has anyone ever been sick of being in pain

[emilyrose197377]

Has anyone been sick of being in pain it seems like this last 6 months it has been one thing after another and I am so frustrated and upset and I feel like no one is helping me . I feel like I just have to deal with the pain all the time. I am so fed up I wish I could catch a break . I am sorry for dumping this on you I just need someone to talk to . I just don't know what to do anymore. I just want to give up.

[poetgirl]

I'm sorry you're having such a hard time, Kim. :( I know it's been especially difficult for you, since you've had several serious and overlapping medical problems. I don't blame you for being so upset and fed up.

Please don't give up, though! Eventually, with enough persistence, you should make a breakthrough (hopefully with the help of your doctors) that will lead to less pain and better well-being.

I'm praying things will get better for you soon. You do deserve the break you need! :pray: :grouphug:

[emilyrose197377]

Thanks poet for the support.

:grouphug:

[Babs RN]

I know it has been one thing after another for you, I have been down that road lately. There are days when I feel so uncomfortable I just want to scream or remove my own bladder. I hope you catch a break soon.

Hugs,
Barb :grouphug:

[massagedoula]

I have had IC for 9 months now, and for the first 6 it was a nightmare. I used to wake up at night and vomit from the pain. It slowly started to turn the corner for me after the 6 month mark, and I was not even on any meds at that point, still doing natural therapies. It was such a slow process that I did not even really notice it, until I went to a party a few months ago and realized that I would have never been able to do that in my first 6 months of IC.

Of course I stil have pain, but it is getting better. Maybe the body compensates and slowly stops sending out the "fix it!" pain signals, and gets more into a routine of being used to it.

Now that I am taking a medication I am feeling even better. I know you could not take Elmiron but I really feel that you will start to get better both by yourself ans with what meds you are able to take. 6 months was the turning point for me. I kept a pain journal and rated each day on a scale of one to ten. I could look back and see my improvement. Sometimes I backslided but I always felt confident in the days ahead. I really feel like you will start getting slowly better over time.

[Oxana]

Dear Emily, please don't give up. I understand, how tired you are, but please have the Hope. Everything is going to be better. It is very very slow process, but it will be, please believe in it. You need to work with your doctor about it also. I will pray for you and keep you in my mind. :grouphug:

[emilyrose197377]

thanks everyone.

:grouphug:

[tigger_gal]

pain can make you physically and mentally sick, and it really sucks big time.. sometimes it takes forever to get the right combo of meds.. I hope you feel better soon..
Brat

[~*~Christine~*~]

You're not alone, I think plenty of us have/are gone/going through this. I know I've struggled with suicidal thoughts because of IC since I was 16 so I totally understand
I'm sending hugs and hope you get some relief soon, God bless :grouphug: :kissing: :angel:

[andcohen]

People just do not relize the amount of pain this thing can cause. IT'S HORIFFIC to say they least. The pain has always been my worst symptom. I have had a stinker of a week this week so I know where your comming from, infact most of us do. It is a great help to have these people here, they are the only ones who truley understand.
Take care & I hope this eases up on you soon.
Andrea :kissing:

[PenguinK]

I think we've all been there at one point or another. My saying is "I'm sick and tired of being sick and tired". I've been saying that for years and just found it as a slogan on the butyoudon'tlooksick.com site. :)

Try to keep your sense of humor and it will get you through the rough spots. I went through most of the summer with minimal flares. Now that it's back to school (I'm a TA) I'm in the middle of Mind Boggling Flares that have brought back the Vicadin and instills.

Just know that there is a light at the end of the tunnel, however dim and however long that tunnel is, you will find your relief some day. In the meantime, keep coming here for support or PM one of us for personal messages. Just remember you are not alone. :grouphug:

:angel: Sending you and angel,
KK

[JenG]

Emily :grouphug:

I can completely understand how you feel, but please hang in there and don't give up! I also use the saying "I am sick and tired of being sick and tired!" By trying different treatments, you will eventually find some combination that will help relieve the pain.

This morning I was feeling particularly down about everything I have to deal with and all the pain I am living through, then I sat down and listed all the things I am greatful for. I know it sounds corny and silly, but it did help put things in some perspective.

One of the things on my greatful list is this websight! Remember you are not alone - we are all here for you!! :grouphug:

[Kimchi]

Hey, I am sick and tired of it too! I hope you get some relief soon. I am sitting here at work, drinking tons of water and living in the bathroom. I am sending positive thoughts your way. :kissing:

[traceann]

Oh yeah Kim, this has been the year from hell for me. And it all started last November with the IC diagnosis. It was like I had all the "more minor" (ha, like any of the symptoms are minor, but you know what I mean! ;) ) symptoms and once my bladder heard IC, I think it thought it had permission to really crank into action, ugh! :cussing:

And it's been one problem after another. Now still dealing with the stupid L. colitis treatment and getting very tired of being on the steroids!!!! I am tired of taking prednisone as I have been on it now for almost 3 months, and have had a few set backs, so my weaning off is taking much longer than expected. Yeah, it's better than having all the intestinal troubles I was having, I lost so much weight, I was down to 112. But now, thanks to the prednisone I think, I am packing them on quickly. And on top of that, the doc that was treating it, retired as of last Friday. Granted she got me an appt with a GI doc, it's not until Nov 1, and the downside is it's about 2 hours away!! Like I really want my stomach doc that far away!! So, don't know what I am going to do yet, see if my internist can take over....

I too am sick and tired of being sick and tired!!! :headbang:

At least we all aren't alone... :)

[Kimchi]

Jees, you make my problems seem like a small headache. I am so sorry for you. It's bad enough having bladder probs but adding in the other end..... :loco:

[Janie Miranda]

:grouphug: :grouphug: :grouphug:
I hope you'll find something that works for you soon. You are in my thoughts and prayers.

[ibtracy]

EmilyRose;
I feel that way everyday. I'm one of many that suffer from chronic everyday severe bladder pain and it seems no matter what I do, I can't escape it. I try to do things to keep my mind off of it - but that doesn't always work either. There are MANY, MANY days where I'd like to throw in the towel but my girls (14 and 8) give me encouragement to keep going. I've going through a really rough year myself and talking and reaching out to someone, family member, friends, your ICN family, whomever and talking about it helps some. I just hope you don't run into people like I do that are so called "tired of hearing it". Just remember as hard as it might be in your worst hour, remember that tomorrow is a new day (a fresh start) and always fight to do your best and only you know how much you can or can't do. :grouphug: Cyber support hug for you. ;)

Take care of "you"!
~Tracy K.

[SADoss2]

Emily,I too understand your frustration. It seems like when you get one illness under control something else pops up. I was Diagnosed with IC a year and a half ago and still have not found the right combo for relief. To compound the problem I have a serious case of IBS, so when one flares up, it triggers the other. I have lost 90 pounds in the last 10 months so now my doctor wants to label me an anorexic. I guess I just haven't found the right doctor to treat me yet. I hope you have an understanding doc and family that can encourage you. Please feel free to private message me anytime. You will be in my prayers.

[DENISE31]

I Feel Your Pain! I Have Just Got Out Of The Hospital From Having A Very Bad Flare Up. I Am Still Hurting But Learning More And More To Deal With It. My Husband And I Just Adopted 2 Year Old Twins Last Year And They Don't Understand When Mom Is Hurting. I Go To A Pain Specialist Oct. 31st, I Just Pray That He Can Help. My Prays Is With You

[Amyinagony]

Denise...CONGRATS on the adoption of twins!!!

Emily- I too feel your pain. As someone else has already said, chronic pain is mentally, emotionally and physically draining!! It can really take a toll on you. I suffered severe pain (5yrs) from my IC before I was diagnosed. I ran into the most unsympathetic people, (not that I was looking for sympathy, just understanding and help) (including some physicians and healthcare workers-go figure?) ones who just don't get it, who have never felt the kind chronic pain that we do (and it can be nasty!!), ones who have never been on the Merry-Go-Round of searching for help (which seems to never stop). I too, like Christine, considered the 'real' end. I was tired of being in the pain I was in, not being able to do anything, go anywhere (except Dr appts and ERs when I was in too much pain the handle at home) and not getting any help. Not a pretty sight at all, not a good feeling at all. Emily-I do understand. But...PLEASE do not give up. There IS help out there for you, you do have a family right here to lean on. Lean all you want, we are here for you. Be persistant, work with your doctor, tell your doctor how you are feeling, listen to music (my favorite was a CD by Anne Murray-"It's a Wonderful World"), talk to friends/family, but please don't give up.
Sending you tender :grouphug: cyber hugs
WE UNDERSTAND AND WE CARE! :kissing:

[traceann]

Thanks Kimchi, yes it can be a bugger that's for sure! One day I said something to my husband as he was trying to get me to eat or drink something or other, and I made the comment, "can't drink/eat that, it'll make me have to pee more!" He said, trying to make me laugh, "well, why not you're going to be in the bathroom anyway!", lol.

Funny how we all just have to vent it out sometimes isn't it? I mean, we all get so weary of being sick in one form or another, it's just so frustrating sometimes. But I have to say, this place and all of you are the cure for those blues 10 times out of 10!!! :)

Hugs!

[Kimchi]

I agree. This is definitely the place for a helping hand and people to lean on. I can't believe I had not found this sooner! But glad I did find it. I think all doctors that diagnos IC should direct their patient's here. There are no support groups in my area but this is as good as any. Probably even better. :grouphug:

[traceann]

Oh I completey agree! :)

Hugs!

[Amyinagony]

I don't have a support group in my area either, for me this IS my support, and couldn't be more grateful to have this site and everyone here.

Emily-
As you can see, there are a lot of shoulders here (to cry on, to vent), and a lot of tender loving people here to lean on. Hang in there my friend. :kissing:

[Teddysmom]

I think I know what you are going through. I have some of the same problems and have been in distress since July 4th. Now my stomach problem is worse than the bladder. I'm having an upper GI tomorrow. I hope that doesn't make me worse. I guess I'm trying to say, your'e not alone! Because I'm right there with you.

[traceann]

Oh gosh Teddysmom! I am wishing you good luck with the procedure! I too have been going through a phase of finding out what my stomach distress was -- Lymphocytic Colitis, ugh. I understand what you mean too -- my gut was screaming way louder than my bladder!! LOL Hopefully you will get answers and then treatment!! I sure hope you start feeling better soon!!!

Keep us posted please!!!!

[Michelle in KC]

Emily, you and I sound like we should be twins! I also feel like I have to deal with everything and am in constant pain.

hugs to you.
Michelle.

[emilyrose197377]

Thanks everyone and good luck Teddy with your stomach tests . You are in my thoughts and prayers.

[Teddysmom]

Thanks, I'll let you all know how it turns out. I hope I'm not doing more damage........