Interstim

[Sandy N.]

I have not posted in here forever. I have been so discouraged because everything they have tried for my IC has failed. So thursday I am going in for the trial interstim placement. My doctor told me i will have to stay down for 5 days so that everything stays in place. I am so scared. I just hope and pray that this works for me.My family is sick and tired of me being sick and tired, so I feel I do not have much support. My husband said he will not take off work for it and that my sister in law will have to take me. After all according to him it will be nothing.Please pray for me. My daughter is upset because I can not watch my granddaughters the rest of the summer...the doctor said no lifting or extreme bending for 4-6 weeks. thanks for all of your support in advance. You all have helped me even if I have not posted banghead

[ICNDonna]

grouphug
Donna

[Teri]

more grouphug grouphug
What do they think? We make this %hit up! I had a weekend of grandchildren's birthday parties. Working on my 19th UTI in 24 months and finally yesterday I hit the right nerve on "him". I asked him "why are you so angry with me"....and for once, in the last 8 years he finally admitted that YES he is angry.....I take that as being positive because now maybe he can go thru the stages and come to acceptance.
I had always taken care of all the household things. The yard was always my pride and joy. Letting go of that about killed me and I"m praying that someday I WILL get it back but for now, I"ve had to ask for help (OUCH cussing Did that hurt cussing ) So I know exactly how alone you are feeling.

Sending positive thoughts and warm fuzzy hugs your way and your husband can toilet himself;)

[auntiedeb]

grouphug grouphug

[Dixiefireball]

i'm so so sorry you are going threw all this pain but hopefully this will work a 100% for you. i know how you feel about the husband part and i agree with teri he can go flush his self! we all need support it gets lonely without support thank god for all of my icn friends they have helped me threw more things i can say!!! grouphug grouphug grouphug kissing If you need anything please ask!! sending you my warmest wishes and get well prayers!

[gwyn]

i will be praying for you!!!!!!!!
hope you are feeling better... grouphug

[Sandy N.]

Thank you all so much for your response and support. i went and got a haircut and massage. Feeling pretty good at the moment. Tomorrow my lab work. Thursday the temp implant. then uphill from there. Thanks you again for your kind words Sandy :)

[Iris]

Hi I hope everything goes well for you on Thursday, you know everyone is rooting for you, all the best to you, Iris. kissing grouphug hi

[tcbc1989]

Hi, I will be praying for you...good luck...Tina kissing

[tigger_gal]

Hi Sandy,
you will be in my thougthsand prayers :) I had my interstim put in, in april and it has made a great improvement. Did you read the info on the interstim at www.interstim.com (http://www.interstim.com) you will find this info very helpful.
good luck and please let us know how you are
brat

[jd]

You are in my thoughts and prayers. I have the interstim implant and it is working wonderfully.

keep us informed on how it goes for you.

Jane grouphug

[SheriG]

Hi Sandy! hi Best of luck as you get closer to your surgery...I will keep you in my prayers. Boy, it really seems like folks at home are not very empathetic, perhaps you might copy the letter that Gwyn posted, and have them read it, heck, maybe it'll open some eyes! toilet Again, my thoughts and prayers are with you... grouphug Sheri

[Sandy N.]

Well I had my trial interstim surgery. The doc had some trouble due to the fact that my sacral nerve was hard to find because of the shape of my sacrum? I need to know I am hurting so bad the sites keep bleeding but my doctor told me that would happen on and off..kind of oozing uck...Please let me know if this is normal. banghead frown

[Sandy N.]

I forgot to tell you all that my husband is being a jerk. Thank God for my mother who came over and helped me out...Thank you all for your support..

[Teri]

Are you oozing from the vertical cut? If so,I did for a few weeks. It wasn't enough to mean anything but it was there. If it's something that you think even in the slightest that you should call your dr for DO IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! They are paid ALOT of money for doing this surgery so don't be second guessing yourself.

As for your husband, just keep reminding yourself that all that goes around DOES come around. I think that's one of those great things about hitting 50~you finally beleive it. Mean while, I will be poking pins into a doll for him till he gets his head of his.....opps, can't say that here;)

tons and tons of gentle hugs~

[tigger_gal]

hi sandy,
do you hurt where the incesions are? thats normal it will hurt for a couple of weeks. did you get the stage trial?
husbands.........well think for the most part they all are jerks when we can't cater to there needs....
Brat

[SusanC]

It will be good for you to get the support you need from whomever will give it!! If hubby is having trouble accepting this, he will not be the first. For a while I had to keep telling myself this. When I was first extremely ill, pulled out of work by my doc, and having bad reactions to medication, my husband chose to bury himself in his job. It was sooo hard. I was so upset!!

My Mom and Dad and sisters helped so much by just being there. I would call and talk to them when I felt blue and they would keep me talking 'til I felt emotionally better. One time a fried called whom I hadn't seen in a while. I was hurting so badly and my meds weren't kicking in at all!! banghead She asked what she could do, so I told her to just keep talking to me 'cause I was hurting soooo badly. Bless her, she did, and the moment passed.

The moral of this post is "Ask for the help you need." You're doing the right thing by posting here. We've all been there...from the significant other not accepting...to friends and family thinking we're well when we feel like c#@$!!

My heart is with you. Hope you feel a little better soon. Like Teri says...Call your doc with any of these Questions....anything about the incision or funny sensations or pain, S/HE NEEDS TO KNOW and , more importantly....WANTS to know. That's why we have docs....it's part of the fee they get to help with pre-op and post-op care.

Sending an angel to watch over you!

[Teri]

SandyN~where R U?????? How is it going??????

[Sandy N.]

I have been so depressed and hurting that i have not been on the computer. Well I wwent last Thursday to the hospital thinking that when I awoke from anesthesia I would have the permanent unti in and be ready for recovery banghead So wrong. apparently when the doctor tried to put the permanent lead in I started to bleed alot and swelled. So the doctor placed the lead where he thought was in the right place according to the fluroscope but because of blood loss and the fact he was not 100% sure the lead was in the right place he could not put the permanednt lead in. I woke up and bawled and bawled pain and being very upset cussing So I stayed in the hospital and guess what they sent me home the next day and because of not being able to void sent me home with a catheter eek All I did was cry for several days until finally my daughter who iss a nurse came over and took the cath out for me. I just could not get comfortable and was on so much pain meds. Tues of this week I went back to the doctors for a check up and to get the info I needed to go back to the hospital to have the permanent unit placed thursday. Well Guess what banghead Do not know whose at fault they can not schedule me tomorrow. My dear doctor even went to the outpatient department to argue with them. so here I sit still in pain and bleeding(oozing) from the site where the permanent unit will go and do nt even know when this will be completed. cussing Of course my dear husband is sitting back and saying "What do you want me to do? I have about had it. I wish I were a drinking woman. Thank you all for letting me vent. Say a little prayer..... scream Hugs to all

[ICNJess]

eek eek eek Sandy, my prayers go out to you...you poor thing...

Hugs,
Jess

[Sandy N.]

Tomorrow 9am permanent implant hopefully.will keep you posted. :)