lauraads
01-18-2006, 02:39 PM
Baring my soul. My family and friends love me, but they can only take so much, you know? Like so many of us I have had a hard time and get tired of the constant challenges, frustrations and pains of my IC. I needed an outlet this evening for my mystery pains, etc., so I penned (or typed) what I will refer to as my IC Poem. I am being a little melodramatic but at my worst this is what I truly do wish for! Mostly, I am well adjusted and get through the minutes, days, weeks and months one step at a time. This is my way of dealing today and I wanted to share. At once I am both hopeful and sorry if you can relate! - Laura in Florida
All I Want is One Good Day
All I want is one good day...
Just one day where nothing ails me.
Just one day that when I smile it's not through clenched teeth and I feel it tickle me to my toes.
Just one day where I don't have to wonder if my family secretly thinks I have rounded some new bend of symptoms they cannot see.
Just one day that I can throw caution to the wind; be released from the constant refrain of, "What's in it? from my soup to my soap".
Just one day where I won't have to endlessly plan for my trip based on rest stops, safe restaurants and smooth roads.
Just one day when I won't have to worry that a passionate embrace today will result in pain tomorrow.
Just one day when I will get to sleep, really sleep through the night, instead of marking the hours by the clock on my regular trips to the bath.
Just one day when I won't have to feel that everything, simply everything must be learned by trial and error; oh so much trial and so much error.
Just one day, just one single day -- is that too much to ask? -- when I will feel "a part of" again, and not apart from so much of what I took for granted before. If I had only known; if I had not squandered those days, all those days....why is it so hard to remember what it tasted like and felt like inside and out to just be, without what ails me?
Is that too much to ask? Just one day? Just one single day where nothing ails me? :angel:
All I Want is One Good Day
All I want is one good day...
Just one day where nothing ails me.
Just one day that when I smile it's not through clenched teeth and I feel it tickle me to my toes.
Just one day where I don't have to wonder if my family secretly thinks I have rounded some new bend of symptoms they cannot see.
Just one day that I can throw caution to the wind; be released from the constant refrain of, "What's in it? from my soup to my soap".
Just one day where I won't have to endlessly plan for my trip based on rest stops, safe restaurants and smooth roads.
Just one day when I won't have to worry that a passionate embrace today will result in pain tomorrow.
Just one day when I will get to sleep, really sleep through the night, instead of marking the hours by the clock on my regular trips to the bath.
Just one day when I won't have to feel that everything, simply everything must be learned by trial and error; oh so much trial and so much error.
Just one day, just one single day -- is that too much to ask? -- when I will feel "a part of" again, and not apart from so much of what I took for granted before. If I had only known; if I had not squandered those days, all those days....why is it so hard to remember what it tasted like and felt like inside and out to just be, without what ails me?
Is that too much to ask? Just one day? Just one single day where nothing ails me? :angel: