Frustration

[Sandy N.]

i have tried and tried to get an appointment with the interstim rep to reprogram me. I have emailed him, I have called him, I have called the doctor. Well I finally got an answer today. The one who helped with the surgery up and quit.I called the doctors office today begging them to let me see the doctor. I had to sit there and explain everything to the girl and she still did not understand what I needed. Finally I got through to her and said I need to see the doctor. Well she told me that my doctor is now only in the office 2 mornings a week and his associate is not familiar with interstim. I am going to lose my job because of taking os much time off.Oh well I have an appt. next thursday. My main problem is Urgency and leaking has returned and so has the feeling of always having to go to the bathroom. I have had my interstim in since July... banghead banghead banghead

[Teri]

Sandy, I want to reach thru the screen and hug you. Stories like yours need to be told and they need to be HEARD.

When people are considering this very serious, dangerous surgery the tend to listen to the good stories. NO ONE believes that they will end up with one of the 'problems' listed on that consent form we sign. When someone does end up with a problem like yours, which is a HUGE problem, there is no one left with the guts to share their stories because for those of us who have had problems or bad things happen never feel supported here so we stop posting.....well, we stop posting and what do we have left?????

Only the 'good' stories. And, for every good story that is posted here, there are just as many girls e-mailing each other getting the support they need. They do not feel wanted or welcomed here and it's a shame because this is a serious surgery that we ALL should know EVERYthing going in and trust me, you are NOT being told the truth by your dr OR by medtronics.
You have found that out by being ignored for almost 6 months. When my original device quit working I called my uro for 6 months waiting to reschedule a revision and on the last call his secretary told me, and I'm quoting her, "he wants me to ask you what you want him to do about it." For 6 months the *** had been leading me on that he was going to try to get this stinking thing working. I ended up with a new dr, a revision and 2 years later had it removed because of more problems but I know how emotionally painful it is to be left hanging out there, with a foreign device in your *** and no one seems willing to help.

PLEASE don't let this be your last post. PLEASE keep us up on what is going on, what your dr is doing for you and mostly, what Medtronics is willing to do to help you with this.

I come here and I beat my head on the same wall time after time because of all the people who have had to have their units removed, I'm the only one who still posts and I NEED HELP, I need the voices of others who have been scared by this procedure..... I just don't have the strength to keep doing it by myself anymore.

Sending you a zillion hugs
and some very very special prayers.....

gramini@aol.com

[Sandy N.]

Teri, thank you so much for your reply. I always feeling like I am complaining here and over the phone to the doctors office. Of course the medtronics person still has not called and set up an appt. I will just have to find him I guess.Teri did the place where the battery pack was placed on your backside, did it constantly hurt, and did you cobstantly feel it? My doc said I will get used to it. Oh well. Thanks again and thank you to whomever reads this post. I care about all of you and am so thankful there is a place to turn when I have to vent. Sandy angel angel

[Teri]

Once I had my revision there was always pain at the site of the device AND horrific tailbone pain. Naturally, people smarter than I said that this could not be happening but I know my body and I know what AND where it was hurting.

For the 18months that the device did work, my 1st toe curled but it was working so I could live with it. Then, 3 toes started curling and the pain started going up into my calf and it just stopped working all together....by that time it was too painful to keep the device on anyway.

It's funny that for 4 years I complained about pain symptoms that I'd never had before and I was told it wasn't possible the device could be causing it, yet, after it was removed, within weeks those symptoms went away and I was left with my good ol' fashion IC pain :confused: :confused: But the dr's are still smarter than me, AND the girls who have been forced to file law suits banghead banghead

[dyno]

Sandy,
I am sorry about the problems you are having. I agree with Teri that these stories need to be heard. I have never had Interstim nor do I see myself needing it in the future. I am a firm believer in people knowing both sides of the coin with treatments. This is one of the more invasive procedures done in IC treatment and so therefore the risks can be great.

I hope if the Interstim does not end up working out for you that you can try some different treatments with better results. Keep your chin up, and know that we are here for you.

Jolene grouphug

[jaime15]

I'm sooo thankful for you guys post about your experiences. I have had in the back of my mind that I don't want any foreign objects in me. I'll do whatever my uro wants, except that.
And your posts just confirm that I'm thinking smart about it. I'm totally afraid cause I don't want to make my symptoms any worse. Don't get me wrong, I'm all for pain, pressure, and frequency going away. But it doesn't help if it works a month and makes everything worse in the end.
Thanks Sandy and Teri~ I wish I could help your pain. Lord knows ya'lls posts help me.
Tons of prayers to you that you can get ahold of somebody out there.

[carly]

I had my interstim in October. The surgery was very painful for me. I was awake so I could tell them where I was feeling a sensation. It was so painful. It lasted 2 hours and I was crying almost the whole time. The medtronic rep told me AFTER the surgery, that it doesn't usually work if you have a lot of pelvic pain. He meant it doesn't work for frequency or anything if you are that advanced in your disease. I had it removed in October, 3 weeks after the initial surgery. Mentally, it was very depressing because I had such high hopes, to not go to the bathroom 40-50 times during day, and 10-15 at night. They were going to take it out with "twilight sleep,", but my urulogist called the OR right before the surgery and said "put her totally out, she has been through too much".

[Mimi-in-Chicagoland]

I think what needs to happen is Medtronic seriously needs to revamp their doctor training program. The implant should NOT hurt at the generator site OR at the spine. If you feel burning, something is wrong. The implant needs reprograming. Each person will use a different setting and sometimes it takes time to find what works. I can't believe the things that these doctors and reps tell people. My first doctor didn't do many implants and my implant quit working and it burned constantly...it turned out that the wires weren't watertight and had corroded. The second doctor had done a ton of the implants and fixed everything. I think that makes a huge difference. He also has an interstim clinic every Thurs, so if you need reprogramming you can go in and get it done. I love my implant and would go through it again...of course, I was about to have my bladder removed and nothing else had worked for me.

--formerly mbrogier in Detroit

[icnmgrjill]

Wow! I apologize for not catching this earlier. You've all made EXCELLENT points and most of you should already know that I am not an endorser of interstim UNTIL I see proof, long term study proof, that demonstrates that this is a viable alternative. Why??? Because I've been listening to angry Interstim patients since 1993. In fact, the first two patients who joined my local support group were former interstim patients... and boy did they have some stories to tell. Their level of anger was substantial and there were meetings when just mentioning the device would case either tears or anger. And, yes, the device has been refined and improved since then... but many of the issues that we saw ten years ago are still issues today.

#1 - Pain during procedures. I personally met with Medtronic staff several years ago and literally begged for better provider training and pain care. It is no wonder that some patients are frightened when they hear stories from other patients who have had agonizingly painful procedures. I still recall one young man who was so traumatized that he screamed during the procedure to the point that his mother could hear him in the waiting room. I think that she still occasionally reads these boards and I encourage her to share their story.

#2 - The incidence of complications. All it takes is a scan of the MAUDE database over on the FDA website to see that a number of complications have occurred. From devices and leads that break and shock patients (creating pain), to leads that move, to (in one case) a patient having her lead come out during a bowel movement. Obviously, the doctor didn't put it in the right spot in the first place. Other patients have been shocked going through security. The list is very diverse and eye opening. Again, I urge anyone who has experience ANY complication to file an adverse event report with the FDA. This is the only way that we can publically document problems with the device. Do it today!!!!! http://www.fda.gov. Anyone who says pain can't happen from the device should also be given the reports from the FDA. Complications, usually in the form of pain, occur! That is undeniable.

#3 - The lack of long term published data. What we've seen on this site are a number of patients who have had their devices removed after a variety of failures. Furthermore, some patients have had numerous revision surgeries. The FDA required the company to complete a five year post approval study which documented the rate of surgical complications. As yet, that report still has not been released to the public despite my many requests for the data. The last communication I had with the FDA was that they had not received the report from the company. It is now 18 months overdue. How can any patient make an informed decision about having this procedure without seeing the long term data??

#4 - Misinformation about it's use. The FDA clearly mandates that Interstim is only appropriate for use in URGE INCONTINENCE patients after they have tried and failed other more conservative therapies. Thus, it is NOT a first line therapy for any urologic condition. You can see that on the Medtronic website. Yet, it amazes me when I hear from patients who have been told that it's the only therapy available for IC... and, in one case, a patient was lied to and told that there were no other therapies available for IC. Imagine her fury to discover that there were oral drugs, such as Elmiron, that could have been tried first.

Now, despite the above, there is a place for sacral neuromodulation. It can be helpful for some patients, particularly those who have extreme frequency or who struggle with incontinence. If you have tried and failed other therapies, then it's certainly worth learning more about and talking with other patients about. Learn both the success stories and the failures. Ask patients what they would, or would not, do again. Explore both sides of the issue carefully. And, of course, talk with your care provider.

Please.... please... please..... file your FDA reports. If not you, then who???

Jill :)

[rjyoon]

I have posted on this before, but I think it bears repeating. In my town there was a physician involved in the trials which supported FDA approval of the Interstim. He turned out to be a slimeball (why I didn't go through with it then), was fired & it made the front page of the business section of the newspaper, & absconded with patient records. Medtronic needed that information to complete the 5-year follow-up study, as he was one of the few doctors supporting the trial. Without his information, they've had to wait for others to hit the 5-year mark & collect the data.

On a separate note, when I originally started posting on Interstim in 2002, I was bombarded with negativity. I can't believe anyone here thinks that a regular reader isn't aware of all the possible complications. My questions weren't being answered, as my thread was highjacked & became a place to post negative things about Interstim. I left the boards for a long time because of the flood of negative posts & the lack of response to my questions.

[tigger_gal]

Sandy
(((hugs)))I am sorry you had to go thru this :( I can call my uro on any given day of the week and get reprogrammed that was un called for.. I feel as if your dr cant reprogram you why is he doing them.
HUGS carley and Teri sorry yours were failures.
This sure was a negitave post :( I know that some of you had failures and I am so sorry, but those of us who have should not be knocked!

I guess back in 1993 there were some horrible doctors out there to treat there patients so in-humanly, any one with any brains knows that you cannot do a trial with out any anestia (sp?)...
We are updated to the 2000 now and there has been more success stories on interstim thhen failures. There are many of us who just got the interstim and many of us who have just had it a few months.. We will never know the results of ong term study until the doctors get there buts in gear and turn in the results..
I have a great uro/IC Specialist Dr. Peter's in Michigan and I would Gladly tell anyone any day of the week if you want the interstim go see Dr. Peters, he is not pushy he "suggested" the interstim to me and I was in no pain (except normal incesion pain) after my trial and my implant..
I do not in any way shape or fomr think that the medtronics is responsible for the stupidty of doctors..
I think that this procdure should be looked into carefully before you decide as with any surgery.. It is not for pain.
Having growing up knowing of IC my mom had it I know alot of the ins and outs of rxs and I know that dmso will eventually take your eye sight.. Thats why my mom had to stop dmso's
any way I am going on here defending the interstim but you all have your own opinion and mine dont matter.
Brat

[ICNJess]

RJYoon--

I agree with you 100%. What about the success stories? Don't those count for anything? I am a walking success. And you know what? It sucks that Elmiron, DMSO, caudal blocks, other insills, other procdures, counless amounts of pills didn't work for me, but I had to have the Interstim done. You are all lucky that you were able to get by on pills but you don't understand that some of us aren't. You come around and you put interstim, bladder removal, other treatments as such down, and you don't understand where people like me and the others are coming from. We want a chance to to live normally, and guess what--Interstim gave me that option back.

I don't pee 40 times a day anymore, I don't wet myself, I don't have the urgency, etc. etc. I can go on and on but it will fall on deaf ears.

You must think that we are pretty stupid or something, that we just jump head into these procedures. I researched mine thoroughly, talked to people who had success as well as failed. I got 3 different opinions. I talked to the medtronics rep. I talked to the surgeon several times before. How much more thorough could I be? I wrote down questions and brought them all with me. He answered every single one of them.

This is not a decision that is taken lightly. It's not like I just woke up and decided to have it in.

Teri and Carly--I am so sorry that they didn't work for you. I can't imagine the frustration and pain that you are going through. I am so sorry, stories like yours need to be heard. That is definite.

But please--don't let a few stupid doctors ruin your outlook. Hell if I blamed all the stupid doctors I've seen, I wouldn't be able to move on with my life. It took me countless years to get a diagnosis of IC, and guess what, because of the stupidity of 3 doctors before, I can't have kids. But guess what, I don't sit and blame the entire medical community and shun their treatments.

I don't ask for much in life, hell I sure didn't ask for IC. All I wanted was a chance to not be able to pee 40 times a day. I'm sorry some of you who haven't even tried it have a bone to pick with Interstim, but it's really not your place. You haven't walked in my shoes, you have your IC under control because of the more non-invasive therapies. And kudos. But some of us aren't that lucky.

