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wilma8
12-08-2005, 02:57 PM
Hello Everyone I have been around wanted to post was Diagnosed 10/6/05 I have had pelvis pain forever got worse after I got kidney stones in Dec of 03
Drs did not find them till my left kidny was blocked in May of 04 the Uro they sent me to had to go in one night and try to get one stone out of ureter he could not get it he then push it back in the kidney a wk later he blasted it it did not worked I had several stones in both kidneys had them blasted several times had severals stents it got till I could not sit Drs did not know what was wrong none of them ever gave up on me they knew I was having a lot of pain I also had a ureter reintransplant 7/13/05 that helped some to where I can sit longer without hurting but now they think it is IC they have tried me on Ditropan detrol, Enablex, does not help I could not take Elmiron it made my stomach hurt had to be puy on Prevacid for that My uro also put me on Gabapentin it does not help he has done 6 instills the first 2 were I think DMSO it made my Kidney and Pelvis hurt even worse so the next 4 were sodium or something he said, I am hurting even worse since the 6 treatment My left Kidney hurts really bad My pelvis on the left side sometimes I can not even walk because of the pain My Uro gives me Lortab I go back in a Wk if I am not better my Uro is going to do some kind of injections into my Bladder He has also put me on 2 new Meds one isCarbamazepine the other one is Veslcare they have not helped yet he said give them a wk I am allergic to alot of medicines has any one tried these 2 meds is the injections the Botox? please let me know I know everyone is different but do any of you guys have Kidney pain and Pelvis I also pee alot so I know I do have IC and the URo also showed me the pictures of the inside of my Bladder I am sorry this has been so long I also had Scar Tissue removed in Dec of 04 by my GYN My URO said I still have alot He could not get to it when he did Transplant,I have A URO a GYN a GASTO a General Segeron a Family DR they would sent me back and forth one saying one thing another saying something different they all knew something was wrong but they did not know what it was I think there is something other then IC going on to I hope they find it and asso find something that will help my IC I also watch what I eat and drink always hurting and I pee alot

traceann
12-09-2005, 03:51 AM
HI Wilma8 and :welcome: to the gang! I can't say I have had experience with stones or the 2 meds, but I am sure someone here has and I am sure they will chime in. I just wanted to give you a couple helpful links. One is for the Patient Handbook (if you haven't already found it) and the other is a link right directly to the IC Diet foods list. If you haven't tried the diet, I hope you do. It's something you can do for yourself and it helps so many of us to watch what foods we eat.

Patient Handbook:
http://www.ic-network.com/handbook/

IC Diet foods list:
http://www.ic-network.com/handbook/diet.html

Don't give up there are other meds out there, it just can take time to find your correct combo!! Has your doc tried Hydroxyzine? It's an antihistamine, here's a link to the info on the site here that prompted me to ask for it...
http://www.ic-network.com/askthemd/theo0503.html

Hope this helps a little bit, and once again, welcome!!!

Morgana
12-09-2005, 05:49 AM
Wilma8

I am so sorry to hear that you are suffering so badly. I wish I could offer you some advice, but unfortunately I can't as I haven't experienced the horror you are going through. I hope that you find some help and relief soon. The guys here are wonderful. If you need help, advice, support, a shoulder to cry on or whatever, this is the place to find it.

Much love

Mo
xxx

wilma8
12-09-2005, 02:12 PM
I am going to ask my Dr to try me on Hydroxzine before he does the injections I hope it helps, I hurt all the time,I stay home all the time because of the pain and having to go to the bathroom all the time, I am always in a flare

Bianchi
12-09-2005, 02:32 PM
Gosh, I feel so bad for you. Have you tried "Pyridium"? Also hydroxizine and maybe elavil. It helps a lot of people.
Bianchi