro. When I first saw my new Uro, the IC-educated one, he immediately asked if I'd been diagnosed with Fibro or TMJ yet; which I hadn't. He's diagnosed me, as much as HE can being a Uro, with Fibro, but not yet with TMJ.

And look at this; this is list of "other" conditions that frequently come with Fibro....does it look familiar?

fatigue
irritable bowel (e.g., diarrhea, constipation, etc.)
sleep disorder (or sleep that is unrefreshing)
chronic headaches (tension-type or migraines)
jaw pain (including TMJ dysfunction)
cognitive or memory impairment
post-exertional malaise and muscle pain
morning stiffness (waking up stiff and achy)
menstrual cramping
numbness and tingling sensations
dizziness or lightheadedness
skin and chemical sensitivities

We think I have Chronic Fatigue Syndrome also, but it's hard to tell, as many symptoms of CFS are the same as Fibro, like running a low grade fever on a regular basis.

My body is an ass**le, and I'm really PO'd at her at the moment. :headbang:

[cass2376]

I'm so sorry Boohiss, I have had fibro for 7yrs now. It is NOT fun. The good news (there is some for this, good news that is!:)) is that the longer I have had it the more I have got to know my body and it's limitations. What I mean is, I now know what foods or drinks can trigger me, and what other things can trigger my symntoms too. For me, lack of sleep, stress, coffee, sometimes eating too much chocolate in one day (I hate this one), doing too much physical activity, just to name a few. Today I KNEW I was doing too much when I looked at our schdulle (sp?) of things to do this Sat. I woke up at 6:30am to go to a marriage gathering at our church, it went on till 1:30pm, then picked up my 4 kids all under the age of 9, went to a b-day party at Chucky Cheese of all places from 2-4:30pm, then took the whole family to my moms house straight from party to watch boxing fight (all I did was run after my kids and break up my own kids little fights:)) , and did not leave there till 10:45pm. Oh, did I mention I have had a very bad cold for 6 days now on top of all this? Ahhhhhhhhhhhhhhhhhhh!!!
I guess this all has messed me up! I am still up at 5am due to my body and mind NOT wanting to go to bed. My body is in pain and i feel so tired, but can't fall asleep. Sorry, I guess this belongs in the venting posts, I did not mean to go on and on and on. Just an example of what my fibro has done and to let you know you will learn your limitations and can live fairly normal in some cases w/ some meds for some, and with knowing when to stop!! (yah, like I really did that today!) DON'T over due it. When your body says to stop, or to take a rest...... do it! Look what happened to me for not listening to my body today. Oh, did I mention I have to be at church this Sun. morning to boot, my husbands a Pastor and I try and make it as much as possable, (ha, ha) Anyway, good luck hon and I hope you are feeling well. Take care and God Bless, Cassandra..... P.S. I will say a prayer for you today Oh, and I also have TMJ too. You can PM me or email me anytime if you need to talk:)

[Prinny Joy]

Just got back from Dr. (the one who helps me) and she and I spoke and I have been having the worst aches and pains in my legs, thighs, lower body for quite a while. I feel 90 and can walk like it too! I asked her whatis Frbro and she said she was testing me w/ blood work called nerve block? Something block anyway. My symptoms don't seem nearly as bad as what I read from some on here so I wonder if I even have it. I do have arthritis, in pelvic and hip but did the blood work and am being sent to a rhemu, Dr. Other than lack of sleep and the problem getting good sleep and the aches and pains I thought that was just from IC. The last thing I need is Fibro as I do have good days but the thought of having Fibro is scary in looking what the future may hold for me. I didn't read about fever symptoms cause I don't have that and my upper body doesn't hurt, it's the lower half. Any words of wisdom would be appreciated. Thanks

[dansfever]

Prinny

Don't be scared you are a very strong person. Just keep asking your Dr.'s any and every question you can think of. I have lower back probs from the fibro and I got a heating pad with a time realse (stays on 15-20 min). That seems to help a little. Even though we all want to go away period and forever a little bit of relief is better then none at all. I have the IC, fibro, and endometrisis. Yes they are all painful but I try to take out some of the stress in my life (which is REALLY hard to do). A good father ( my brother) told me to go out for a walk every day or when ever I can get a chance. I said to turn of the cell phone and just take everything in and what is going on around you. I did it once the other day and I felt calmer. Try it, it doesn't have to be a long walk b/c only you know your limits. If you can't do that just go sit same where wher no one can bother you. That was the best advice I had ever gotten from my brother. The you who diagnoised the fibro was a nero. Hope some of this helps. Be strong b/c I know you can be.

________________
Veronica

[emilyrose197377]

I feel the same way and I was just dxed with fibro.

[boohiss13]

CASS:
Oh, yuck, you have it too? My goodness, you ARE busy! I can’t do ANYTHING like that! Of course, I’m just really sick from the IC right now, and just starting on treatments, so maybe in 6months to a year I’ll be able to run around again.

Oh, Prinny, I’m sorry. I’m in the same boat; I’ll turn 35 in April and feel like my life is over in a way. That’s very pessimistic of me, and I’m trying not to think like that. I’m walking around like a 90 yr old too; my legs just don’t want to work right, especially in the morning. I’m even having trouble getting out of bed (when I sleep in it……I normally sleep on the couch now, since I started with the IC symptoms, as I’m up and down all night and it keeps my husband up).

I’m reading a great book right now, which I would think would be beneficial for folks with Fibro too, so long as you’re really careful not to over do it:
“Cystitis: A Time To Heal with Yoga & Accupressure” “An Eight Week Exercise Program with special information on Interstitial Cystitis and Urethral Syndrome” by Dawn R. Mahowald, CYI and Dr. Emmey A. Ripoll, MD

This book, although the name is “Cystitis”, it’s really on IC. There is a program that builds up, so you don’t over do it, and what I LOVE is there is a section completely dedicated to when you are flaring or not feeling well; the poses are IC-friendly..no standing on your head, putting your feet around your neck, or twisting in to a pretzel. I haven’t really started yet, as I’ve been feeling SO bad and it’s hard for me to even get up and get something to drink right now, but I’ll start it soon. I think the stretching is supposed to be quite good for Fibro, AND IC for that matter.

Hope you’re having a better day, Prinny!

Boo

[marsi4]

Hi Boohiss, I woud recommend you have your thyroid checked and have extensive bloodwork done.

Marsi4