cystoprotek and frequency?

[sbelle474]

Hi all,
I have been in a bad flare for about two weeks and had bought cystoprotek a couple of months ago to try if the elmiron didn't work. The elmiron has been working but I can't seem to shake this flare. I tried the cystoprotek two days ago and today have major pelvic pain and frequency when yesterday I felt better, go figure. I didn't know if this was due to something I ate yesterday or if it was b/c I had started taking the cystoprotek. Has anyone experienced more pressure and frequency when taking the CP?

[massagedoula]

I did. I always get that increased frequency with quercitin products. I hate it because I know they are good for me. When I get better and better I will re-try the Cystoprotek again. Perhaps is was just a concidence? Give it another try and see what happens...

[sami4]

I have taken Cystoprotek for three months and it has helped me a lot. I have not noticed more frequency, but I am also on Enablex which helps with that.
Hope you ladies find something that works for you.
Hugs,
sammie

[sweetangel2080]

I started cystoprotek yesterday and have the same problem - hope it's just my body getting used to it

[sbelle474]

It is definitely the Cystoprotek that is causing the added pain and pressure and frequency. Sigh. Guess I will have to send it back. Oh well. Thank you for your help!

[massagedoula]

I am so sorry that it did not work out for you, sbelle. I had the same problem. i was on it for 2 months because I could not let myself believe that it was causing my symptoms to get worse. I stopped and 3 days later felt better. That was in the summer and I never sent it back because I cling to the hope that as I am getting better and better with Elmiron these days, that one day I will be able to stop Elmiron and tolerate the Cystoprotek again with no problems.

The thing that I don't understand is on the new interview with Dr. Theo he says that NOONE has ever sent the Cystoprotek back. I just cannot believe that, since there have been quite a few on the boards who have been unable to take it. Is everyone just holding on to theirs like me or did he not tell the truth?

[sweetangel2080]

just to let you know when I had cystistat instills (in cystoprotek as well) my frequency would increase for the first 2 weeks then I started to see effects. This happened every month. I don't know the scientific explanation behind it but maybe the mast cells etc?

[sbelle474]

sweetangel, did the frequency ever get better with your instills?
I think I am going to send it back and be the "first" to do so, MD. Thank you both for sharing! :)
Oh by the way, I can't send mine back, you have to within four months, as it says on their website, I ordered mine right at 4 months ago, so that maybe why people don't return it. Sheesh. Thank you both!!!!! Maybe I will try this again sometime, and see if it works, guess I will have to now. :) LOL.

[sweetangel2080]

sbelle -yes my frequency improved a lot but had to stop them due to UTIs from the instill itself.

[sweetangel2080]

anyone else had this?
I have now recovered from my UTI and trying it again - upped the dosage slowly - only took 3 tablets and am having urethral spasms and more frequency. Really hoped it would work! :help: