In Remission

[Melva Darling]

I have been asked to share with you a treatment I recieved for IC for auto immune conditions.
I have had fibramyalga and chronic fatigue for at least fifteen years. In the Spring of 2004, IC was diagnosed. Being concerned that both of these conditions may be auto immune disorders, I became concerned that even more conditions could develop in my body.
One year later, after trying most of the conventional medical treatments for IC, I was led to a medical doctor who also has a homeopathy certificate. He gave me very large doses of Vitamin C intraveinously everyday for three weeks, then every other day for three weeks. The dose amount each time was 50,000 mg. I have absolutely no symptoms of IC. I have no pain, incontinence, or anything else related to the condition. I can eat and drink whatever I want. I do try to have a healthy diet, walk almost daily,and do not smoke or drink. I also continue to take Ester-C tablets, daily. I take 15,000 mg. daily. The thought of possible return of the condition is always in the back of my mind, but I try to live positively, believing that I am being healed of the condition.
I would be glad to share more information with anyone who would like to investigate this alternative type of healing. It worked for me.

Wishing health and happiness to you.
Melva

[ICLori]

Thank you for sharing this, Melva. It's a treatment I hadn't heard of before for autoimmune diseases.

There are some researchers who do feel that IC may be an autoimmune disease.
They are having great success in trials treating IC patients with Cyclosporine-A for this - inducing remission in the vast majority.

But Cyclosporine-A has a lot of risks associated with it, side effects, etc. So if Vitamin C works...sounds a lot less risky...any explanation as to why large doses of Vitamin C would stop autoimmune reactions?

Blessings,
Lori

[Melva Darling]

Lori,

Only that Vitamin C is considered to be the main vitamin that affects the immune system. I could possibly refer you to a wedsite of a biochemist who has done a alot of research in this field. You could learn more about the Practice where I received my treatments at poweraging.com.

Glad you are in remission.

Melva

[ICLori]

Thanks, Melva, glad you are too! I did some google searches and saw that IV vitamin C is a fairly common treatment for many autoimmune diseases by alternate practitioners. In addition, many practitioners recommend supplementing with Omega-3 and Omega-6 oils, Vitamin D deficiency appears to play a role in causing autoimmune disease...really there were quite a few vitamins according to the stuff I read when I googled this that were recommended for helping autoimmune diseases. But Vitamin C in very very large doses, like the treatment you had, has several proponents.

I'm so glad you are in remission!

Blessings,
Lori

[Melva Darling]

Lori,

Your message came up on my in box. I thought I was able to send a response, but maybe you didn't receive it.

Vitamin C is believed to be used to support the immune system, hence the reason for taking the mega doses as suggested by the doctor. I might be able to get you the web site for a biochemist who has done extensive research in this area. Meanwhile, the web site for my doctor is poweraging.com.

Blessings to you,too,
Melva

[Melva Darling]

Lori,

Glad you are in remission. Vitamin C is known to support the immune system, hence the doses of mega amounts for this condition. I may be able to get you the web site for a biochemist who has done a lot of research on this. Meanwhile, my doctor's web wite is poweraging.com.

Blessings to you,
Melva

[vm]

Always great to hear about someone in remission! :)

[marsi4]

Thank you so much Melva for sharing this valuable information with us. What better way to go into remission than taking natural supplements.

Marsi4

[Melva Darling]

Your Welcome.

Melva

[bunnykinb]

What is the name of specialty of doctors who focus on autoimmune diseases? I think my IC is related to my immune system. First, I used to get sinus and ear infections, then UTIs, then before that migraines. Now, since I have been diagnosed with IC since 6/2004, my other problems have disappeared. In the past 5 weeks, my base of my big toes have become inflammed. The doctor thinks it might be gout. Blood tests are currently being run. The funny thing is, my IC symptoms have stopped since my toe problems.

I want to know what type of doctor I should see that would look into me having a wacky immune system.

[Melva Darling]

I only have the name of one doctor. He is the one I am working with to improve my immune system. He is Dr. Ted Edwards in Austin, TX. You can receive info from poweraging.com.

Good luck and good health,
Melva

[Melva Darling]

Please go to poweraging.com for info for the only doctor and practice I have used for my autoimmune condition.

Good health,
Melva

[Britgal]

I know when I was diagnosed I was told that it may possibly be an autoimmune response, I have been on medication for four years this year, and just recently my Nurse Practitioner added Omega 6 to my meds, so your post was very interesting to me, I also take added Vitamin D now and everything seems to be helping along with my meds. I had never thought of vitamins being a help as well as regular meds, anything to help to cope with IC is very useful information, Iris. :hi: :flower:

[Melva Darling]

Iris, You may find the web page for the doctor where I received my Vitamin C treatments interesting. It is poweraging.com

Wishing you luck and blessings in coping with IC.
Melva

[hoping4acure]

Very interesting about the Vitamin C.

I'm happy to hear you are in remission Melva.

[Britgal]

Hi Melva, thanks for your post, I know I am open to many avenues in dealing with IC, I am lucky that the Nurse Practitioner, who is my main provider is very good at using conventional treatments and options with others, so far, everything is going well. Thank you for you well wishes and the information about the vitamin, everything helps when living day in and day out with IC and a lot of other things that seem to tag along with it, well wishes and hugs Iris. :hi: :flower:

[Dianne]

How could anyone with IC stand having vitamin C passing through their bladder?

[ads]

Melva,
It is almost midnight here and it was so good to read the word "remission." Congratulations!!!! :woohoo: :dance:

I have never experienced remission. Once my IC/PFD/CPP started it was bad and stayed bad until it was knocked down a little with pills, then disabled me as well. I have never improved healthwise. This is really interesting. I have gone to the website and will be e-mailing or calling your doctor. Thanks for sharing.

In the past I had considered IV magnesium treatment, but never got around to them and they are expensive.

ads

[hoping4acure]

I was wondering the same thing "how could anyone with IC stand having vitamin C passing through their bladder" but...she says she's in remission...what ever works...I'm happy for her.

[Melva Darling]

The megadoses of Vitamin C I took was done intraveinously, bypassing the bladder.

However, you may not know of an Ester-C product that is not acid based and will not affect your bladder. I can refer you to the web site of my doctor. It is poweraging.com. Good luck. Melva

[Dianne]

I would still think it would pass through urine even IV. But who cares if it's working for you! Wish it was me!

[ladybug23]

It should still pass through your bladder. Whatever is given intravenously goes into your blood. Your blood is then filtered through your kidneys and then excreted as urine so there is no way it can "bypass your bladder"

[Dianne]

That's why I can't imagine tolerating vit. C IV but hey if it's working for you, I'm green with envy!

[ellienor]

How long did it take the vit c to work?

[hoping4acure]

Good question...I was wondering this too.

[rodriguez]

How do you take the vitamine c? I live at Spain and I'm looking for an non acidic Ester C because I think the ascorbic acid could be wrong for the ic, but here I don't find it. Could you please tell me if there is any other way of taking vitamine c?
thank you

[emilyrose197377]

you would think that vitamin c would aggravate Ic because it is found in citrus fruits and made from citrus fruits..

[ladybug23]

emily,
i noticed most of your meds were for pain. do you take all of those daily? what were your main symptoms if you don't mind me asking?

[LindaP]

What is the definition of being in remission when it comes to IC? I know this sounds like a strange question but does it mean that you can eat anything you want with absolutely no symptoms left from IC (burning, pain, urethra pain, vaginal pain, urgency, frequency )

I am still on a strict IC diet..have been for 2 years this June so I'm concerned for my overall health as I am going through menopause. I am on a half dose of Elmiron (trying to wean off, as I am allergic to sulfa drugs and read an article that those with sulfa sensitivity shouldn't be on Elmiron. This article struck a cord with me because I started having urethra burning, sharp pains and constant pain after being on it for 6 months...never had those symptoms before. I was diagnosed with mild IC but after major stress for 2 years straight (loosing both parents) I went into a flare so chose to go on Elmiron).

I wonder if I should stay on the half dose Elmiron and the strict diet because the pain comes and goes now but is not constant. The sharp shooting pains in the urethra have stopped. Urgency and frequency come an go...but are subsiding if I stick to just water as a drink.

So I'm confused about the Elmiron/sulfa issue as well as...when to start eating right for my whole body.
So what is your definition of remission and if you are in remission then can you introduce other foods without pain?

[sami4]

So happy to hear you are in remission. I too was cured by an alternative method of endometriosis about 10 years ago. I was in so much terrible pain the Gyno said I needed an immediate hysto.
I contacted the Kushi Institute and told them I had a medical background and didnt believe in alternative cures. They said it wasnt a faith healing it was a method of removing all toxins and possible allergens from your diet and allowing the body to heal itself. I was skeptical and asked if any physicians were doing their program. They said yes and referred me to Christine Northrup in Yarmouth, Maine. I called her and she said she had used this and many patients had remission or cure. I tried it for a year and at the end of a year I was totally free of endometriosis.
It is hard though as you can have no flour products, no dairy except yogurt and then only unsweetend Greek yogurt which is high in acidopholis.
No chicken, fish, red meat, potatoes or any nightshade plant vegetables. No highly acid foods such as tomatoes, no citric acid fruits only Gaia apples, pears or berries if in season. Drink only Bancha twig tea which is pretty good or pure water. Eventually they add fresh water fish or organic chicken.
A plate is divided into fourths, one fourth organic beans like Aduki, one fourth brown rice, one fourth a yellow vegetable like squash, one forth a green vegetable like Kale, chard, green beans.
They only allow you green mineral drinks such as Barley Green otherwise no vitamins or pills of any kind. They will tell you eat certain plant vegetables that have minerals or vitamins in them as the counselor feels during your progression, but eveything has to be from organic food source.
By the third month the pain was gone, periods started to return to normal.
I slept like a log.
It was so hard to keep on it though, that eventually you stray and then the body gets all overloaded again and then more trouble.
Sammie

[hoping4acure]

Sami: I have heard wonderful things about her. Thanks for the information!

[hoping4acure]

Melva:

How are feeling? Hope you continue to feel better.