My First Instill

[melissa227]

Hey guys,
I was just going to share my experience, hoping it would help another newbe.
I had my first rescue treatment yesterday. The experience wasn't that bad. Of course, it wasn't the most pleasant thing but it was totally durable. One thing that did catch me off guard was that I couldn't pee for over 3 hours after the treatment. The nurse who performed the instill said, "now go home and let this solution out in about an hour", she told me if I had any pain or just couldn't use the restroom to give them a call back. So once the hour passed at home and I couldn't release the solution I got a little concerned and called the office because the silly nurse told me to call if I couldn't pee. But the dr called me back and said it was just that my bladder was really relaxed and the solution they injected is only about 60cc. My doctor said not to be concerned about not releasing the solution unless it's been 6-8 hours. Also I'm still bleeding a small amount from where they inserted the cathedar. Today I'm working and finding it hard to sit b/c I'm very irritated from the cathedar. I hoping it will get better through out the day. It's just 8 am.
Good luck to everyone!

[K-lee]

So is it a permanent catheder? What is it supposed to do? Im in so much pain right now i think i would do anything to get out of it. :mad:

Thanks, K-lee

[melissa227]

K-lee,
It's just a temp catedar. They remove it directly after inserting the solution, so it's only inserted for a minute. I'm just irritated from where it was inserted I guess. The whole process took less than 5 mins. The nurse told me to expect about 20% improvement by the 3rd treatment.
I hope this helps you. Ask all the questions you need to. Lord knows I'm asking them all the time

[K-lee]

thanks for replying i need all the help i can get right now. I dont talk to my dad about this because hes a typical guy and just doesnt understand. Lst night was the first time ive really talked about it with him. I told him there was no cure and he said "well when the doctor tells me that ill beleive it" Hes also said he doesnt think that i can eat the foods on the problemmatic list that i showed him trying to get him to understand. That was a wste of time. Thanks again for your reply.

:grouphug: K-lee

[ICNDonna]

K-lee, it sounds to me like it's time for your dad to go with you to your next uro appointment. You can read about bladder instillations in the Patient Handbook at http://www.ic-network.com/handbook

Donna

[Dixiefireball]

one thing that may make the installments easier is to ask the doctor to use a non latex cath. people would be shocked on how latex can really make the installments more harder on people even if they don't have a latex allegery. the latex free cath goes in much easier also ask for some type of numbbing cream there is diff ones that the uro office can use most use lidocane sp? they let it set for about five mins then they put the cath in to drain the bladder then put the installment in.
in the handbook like donna advice above also tells that most installments are only ment to be held for 20 mins but the longer the better but never hold it longer to cause your self more pain that is un real we suffer enough trying to get better.
I dont know what type of installments you are using but i use heparin, marcaine and water mixer.
the heparin helps heal the bladder lining and the marcaine numbs the bladder walls. the water i believe helps delute sp? the medicine so its not to strong on the bladder? diff uro use diff treatments however.
i would also ask for a sample anti after each treatment to try to help avoid an infection from happening.
if your having a hard time with this one installment ask them to switch them around until you find the one that will work for you without cauing you a great deal of pain.
Good luck and please take a moment to read the handbook it really has a lot of great information there and updated info. too. that is always a added plus.
if there is anything i can do for you or any advice that you think i may be able to offer please p.m me and i will do my best to try to help if i can't I will look around and find someone who can offer more advice.
be open and honest with your uro the more he knows about you the more they can help you.
sending you hugs and prayers and please don't give up on the treatments give them a fair trail time to get in your system to do there job. granted this may not be your answer but if you give it a fair trail at least you know.
Rhonda

[K-lee]

Donna,
Thanks for the reply but I dont think he will ever understand. My dad and I dont have a very good relationship. He has SO many things wrong with him and hes in pain ALL the time (he thinks he a doctor and can diagnose everyone) but it makes no sense to me that he cant understand my condition. Im makes me so mad. :mad: But it wont be much longer hopefully until I can move out and not have to deal with him. I want all of the people here to know how much I appreciate this site because Im not getting help from any where else.

Thanks guys, :grouphug:

K-lee