has anyone birthed a gastroskisis baby?

[glenda]

My only son was born with a rare condition called gastroskisis (not sure if spelled right). This is when their belly-button doesn't form shut, or close up. They're born with part of their intestines on outside. Dr.'s don't have any explanation why this happens. Just another unexplained condition I thought might have a connection. And to let you know, my son pulled through just fine, He is 11yrs old now with a belly scar. Thanks. :hmm:

[ICNDonna]

What you are describing sounds like the umbilical hernia my daughter had at birth. When she was checked by our pediatrician at six weeks of age, he put a little "gadget" in her naval and taped it in place. She wore it for about two months, at which time the hernia had almost closed. She's an adult now and no sign of it.

Donna

[glenda]

No, my son was life flighted right after birth to a larger hospital that could accomidate for his condition better. He had major surgery, and was in intensive care for a while.
His intestines were litteraly hanging out. Sorry, don't mean to gross you out. Thanks for the reply though. I appreciate all feedback!

[dg2901]

I highly doubt theres a connection between gastroschisis and IC. Although I guess with medicine anything is possible. Has your URO or your childs PED said anything that makes you think theres some sort of relationship?

Good luck with your research

:)
diana

[glenda]

no, doc's don't see a connection, but I thought I'd give this a shot anyway. I don't put a lot of faith in what doctors say, or think anymore. It just seems strange that I have had the experiance of two extremely rare conditions, with no known explanations. Thanks a bunch for your input, you're probably right, there's no connection.

[Babs RN]

Gastroschesis doesn't seen to have a connection to IC(based on my experiences). It is rare and a result of the abdominal wall not closing over the intestines in usually. They usually try to push a little of the intestines in each day and then close the hole. I'm glad your kiddo is thriving and thought I would explain what it is to people not familiar with the defect.

Hugs,
Barb :grouphug:

[dogactor87]

I was born with Gastoskisis. I have the big scar on my stomach too. I was supposedly the 2nd person to survive it in England. Im now 19 and although i have bad stomach pains especially around period times theres nothing much wrong with me :) When I was younger I was teased about my scar but as I got older I just decided not to care and when your a teenager everyone just sees it as cool any way so its not much of a problem.
I did have a scan a couple of years ago too where they found out that i had body parts in the wrong places such as my intestines, appendix.etc.
Its not connected to anything its just a rare occurance where the intestines are outside the body and the belly is holding it there. The doctors originally thought i had a twin so thought nothing of it until they realise what it actually was and then paniced and had to operate.
Dont worry though your boy will be good and if he hates his scar, I was offered plastic surgery for a normal belly button. At the time I was considering it but then decided thats it part of who I am and I cant destory that. If you want to talk about anything or have any questions im happy to answer them. My email is dogactor87@hotmail.com just put the subject title as 'Gastroskisis' otherwise it may end up in junk.
Emma

[Danyel]

Hi my name is Danyel and I live in NC!

I see i am a bit late for this post!

But I was born In Iowa in 1972 and I was born with this defect. I was only a 3 pound baby and that was along all the IV's and all the surgical garb. I had quite a few surgery's when I was a baby and I also have my battlescar on my belly!

I had no problems until just lately I started having servere stomache pains and I noticed that my belly felt like I had a ton of gas and the dr had me go get a ct scan and found out I had a incarsarated hernia and an upper intestine blockage! Stemming from my birth defect! I just had this done last week!

Yikes now it can get scary with this kind of birth defect since Dr's don't know what they are going to get into until they cut me open! And with all the scar tissue and not knowing if all the body parts are in the right area very nerve wrecking!

Luckly my Dr's at the Universary of Iowa Hospitals did such a wonderful job on me when i was a baby all my stuff is in the places or there about! When I was a baby they put a mesh in me that the dr built up my stomache walls and I remember that when I was little I was preached about not getting hit in the belly area or I would Die! I had no stomache muscles to protect my inners.
Well I hope I helped a little I am now 34 years old and doing well! I am married to a wonderful man who dosen't mind the scar at all and loves me for who I am ! :angel:
Danyel

P.S. If anyone has this birth defect please email me maybe we can chat! I would love to meet sum people that I can relate to with this Birth Defect!
coolhippychic@aol.com
Let me know it's about this subject or it may end up in trash! TY

[evanseri]

I am a noenatal intensive care nurse and I see this condtion often. It is a very fixable problems and most children (like yours) pull through it just fine and go on to live very normal lives.
Erin:)