legs

[SheriG]

...ANYONE have leg swelling when your IC is misbehavin???

[Katrina]

yes. There are lots of possible explainations for it but if this is anew symptom for you you need to tell your doctor. Most definatly you would not be alone with beg pains with IC.

[Pac168r]

Leg pain...but no swelling

Paula

[ICNDonna]

Please call your doctor's office. Swelling of the legs doesn't usually go with IC. I sometimes have some leg pain, but not swelling.

Donna

[Silverfox]

When my bladder symptoms were the worst, I had swelling in my feet and also my hands. I would awaken in the night and make my way to the bathroom and while looking down I would notice my swelling in my feet.
The veins and tendons that you normally should see on the top of the feet were gone. In the daytime I experienced some numbness and was clumsy in walking or dancing. I sometimes lost control of my feet. Like when I was walking with my small child accross the parking lot to the shopping mall, one of my feet would suddenly become numb and loose feelings and often I would trip and fall to the ground.(ataxia) Thats when I began to suspect I had MS (I did not have MS) but I did not know what else was happening to me.

In my hands, they would be also swollen and clumsy and I had some bad arithtic like pains. The Top Drs. noticed that I was rubbing my hands sitting in the Drs offfice. I had trouble doing things with my hands and when I had a new baby I had trouble picking my baby up and diapers had to be disposable tape ons. I later learned that my problems with my hands was from having severe carpal tunnel.(a common nerve damage)

With the swelling I would poke and bang and yell at my husband when I awoke in the night, I would be telling him to look at my hands and my feet as they were so swollen with no veins or tendons showing. I also would have pins and needles tingling in my hands and feet. Finally, my husband awoke saw what I was trying to show him, all the puffiness in my feet and hands. This showed up strongly in the night.

With all the bladder frequency and bladder pains, I knew that something was damaging my nerves and I was tested finally for ms. Well, they concluded that it was not MS. I asked my Dr. why were my nerves on fire all over my body. The only thing he found wrong with me was that my spinal tap showed that I had a very high protein level in my spinal fluid. :help: He sent me home not knowing and it was another year later that I learned what was causing me to have all the swelling and nerve problems. I also suffered from Fibromyalgia, a strange muscle pain. I actually started attending MS support groups and Lupus support groups. There were people there that could understand what I was feeling. :grouphug:

The good news is that I did uncover the cause of the swelling and with the correct diagnosis and treatment, I no longer have the awful swelling and most of the feeling is backing my hands and feet, and I can now exercise with out falling down. My Drs. have diagnosed me with a nerve disorder called peripheral neuropathy that affected the nerves throughout my body.
I still have some sensory nerve damage and pains. When this is treated early in the damage, the cure is excellent, but when it has been untreated for a lengthy time (for me many years) the nerve repair takes a long time to heal or recover. Now I am old and time is running out for me, but I pray for the day when my nerves will be healed and I will go running out on to the street and celebrate my complete recovery and I promissed my God that I will try to help others until the end of my life.

God Bless all of those who are suffering with this, I believe in miracles! :woohoo: