A Very Important Question I Need Answered All Please Help This Is Vital!!!

[kazi]

In relation to my previous thread about my enquiry of urethritis...I have a very critical piece of information about how i believe that my symptoms began....It was 2 years ago when i had this huge UTI which hospitalised me and turned to phylonaphritis..anyways i remember that night in so much pain sitting on the tiolet..and the whole time i was like pushing so hard to try and urinate because it felt like there was still urine in my bladder even though three was not and i knew it at the time as well. However the real reason that i kept doing this was because when i did this for at least a few seconds at a time this gave me reliefe from the pain..in fact i remember it it...everytime i would try and push to get the urine out(even thought there was none in there) i would feel some sort of contraction happen i suspect in my urethra not my bladder...and it's ever since then tat i have had this pain..and see the thing is the pain that i experience now is in the same area as where i was getting the releife as well as the spasming burning sensation..In the past i when i have had UTI infections i had never tried to push or should i say try and force the urine out of my system especially when i knew none was in there...And after those infections i never had the problem that i have now..so im starting to believe that this pushing i did was what caused my problem...

Since then i have had numerous cystoscopy's under hydrodistenation..all have failed to reveal that i would have any cause for concern of IC..all the specialists that i have seen say that its certain i dont have it.....however in my last cysto/hydro the uro also burned out tiny little polyps that were in my urethra which were thought to be causing the burning pain i have in my vagina..but still that didnt work compleatly only a little bit!I have been tested for every STI under the sun so i know that its not from that..and as well i was a virgin when all this pain begun so i know its not from having sex...even though the last time i had sex in ealry feb it was very painful for me and i have stopped having it since...see its so upsetting and frustrating to be told by the doctors/uro's/gyno's that they dont know what is wrong with you... and im just wondering that is it possiable that from my pushing technique that i have injured myself some how because I learnt From "Tigger Gal" that some forms or urethritis can be caused my injury??And if so wouldnt the Uro have picked up that there was somthing wrong in my urethra when he was doing the cysto/hydro??because he noted that there was inflammation of my urethra..but since then has done nothing about it and said that i just have to live with it..... :cussing: I mean is it possiable that he could have missed somthing??? And i have never discussed the fact that all this pain started happening after i had tried my pushing technique with my uro??Should i??i mean would it be important and make a difference??

Please sombody help me im loosing hope!!
love you all very much!! :kissing:

[cindysd18]

It sounds like you have pelvic floor dysfunction at the very least. If you strain to void or have to push and void a few drops here and there and then have to go again within seconds your muscles don't know how to relax. They become spastic and become easily agitated when they are constantly tightened. There are physical therapists who specialize in pelvic floor dysfunction. There are also books dealing with kegal exercies which help dramatically and should decrease frequency and pain. Hope this helps.

[MarthaB]

:) Kadi, I think it may be worth your while to mention this to your uro, it could well be that the pushing started this thing off, I'm not a doctor, so I cannot tell you that the pushing is the reason, all i'm saying is that it could be, I have the same problems as you, as I mentioned in your earlier thread, vaginal burning is my main symptom at the moment, my uro couldn't find anything wrong with my bladder or my urethra, I still believe I have IC, but because I am in the early stages, maybe that's the reason he couldn't see anything....It can take a long time to get diagnosed, have you ever had the pottasium sensitivity test?? they can diagnose IC with that procedure as well.
Uretritis could be caused by a injury, but it has other causes as well, I would definately discuss this with your doctor, you've got nothing to lose.
martha

[kazi]

thankyou for the reply cindysd18. No see the thing is i dont normally strain or push to go to the tiolet and release urine...in fact i have really no problems in passing urine what so ever i just feel that all of my burning sensations that i get now in my urethra on nearly an everyday basis are a result from this one time infection where i was pushing so hard feeling that there was urine in my system and felt spasms..i never push anymore but i still often get the same spasms and constant burning in my urethra..and in most recent times i have be constipated in later days not sure if its related to what i could have...and somtimes i get sharp pains in my pelvic area but not very often as i say.i mean its not somthing that really afects me.my greates concern is the burning pain that i get in my urethra!!and i heard that urethritis in the inflammation of the urethra so i thought hey thats what i tihnk i have!!however th uro has done nothing about it!! x0x0x0x

[kazi]

Thankyou as well Sheebah for your reply again.No i havent had a PST test because they said that there was no concern for me to even have that tests because they said that there was no doubt in his mind that that i didnt have IC.And not just one Uro said this but several..Because i have had frequent UTI's since childhood and that if i had IC it would have shown up by now at 19 years of age..xoxo

[MarthaB]

Kazi, IC doesn't always show up in the bladder, sometimes the pst can comfirm this, it's just a thought, but if you keep having this pain and burning I would ask again, it couldn't hurt, if you do not have a reaction to the pst, you could move on and find another cause for your symptoms.
martha

[ICNDonna]

It does sound like you may be having spasms, which can cause pain in the urethra. Straining does increase spasms, but if you only did the straining for a very short time, it probably didn't do any lasting damage.

Pelvic floor dysfunction (PFD) is definitely a possibility. The good thing about PFD is that physical therapy can be a huge help.

Donna

[marsi4]

Kazi, I don't think your having urethral problems because of the pushing. I have done lot's of pushing with my ic and have had vaginal and urethral burning from ic for many months. Usually it goes away with time. I hope you get relief soon. Urethritis is another condition that doctors have a hard time explaining. It's an inflammatory condition and it's cause is not known like IC.

Marsi4

[bellaluna05]

I had to push really hard for years to pee, until my IC got so bad that I have to catheterize now. The doctors did tell me to stop the pushing because it was causeing more spasms and pain, but no one ever said anything about perminate (I know that has to be spelled wrong) damage.
A lot of doctors won't diagnose IC without seeing the Hunners Ulcers, but you can still have IC even without them. It can be inside the tissue. Since there is no definate way to diagnose IC a lot of people are told they don't have when they do, it really sucks.
Do you have any other symptoms other than your urethra? Bladder pain, food and other alergies that make your urethra pain and burning worse (big sign of IC) frequency at night as well as day? There are a lot more but I am too tired to think right now sorry. I know you have been through a lot already but maybe you should go to another doctor, maybe there is someone on this message board who lives around you and they could recomend a good doctor. There is also a list of recomended doctors somewhere on this site.
I hope you feel better!
Lara

[MarthaB]

:) I have the bladderpain and burning, vaginal burning, urethral burning, and urgency, I cannot eat citrus fruits, and do not tolerate coffee or tea, it will bring on a flare if I do, but still my uro would not diagnose me with IC, he said there were no obvious signs, apart from a small bladder, so I'm stuck with just painkillers, and nothing else, my bladder burning has subsided since the hydro, and he wants me to come back if the bladder burning returns, I am looking for another uro, but the ones with IC experience are hard to find.
martha

[bellaluna05]

God doctors are so freakin dumb! A shrunken bladder is a big sign of IC plus you have all the symptoms. Personally I have not been able to find another disease that has all of these symptoms other than IC. There are some that cause everything but the food alergies, but I can't find anything else that causes all of this and the food alergies! These doctors are such ****, they would rather just let people suffer endlessly because they don't know enough about IC, why won't they educate themselves. Is this doctors giving you any other ideas as to what he or she thinks it is that you have?
It sounds like obivious IC to me, but I am not a doctor. One lady told me that she had hypothyroidism, a thyroid disease and that caused all of her IC symptoms, have you had your thyroid tested?
I really think you need a new doctor fast! Where do you live? have you looked at the list of recomended doctors somewhere on this site? You need to find a new doctor so you can get treatment. If you can get treatment before it reaches end stage you could go into remission, like lots of others have, not me but others have and do. Mine is end stage and doesn't respond to ant treatments, I am sorry I don't want to scare you, my case is extemely severe and rare (thats what all the doc.s say)
If you are anywhere near Los Angeles CA, Dr. Raz at UCLA is really good, or Dr. Kaplan in santa Monica, CA.
I hope you find a good doctor soon! you are in my prayers!
Lara

[Martha13]

One thing to check out - an infection in the paraurethral glands - as described on the this site:

http://www.ic-network.com/newsroom/796.html

Many patients and even MDs do not realize there can be infection in these glands. They are similar to the male prostate glands and this problem is sometimes called "female prostatitis". There is not much research on this kind of infection and Dr. Gittes has now retired. He was one MD who recognized and treated this.

Just a thought for those whose symptoms are urethral. Pelvic floor dysfunction is another thing to check out.

Martha F.

[MarthaB]

:) Lara, I live in Australia, so there is no point looking for the uro's on the list,.
My uro said he could not diagnose me on just having a small bladder, he said that he has a few patients with IC, but they are in absolute agony, doh, I don't feel my pain is a bloody picnic in the park, maybe I am not showing my pain as much as the others, but that doesn't mean it's not there.
I am definately worried about my symptoms being untreated, I know that IC is not usually progressive, but if untreated it could well become worse for me.
The best uro's who have experience with IC have a practice in Sydney and Melbourne, it's way to far for me to travel, and too costly, I will keep on looking to see if I can find some one closer to where I live.
Thank you very much for your reply, and your concern, it's very much appreciated.

Martha, I will print that page, and talk to my uro about it, whomever he or she will be, I had a look at pfd, but the symptoms don't seem to fit, usually people with pfd have terrible pain with sex, it's not the case with me, I do get pain but about 12 hours later. thanks for your reply also.
martha

[kazi]

Thankyou again everyone for you reply's..And in respose to Martha F's post..very interesting indeed..see the pain i experience is not in my bladder...but simply in my urethra..and as i said like before my several cysto/hydro's showed that there was inflammation of my urethra....But no Ic....However its funny the you have mentioned case of infected Paraurethral glands...I was reading through the link that you have me about it however im still a bit unsure about where abouts so those glands are located??? See the thing is I have definetly taken notice to the fact that inside my vagina there is definetly a tender point just a little bit past the entrance and up a bit..and it feels as thought there are like a few large like bumps or glands shall i say that feel inflammed...Infact anything that rubs near that area give me a raw burning sensation and the area feels really tight.....Anyone know what this could probably be??Because in fact a large amount of the general burning pain i get in general is located in this area??????????????????.... xoxox

[kazi]

You know as well what the worse problem is ...is that there could be so many things of what i could have...and i get so confused because i get different oppinions by everyone lol i just want to find out what wrong with me...2 and a half years and i've had enough of waiting!!

[Martha13]

These glands are located somewhere along the urethra. Surely a urologist could find a diagram showing them. The one patient I know who was diagnosed with this said Dr. Gittes examined her and one sign was tenderness when he examined her through the vagina. He treated her with doxycycline for many months as I remember.

These glands can be massaged in order to cause an expression of fluid which can then be cultured. This is more commonly done for the male prostate which can be infected. It is amazing that more doctors do not know about this type of infection in women but there is very little in the literature if you do a search. I would at least try to discuss this with a uro since maybe some do know about the possibility.

Good luck with finding some answers!

Martha F