Lisa1129
10-26-2005, 03:39 AM
HI! My name is Lisa and this is the first time I have been to your forum. As I sit here and read your stories, I feel closer to you then even my dr. Sometimes I lay in bed thinking I am so alone. I explain things to my friends and then listen like they understand but I know Im wasting my time talking to them. If Im in alot of pain and in bed they are like why whats the matter.
I starting having problems when I developed peritinitis from having my tubes tied after my fourth child. I went to a urologist and he dialated my uretha a total of 3x's. I kept telling him it wasn't working and I think it was something else. So I went to Dr#2. He said he wasn't 100% sure it could be IC but maybe Pelvic Floor Disfunction. He did this biofeedback that a tube was inserted inside me and tiny shocks were supposed to help the muscles. Didn't work. I was in bed for 2 weeks in extreme pain and could never get an appointment and the nurse was the nastiest with me. I actually was crying in pain on the phone with her. Finally Dr#3! By this time my symptoms were severe pain, throbbing bladder, sometimes I would go 20x a day other times I couln't go at all. I had such terrible burning like an infection (but it never is) and the pressure was bad. I learned on my own that certain foods triggered it, stress, sex, travel, and exercise. If I am on my feet alot or do to much I really pay for it in the evening. And of course it peaked during my period.
The bladder scan showed that the was very little urine in my bladder yet it felt so full and throbbing. Also I get this terrible muscle pain in my legs that I don't even want to walk and this exhaustion hits me like a ton of bricks. I take at least 1 nap a day, sometime it scares me. The ditropan and valium finally would help take the edge off, he even talked about Elmiron. My dr recently had done the hydrodistention under anestethia and took a biopsy. I am still waiting for my follow up with him. The burning subsided but the pressure is still there and I still go to the bathroom alot. But I noticed now that during sex my bladder spasms so bad I have to keep stopping to go to the bathroom. I have done so much research and I really believe I have IC. I don't like to sound like a know it all. When I ask my dr he just says he thinks its a combination of alot of things! It drives me crazy. This has changed my life so much. Everything I do I have to plan around my bladder. Last Christmas I had to cancel our family vacation. There are times Im supposed to do things with the kids I can't.
If anyone has any information I would appreciate it. But more importantly thank you for giving me a place to vent my frustrations.
Lisa
I starting having problems when I developed peritinitis from having my tubes tied after my fourth child. I went to a urologist and he dialated my uretha a total of 3x's. I kept telling him it wasn't working and I think it was something else. So I went to Dr#2. He said he wasn't 100% sure it could be IC but maybe Pelvic Floor Disfunction. He did this biofeedback that a tube was inserted inside me and tiny shocks were supposed to help the muscles. Didn't work. I was in bed for 2 weeks in extreme pain and could never get an appointment and the nurse was the nastiest with me. I actually was crying in pain on the phone with her. Finally Dr#3! By this time my symptoms were severe pain, throbbing bladder, sometimes I would go 20x a day other times I couln't go at all. I had such terrible burning like an infection (but it never is) and the pressure was bad. I learned on my own that certain foods triggered it, stress, sex, travel, and exercise. If I am on my feet alot or do to much I really pay for it in the evening. And of course it peaked during my period.
The bladder scan showed that the was very little urine in my bladder yet it felt so full and throbbing. Also I get this terrible muscle pain in my legs that I don't even want to walk and this exhaustion hits me like a ton of bricks. I take at least 1 nap a day, sometime it scares me. The ditropan and valium finally would help take the edge off, he even talked about Elmiron. My dr recently had done the hydrodistention under anestethia and took a biopsy. I am still waiting for my follow up with him. The burning subsided but the pressure is still there and I still go to the bathroom alot. But I noticed now that during sex my bladder spasms so bad I have to keep stopping to go to the bathroom. I have done so much research and I really believe I have IC. I don't like to sound like a know it all. When I ask my dr he just says he thinks its a combination of alot of things! It drives me crazy. This has changed my life so much. Everything I do I have to plan around my bladder. Last Christmas I had to cancel our family vacation. There are times Im supposed to do things with the kids I can't.
If anyone has any information I would appreciate it. But more importantly thank you for giving me a place to vent my frustrations.
Lisa