Any1 heard of Noroxin??

[kazi]

heys everyone!!ive recently been to yet another new urologist in perth..who now says again that i dont have IC. I cant believe it seriously..i mean my cystoscopy's have all come back negative, and they even went and burnt off small pimples in my urethera(which has helped minor)..however i again keep feeling basically exactly the same pain symptoms as sum1 with IC..And you know wat the worst part of all is..the fact that he uro said to me"There is nothing more i can do for you,i dont know what it is..you're just going to have to live with this pain..its like sum1 with a bad back..they just have to live with it"i was like umm yeah doc but at least they know what they have..you cant even diagnose me to tell me what i have. So since theni have booked into see 3 more gyno/uro 's now hoping for some answers...which i have been looking for now for at least 4 years...yet no 1 can tell me what's wrong with me..im loosing hope, and becoming very depressed..this constant burning pain in my urethera..when i got to the toilet,and after and just burning in general..iv been tested for everything under the sun..im only 19 i dont know what to do..its affecting everything!!my career,my relationships,everything..i just want to be normal again...at the momt as a pain reliver my own gp has put me on some tablets called Noroxin..they seem to be taking an element of the pain away but not all of it..its just making the pain livable really..has abyone tried this??does anyone know of anything stronger i could go on??And does anyone know of any really good euro's on perth that i could see plaz help me!!

love karis xoxoxo

[Babs RN]

Noroxin as an antibiotic I believe, a fluroquinolone in the same family as Levaquin and Cipro. Very effective.

Hugs,
Barb :grouphug:

[Rosalie]

Hi there Karis, I'm from Melb so I can't help you with a Uro but I was also told I didn't have IC. I'd had burning pain for many many years and after finding this site was sure I had IC.
My Uro said it is Urethritis and I amd on Endep (you'll find it referred to as Evavil here) 25mgs a day and I am willing to bestow sainthood on the person who invented it! I still have some flares but have found advice here that helps enormously. Whatever helps IC helps me too.
Now if you look up Urethritis on the intrnet, it is referred to as a sexually transmitted disease. Obviously, not nesssarily so because my symptoms started looooooooong before I was sexally active.

I was diagnosed after a cysto/hydro. She said that the problem was all at the neck of the urethra. Very much like IC but localized.
Anyway, its something for you to think about.It might be what you have. Keep at it with the doctors. They are a pain in the backside, I know, but you have to perservere until you find one that can help you. I am happy to give you my Uros name and contact number if you want to have one of your urologists contact her. Another Melb girl on the threads sees her as well.

[Apollosmum]

Hi Karis.

I was told when I was 18 that I had reflux in my Left Kidney and therefore I was prone to getting Kidney Infections and UTI's (I'm 32 now). I was perscribed Noroxin and have been taking that since then.

Barb is correct Noroxin is an antibiotic which is quite strong and suppose to kill the horrible bacteria (normally Ecoli) that causes UTI's. This was always what I was given everytime I had an infection. I wasn't until about 10mths ago that the realisation was made that the infections I were getting were resistant to Noroxin and Gentamicin (this is given via Injection, normally when you are admitted to hospital with a serious UTI). It was because of this that I demanded to be referred to a Specialist because if it was only an infection these drugs were suppose to help.

Now after almost 15 yrs I have been diagnosed with IC. All that I would say is to keep a diary (this is what I do) to track everytime you have an infection as your doctor has probably given you repeat presciptions of Noroxin for when you get another infection. Therefore some infections you may get you will self treat and these will not be noted in your medical history.

Good luck Karis, but remember you know your body better than anyone and if you don't think you are being heard or that you need another opinion tell your GP to refer you to someone else. You don't want to be like me and find out 15 yrs later that you really do have something wrong and have been incorrecty diagnosed for all that time.

[helenprestegard]

Hi just read your story, I am 43 and was diagnosed with Ic 6 yrs ago. Ive had many doctors telling me i have not got Ic. Firstly a cystoscopy can not tell if you have IC or not. Have you repeated infections. Do you have back pain. Have you noticed it worsens near your period. This is what I have done. I have completely changed my diet, none acidic foods. No fruit , especially tomatoes.No coffee only decaf tea. There is a special IC diet . you can get this on the web. also I take Elavil. for the pain and also for anxiety. To help me sleep I take ambian, and for pain from tramadol to oxycontin. The first few years were the worst, now it is a lot more controlled. I have had DMSO coctails, into the bladder, I definitly do not recommend them, but I have had lidocaine and marcaine , this is really easy to put in yourself. That really helped me with the pain. Here is my phone number , I am in spain, if you want to talk to me it is 0034 956795307, Ill call you straight back. I have a daughter who is 22 and would wish someone to do this for her. really this web is fantastic, but to here another voice on the end of the telephome, was a blessing to me. Have you heard of a urologist in Perth called Dr Tim Jeffrey, he is a Eurogynocolgist. Dont worry about the doctors and urolgists that dont belive you, Just walk away and find another . I have been to many doctors. \You will find one that will treat you. We maybe coming to Perth In 2 weeks time, If you and your parents want to meet up ,Give me a call, I will bring my info with me . Dont get worried you will get the pain under control, it takes time and a lot of energy and support from your family and friends. Lots of luck and support to you Helenx