In fact, I got a letter from my urologist stating (this letter is for insurance and other purposes) that I have severe IC and my IC does not respond to modern, more traveled along treatments. Thank God for Interstim or else I would've killed myself by now.

[dyno]

I am so glad that Jill jumped in on this. I always like to hear her views since she is really in the know on all the issues.

One thing I want to add to something that Rjyoon said. I am sorry you felt like you needed to leave for awhile and I am glad you came back. One thing you mentioned was the "regular" reader is aware of the risks. On that point you are right because we read the boards on a frequent basis. But...there are people who just have found the ICN and don't have the time or know how to go back through the other posts and read all the info that we read on a daily basis. Those are the ones that need to be able to see both the good and the bad when a topic like this comes up. So along with the positive, there needs to be the negative posts so that they are getting the true picture.

This is not an issue to be sugar-coated, this is a very serious topic. As Jill stated, it does have its place in IC treatment but it is not fair to those that need this important information to make a very important decision to not have all of it, not just the good stories.

If I can do nothing else for this board, it will be to make sure that people understand they have to research treatments and become their own advocate in their treatment. I have had IC for 29 years now. I am 45 almost 46 years old. My life would have been very different had I known and understood everything that I do now.

I wish for all of you the very best and understand that we will all respond to treatments differently. That is why I find it so important to educate, and to help people on their IC journey.

Jolene

[dyno]

I want to add one thing to what I just wrote before. To those of you who have had success with your Interstim, I am very happy for you. When I present or encourage people to look at the negative side of this issue or any issue for that matter, this is not a personal attack on any of you. I think of all of you as my friends but this is my way of helping people who come to these boards for information and knowledge. Again, I want the very best for all of you and I know that we all get to that place differently.

I will never claim to be an expert in this area but someone who is concerned about people and their rights as a patient to get involved in their own healthcare and decisions that can affect their lives forever.

Jolene

[Susan2]

The one thing I can say for sure, we need the voices of all of you. The good,bad, and ugly.
I am in the process of getting the Insterim, and I have researched this for over a year! I just know nothing has helped me and I sure don't have any kind of life right now. I cannot go on living like this! The only place I go is to the dr.!
I haven't been to church in over a year, b/c the last time I went I had to go to bathroom 4 times.
I told my husband and he agreed I would not put myself in that position again, until I could get some help. Well, the insterim sure seems to be my answer. My dr., told me the worst that could happen, if it doesn't work, he will take it out.
(trial). He also promised he would be here for me anytime I need him.
This is just my opinion. I don't want to hurt anyone's feelings.
Susan

[tigger_gal]

Hello everyone,
I have a great uro and he explained everything from a to z. I had a list of questions, and they were thouroghly answered. My dr is an ic specialist and I believe if your doctor has not had training to do this procdure he should not do it, you are dealing with your spine and nerves and one boo boo makes your life a living hell for the rest of your life... and it is all because the doctor did not have the proper training to do an operation... you wouldn't go to an eye dr because your tooth hurt... so make sure your dr is qualified, how many has he done? how many worked? how many failed?.. there should never be pain during the pocdure.. the dr that done that mans trial in office should be sued that is an unqualified dr.
complications: are all listed in the medtrioncs sight.. if you want the interstim you should read them, its important.
long term success: there is a patient that is listed in there sight that had the interstim since 98 and is having great success.
misinformation: is actually your doctors fault.. you need to research your self. Medtronics has not used this fda for ic patients they use it for urgeny and frequency and other bladder related issues. always ask for other treatments before surgery.
This is my opinion on the interstim. I would do this all again a 100 times over.. the interstim has made a huge difference in my life.
Brat

[jen75]

I stopped posting for awhile because I felt they same way Teri does. My Interstim story was and continues to be nothing short of a nightmare. I can't find a doctor now who will touch it (the uro who put it in is out of state). It's protruding out of the incision site as we speak. I fall several times a week because of the random shocks I receive. I'd turn the cussing thing off but I go into serious retention and have other problems (I have to see yet another specialist to check for nerve damage near the site next month)...which I didn't have before the implant. banghead By the way Medtronic swore up and down this week they would have some type of answer for me on Tuesday and I haven't heard a word.

No disrespect to those of you who had great success. I wish all of you nothing but the best. However, from our perspective I think it's just hard to hear at times you have to understand if you search the Internet for anything negative about Interstim you find this small area on the boards and thats it. If you want to find something positive about Interstim it's no problem; you could spend days going through the information. Again, no disrespect but some of you that have had excellent results have not had the implant long. Remember some of us did really great for a long while, just to be plagued with the problems we have now.

I've filed a report with the FDA months ago and never heard anything. Maybe if they get enough of these reports they'll take notice.

I do PM people that say that they are interested in Interstim. I don't discourage them from the implant, but I do tell them the types of problems that some of us have had. I suggest they keep a journal during their trial to get some accurate information to reflect on while making their decision. I say this because I think I wanted this to work so badly it clouded my judgement.

I guess what I feel must mirror some of you that have had good results. I just want to be able to say what a nightmare this was and is for me. Like you may want to express your joy in finding something that works well for you.

Hoping I didn't offend anyone either way-

Jen

[jen75]

Brat,

I had my trial in late 99 with no anesthesia, just so lidocane. They put you on a table in the doctors office, on your stomach. Then they taped your butt checks open...literally no exaggeration. Then the doctor and medtronic reps watched for twitchs in your bottom and toes. The leads were not tacked down, and in lots of cases (mine too)they ripped out before the trial was over. There was no OR or anesthesia this to my understanding was common practice. My urologist was from a huge practice and very well respected and thats the way it was done. It wasn't a great experience.

I think from what I understand the process has improved greatly. In 2002, Medtronic started using tined leads in the permenant implant, they are supposed to be less brittle so there are less "leaks" of electrical current now (so they say anyway).

:)

[Sandy N.]

I am so sorry that my post caused suchpain for many. I just needed to vent. Please forgive me if I have wronged anyone. I will try to be more considerate in the future...Sandy :o :o

[dyno]

(((((Sandy))))))
We don't want you to feel bad. That is why we are here. We know that people need to vent, please don't feel that you can't. As Jill clarified that is the purpose of the two boards. The Challenges board for those like you who have problems and the Success board for those who are thankfully doing well.

You came to the right place and please come back. It is sooooo important to have all the facts out in front of people. Look at it this way, your post may have convinced someone one way or the other what they wanted to do about trying Interstim. These true stories are what educating people about this treatment are about. You have helped someone today!!!

I want to give you a hug, and please post often so we know how you are doing.

Jolene kissing

[ICNJess]

Sandy,

Stories like yours, Teri's, and Jen's need to be heard. I never denied that at all. It's just that for some of us, it feels like an attack because I know that for myself, I've been emailed some very, very harsh things about people thinking that Interstim is bad. And when you get people who have never even had it judging the procedure itself, it's a little upsetting.

I'll stick to the success board, since my opinion seems to bring a backlashing. I hope you truly get the medical attention you deserve. Feel better!

[tigger_gal]

Hi,
Its all ironic that we have had such different doctors that tell us all different things regaurding the interstim. I think you all should post your failures, It needs to be heard. Right along with the succes stories. My concern is that people say, and, email us and tell us its bad dont do it... bla bla bla.....
You nedd to research research research and I have said it over and over again. I moderate the interstim boards and I am more that appauled at how support boards can get twisted into a cat fight about a device that helps the majority of the people.
I have severe IC My bladder holds less than 350cc and its shrinking, yes thats true and yes it dose for some, and I happen to be one of the "chosen" few that lives a horrible nightmare of IC.. I know more about IC than I let on because I have no intentions of scareing the living hell out of any one, the rep that told carly that it didnt work in advance ic patinets was out of line that was a horrible thing to say and out of line.. if they thought that why did they try it?, guess thats a question for yet another dr...
I wish the interstim helped every one, I send ((hugs)) to those it did not help and I have very low thoughts for the doctors that performaned them because I believe that its the dr's fault not medtronics.... lead movenent is the doctors fault, putiing in leads without going to er and being sadated is the stupidity of the dr...
Jen, I have the interstim I had my but cheeck taped wide open and now nothing is embarrassing... I think your docotr falls under the catagory as unqualified!
Ya, know, I support medtronics, the have helped heart patients to bladder patients. and any one looking to goo in for surgery needs to do there own research, some doctors say its fo pain it is not.. its for frequency and urgency.
And please with all means if you want to do the interstim ask for success and failures you need both stories and the ones it failed post your stories please...and what ever you do don't ask a person about interstim thats never had one tried it or knows nothing about it.
I don't want to **** any one off, honestly, but we all have our opinions and this is mine.
Brat

[Mimi-in-Chicagoland]

Jen, I would find a new doctor...as soon as possible. I think your lead has moved...which is very common on the untined leads they used to use. If you can't find someone locally, go to Detroit and see Brat's doctor at Beaumont. I know they take your insurance. My doctor at Henry Ford is excellent, too, but Dr. Peters does the most interstims in Michigan. Seriously. He'll fix you up in no time flat.

[usmcgowan]

Hi to all you brave and wonderful people.
Thank you for all your support.

I agree that we should all hear success stories and be positive, but this whole interstim situation is horrible. These are very evasive and costly procedures and the complications and new nightmares its causing is not right. People with IC are suffering at the hands of a disease that is very misunderstood, not understood, misdiagnosed and very often many ic sufferers find no relief. It is very easy for doctors, and companies like medtronic to say it comes with risk at our expense. I am already suffering enough. I do not need more of it. I feel like people should be very aware of these procedures and risks. I often felt so frustrated by my pain and frequency from IC and I now feel so hopeless since the failure and pain from the interstim.

It seems only normal for those who have had failure after all they have been through it too and want their voice to be heard. We all feel already so misunderstood and alone amongst a world where the average person has never heard of this disease , even urologists and doctors.

So please keep speaking up for those who have not had success with the interstim. That is the only way we may find a cure and for those who have had no luck. Yes I am grateful for those who have found relief throgh the interstim and I am thankful to God and modern medicine.

Those who have not found relief but only failure still are in search of relief and that is what keeps us giong. So please we are all equal and everyone needs to be heard and needs to listen to those who have succes, those who are positive, those who have had only failure and those who feel negative. I appreciate all of you and am glad to be able to share and care and maybe even sometimes disagree. I respect what you all feel. Thank you for these organisations and sticking together.

God bless you all and my prayers are for us all, may The Lord give us strength and courage and most of all may he bless us with compasion and love.

Alexa

[dyno]

Alexa,
I hope you will stick around on here, people ask questions a lot about Interstim and we need both sides answering them. Some of us who have never had Interstim can answer general questions but not specifics. We need all the voices we can on this.

You said it very well and I hope for you and all of those who Interstim did not work or caused you more problems that you will find something to help you.

Good Luck to everyone.

Jolene grouphug

[SM]

This board is for FAILURES...where people should be allowed to hate the stim! Praise it on the other forum where it is supposed to be. No Telling how many people quit posting just like Teri said. I am one of them, and I see nothing has changed.
Unless you have been through a tragedy, you plain out cannot understand that hearing it praised in YOUR OWN thread that you posted in sadness, is painful and hurtful.
I know nobody here wants to hurt anyone. Just please remember that this side of the board is to discuss FAILURES and what goes along with that. Every thread I have ever read where someone is telling their personal agnst, another comes in and tells a good side. She doesn't want to hear that. I didn't want to hear that. It really is salt in the wound. Can you understand that? Please understand that isn't helpful.

[dyno]

I agree totally with what you both said. That is exactly why the two boards were created. Thank-you SM for coming back to post. Please stay, there is support for you here. Betsie you said it very well too. Good to see you back on here.

I also don't know specifics on Interstim, I can answer general questions but that is it. It is so important for all both sides of this coin to be here to help. I knew Teri at times with others felt no support here and I felt really bad about that.

So please all the ones with failures, please know that we care and want you here and yes, I agree, keep the successes on the success board and let the failures have their board.

Jolene

[carly]

Thank-you SM, you said exactly what I am feeling. I had a failed interstim in October. I feel overwhelming depression because it didn't work. Right now, it is very hard for me to read about success's. I don't wish anyone harm, but it is very painful to read about how someone else got their life back when I am in constant pain, and still live in the bathroom. It seems though no matter how many times it is explained what this board is for, people continue to post their success's. PLEASE STOP. There is a place for you to be heard. Please let this board be for people like me who had a failed interstim.

[SM]

Carly,
I hope you are doing better. I promise that the disappointment and "rejection" you are going through will get better with time. Im not going to tell you a bunch of stuff you don't need to hear, just hang in there...remember that if this isn't for you, you were brave to try, and there is something else meant for you..
take care