wilma8
12-08-2005, 02:57 PM
Hello Everyone I have been around wanted to post was Diagnosed 10/6/05 I have had pelvis pain forever got worse after I got kidney stones in Dec of 03
Drs did not find them till my left kidny was blocked in May of 04 the Uro they sent me to had to go in one night and try to get one stone out of ureter he could not get it he then push it back in the kidney a wk later he blasted it it did not worked I had several stones in both kidneys had them blasted several times had severals stents it got till I could not sit Drs did not know what was wrong none of them ever gave up on me they knew I was having a lot of pain I also had a ureter reintransplant 7/13/05 that helped some to where I can sit longer without hurting but now they think it is IC they have tried me on Ditropan detrol, Enablex, does not help I could not take Elmiron it made my stomach hurt had to be puy on Prevacid for that My uro also put me on Gabapentin it does not help he has done 6 instills the first 2 were I think DMSO it made my Kidney and Pelvis hurt even worse so the next 4 were sodium or something he said, I am hurting even worse since the 6 treatment My left Kidney hurts really bad My pelvis on the left side sometimes I can not even walk because of the pain My Uro gives me Lortab I go back in a Wk if I am not better my Uro is going to do some kind of injections into my Bladder He has also put me on 2 new Meds one isCarbamazepine the other one is Veslcare they have not helped yet he said give them a wk I am allergic to alot of medicines has any one tried these 2 meds is the injections the Botox? please let me know I know everyone is different but do any of you guys have Kidney pain and Pelvis I also pee alot so I know I do have IC and the URo also showed me the pictures of the inside of my Bladder I am sorry this has been so long I also had Scar Tissue removed in Dec of 04 by my GYN My URO said I still have alot He could not get to it when he did Transplant,I have A URO a GYN a GASTO a General Segeron a Family DR they would sent me back and forth one saying one thing another saying something different they all knew something was wrong but they did not know what it was I think there is something other then IC going on to I hope they find it and asso find something that will help my IC I also watch what I eat and drink always hurting and I pee alot
Drs did not find them till my left kidny was blocked in May of 04 the Uro they sent me to had to go in one night and try to get one stone out of ureter he could not get it he then push it back in the kidney a wk later he blasted it it did not worked I had several stones in both kidneys had them blasted several times had severals stents it got till I could not sit Drs did not know what was wrong none of them ever gave up on me they knew I was having a lot of pain I also had a ureter reintransplant 7/13/05 that helped some to where I can sit longer without hurting but now they think it is IC they have tried me on Ditropan detrol, Enablex, does not help I could not take Elmiron it made my stomach hurt had to be puy on Prevacid for that My uro also put me on Gabapentin it does not help he has done 6 instills the first 2 were I think DMSO it made my Kidney and Pelvis hurt even worse so the next 4 were sodium or something he said, I am hurting even worse since the 6 treatment My left Kidney hurts really bad My pelvis on the left side sometimes I can not even walk because of the pain My Uro gives me Lortab I go back in a Wk if I am not better my Uro is going to do some kind of injections into my Bladder He has also put me on 2 new Meds one isCarbamazepine the other one is Veslcare they have not helped yet he said give them a wk I am allergic to alot of medicines has any one tried these 2 meds is the injections the Botox? please let me know I know everyone is different but do any of you guys have Kidney pain and Pelvis I also pee alot so I know I do have IC and the URo also showed me the pictures of the inside of my Bladder I am sorry this has been so long I also had Scar Tissue removed in Dec of 04 by my GYN My URO said I still have alot He could not get to it when he did Transplant,I have A URO a GYN a GASTO a General Segeron a Family DR they would sent me back and forth one saying one thing another saying something different they all knew something was wrong but they did not know what it was I think there is something other then IC going on to I hope they find it and asso find something that will help my IC I also watch what I eat and drink always hurting and I pee alot