Camillamoo
01-29-2006, 05:46 AM
Hi All, I am from Sydney Australia, and I hardly know where to start. Its been a fourn month nightmare to be honest.
About four months ago, I awoke in the night with the most unbelieveable bladder pain. It was like nothing I had ever felt and i could not seem to empty my bladder. By morning the pain had slightly eased but it was still horrid and went to see my doctor. The day before i have eaten a ham sandwich and had put heaps of hot english mustard (which has made my bladder feel a bit funny before but nothing like this). The doctor told me it was impossible for the mustard to do this.
She put my on antibiotics and did a sample - nothing showed up. After about two weeks with the pain still there but a little less, I went to have an ultrasound, where I was shown to have urinary retention. There was 300mls in my bladder that would not empty. Exactly how i had felt, so off I had to fogo to get catherised. This fixed the pain. Within two hours i felt nearly normal again, and good.
About two weeks later, that feeling started to sneak back. hard to describe just irritation and fuuny feeling in the blaadder. I went straight to the hospital fter a few says and catherised again - once more urinary retention diagnosed. I had a cyctoscopy, which showed nothing Theuroligist said to see a neurologist to rule out brain related retention. It happened again, and the emergency department said, yes ultrasound machine saying retention, but clinically bladder not full by physical examination.
I went to a gyno, an excellent professor, who looked at all the reports and knew my hyistory( inverted uterus with large fibroid te size of a 14week pregnacy, was putting pressure on urethra causing retentiona nd pain). He said I needed a hysterectomy or myomectomy. This seemed an answer to this nightmare , and at least a diagnosis. After much advise from freinds, I opted for the hysterectomy never to have to go through this again. I have three small children and , thats it. My husband had a vasectomy a few years back, so I thought I ould feel ok about this emotionally - as long as the pain went.
This was all the week before Christmas. I had the hysterectomy, lapracsopically and al went well on the whole. The problem is i still have this pain and Im beside myself. Doctor says I need to heal after surgery but my gut instinct tells me I have healed and this pain is the same as before. Pelvic pain is so hard to describe!Somedays its hardly there, and others it is so intense it seems to have a headache that accopmanies it. The headache is hehind my eye Im going back to the professor this week. I am so angry at myself If i have let this happen to me. I feel so sad a teary and blame myself. I have tried to tell myself i could not have IC. The cycoscopy did not show it, and my bladder can fill to over 300ml ive been measureing. But I tried mustard the other day. just a little and Ifelt bad the next day. I had to test it - never again.
What if i have a bladder irritation,could this cause retention do you think?Im so tired with worry I feel sick. Im shaky and stressed and my life feels so bad right now. Please help me, I dont know who to turn to. Does anyone know a good urologist in Sydney. Its 3.30am Im on the computer, again, trying to help myself. I cant sleep with worry and discomfort. Im sorry to bombbard you all, but I dont know where to turn. Does this sould like IC to you?
Camillamoo
About four months ago, I awoke in the night with the most unbelieveable bladder pain. It was like nothing I had ever felt and i could not seem to empty my bladder. By morning the pain had slightly eased but it was still horrid and went to see my doctor. The day before i have eaten a ham sandwich and had put heaps of hot english mustard (which has made my bladder feel a bit funny before but nothing like this). The doctor told me it was impossible for the mustard to do this.
She put my on antibiotics and did a sample - nothing showed up. After about two weeks with the pain still there but a little less, I went to have an ultrasound, where I was shown to have urinary retention. There was 300mls in my bladder that would not empty. Exactly how i had felt, so off I had to fogo to get catherised. This fixed the pain. Within two hours i felt nearly normal again, and good.
About two weeks later, that feeling started to sneak back. hard to describe just irritation and fuuny feeling in the blaadder. I went straight to the hospital fter a few says and catherised again - once more urinary retention diagnosed. I had a cyctoscopy, which showed nothing Theuroligist said to see a neurologist to rule out brain related retention. It happened again, and the emergency department said, yes ultrasound machine saying retention, but clinically bladder not full by physical examination.
I went to a gyno, an excellent professor, who looked at all the reports and knew my hyistory( inverted uterus with large fibroid te size of a 14week pregnacy, was putting pressure on urethra causing retentiona nd pain). He said I needed a hysterectomy or myomectomy. This seemed an answer to this nightmare , and at least a diagnosis. After much advise from freinds, I opted for the hysterectomy never to have to go through this again. I have three small children and , thats it. My husband had a vasectomy a few years back, so I thought I ould feel ok about this emotionally - as long as the pain went.
This was all the week before Christmas. I had the hysterectomy, lapracsopically and al went well on the whole. The problem is i still have this pain and Im beside myself. Doctor says I need to heal after surgery but my gut instinct tells me I have healed and this pain is the same as before. Pelvic pain is so hard to describe!Somedays its hardly there, and others it is so intense it seems to have a headache that accopmanies it. The headache is hehind my eye Im going back to the professor this week. I am so angry at myself If i have let this happen to me. I feel so sad a teary and blame myself. I have tried to tell myself i could not have IC. The cycoscopy did not show it, and my bladder can fill to over 300ml ive been measureing. But I tried mustard the other day. just a little and Ifelt bad the next day. I had to test it - never again.
What if i have a bladder irritation,could this cause retention do you think?Im so tired with worry I feel sick. Im shaky and stressed and my life feels so bad right now. Please help me, I dont know who to turn to. Does anyone know a good urologist in Sydney. Its 3.30am Im on the computer, again, trying to help myself. I cant sleep with worry and discomfort. Im sorry to bombbard you all, but I dont know where to turn. Does this sould like IC to you?
Camillamoo