karen10300
11-27-2005, 05:06 PM
I need some opions please. Sorry that this is going to be long but I really would appreciate your thoughts.
A little background first so that maybe you can give me a better opion. First of all, I have been in terrible pain, the most awful burning pain and also have had the frequency and urgency since Feb. of this year. Towards the end of October I ended up in the emergency room for a kidney stone. They lasered the stone to break it up so that it could pass. I have done instills with heparin and also heparin and solu-medrol which started to help and then quit helping. After that we switched to DMSO along with the heparin and solu-medrol. I had had 5 of the DMSO instills before I got waylaid with the kidney stone episode. After the kidney stone thing I skipped the next two weeks of treatments because I had a stent in my urether and that caused so much pain that I couldn't imagine going through a DMSO instill with the stent in.
When I next went to the doctors 2 weeks after my kidney stone I told them I was beginning to feel much better. The awful burning was letting up and that has always been my biggest complaint. Now they seem to believe that my kidney stone was affecting my IC and that that was why I was feeling so terrible and flaring so badly. I'm not totally sure I believe this even though I'm am so happy that I am finally feeling so much better. I never had any pain with the kidney stone until the night I ended up in the ER with it. I've had many stones in the past and was told about 2 years ago that I had a stone in each kidny. After I had this stone removed they also told me that there were still some very small stones in my kidney's. So I guess my question is, do you believe a stone that was not causing me any pain could have aggrevated my IC so badly for almost 9 months? Or maybe has the DMSO started to work? or one other maybe it has to do with that I stopped taking black cohosh for my hot flashes about the same time?
What ever it is, I am so thankful because I am feeling so much better. I was at the point were I didn't think that my IC would ever improve. I actually can go through a day without pain pills and I truely didn't think that would ever be possble for me. I keep reminding myself of how bad my pain had been so that I remeber to watch my diet and to take my Prelif. This is actually going to be my first week of skipping an instill because I am feeling better. I will do an instill next week and if things continue to go well we will schedule them apart more often.
I do have to say again how thankful i am for Jill and everyone on this board for all that I have learned and all the love advice and encouragement that is always here.:grouphug:
A little background first so that maybe you can give me a better opion. First of all, I have been in terrible pain, the most awful burning pain and also have had the frequency and urgency since Feb. of this year. Towards the end of October I ended up in the emergency room for a kidney stone. They lasered the stone to break it up so that it could pass. I have done instills with heparin and also heparin and solu-medrol which started to help and then quit helping. After that we switched to DMSO along with the heparin and solu-medrol. I had had 5 of the DMSO instills before I got waylaid with the kidney stone episode. After the kidney stone thing I skipped the next two weeks of treatments because I had a stent in my urether and that caused so much pain that I couldn't imagine going through a DMSO instill with the stent in.
When I next went to the doctors 2 weeks after my kidney stone I told them I was beginning to feel much better. The awful burning was letting up and that has always been my biggest complaint. Now they seem to believe that my kidney stone was affecting my IC and that that was why I was feeling so terrible and flaring so badly. I'm not totally sure I believe this even though I'm am so happy that I am finally feeling so much better. I never had any pain with the kidney stone until the night I ended up in the ER with it. I've had many stones in the past and was told about 2 years ago that I had a stone in each kidny. After I had this stone removed they also told me that there were still some very small stones in my kidney's. So I guess my question is, do you believe a stone that was not causing me any pain could have aggrevated my IC so badly for almost 9 months? Or maybe has the DMSO started to work? or one other maybe it has to do with that I stopped taking black cohosh for my hot flashes about the same time?
What ever it is, I am so thankful because I am feeling so much better. I was at the point were I didn't think that my IC would ever improve. I actually can go through a day without pain pills and I truely didn't think that would ever be possble for me. I keep reminding myself of how bad my pain had been so that I remeber to watch my diet and to take my Prelif. This is actually going to be my first week of skipping an instill because I am feeling better. I will do an instill next week and if things continue to go well we will schedule them apart more often.
I do have to say again how thankful i am for Jill and everyone on this board for all that I have learned and all the love advice and encouragement that is always here.:grouphug: