View Full Version : Homebound?
MissCasey1055
08-30-2005, 06:19 PM
Can you guys post about you or your kids being homebound and how it's a good thing? I'm trying to persuade my parents into letting me be homebound, but they're not budging. My dad says I'm just giving into the disease, but once again.. he doesn't understand. at all. You can't just ignore it and I'm tired of having to leave class 50 times to go to the bathroom because I miss everything. So, if you guys could help me out. I'm going to show this thread to my mom. =)
Babs RN
08-31-2005, 03:57 AM
Casey,
I did homebound my freshman year of high school for a semester due to endometriosis. I was 14 or 15. I still graduated at the top of my class and went to a private university and graduated in 4 years. The good thing for me was that when the tutor came, I was able to devote all my energy to school work and didn't have to flood my brain with thoughts of how to get through the day If you have anyother questions you can PM me or post here. I would be happy to answer them. It was almost 20 years ago(cripes, was I really a freshman that long ago)but I will try to remember.
Hugs,
Barb :grouphug:
Imustpee
08-31-2005, 04:06 AM
Back when I was in high school in the 70's, no one knew what I had..I suffered greatly at school and esp on the bus trip home as I was the last stop.....being in P.E. was horrible..we had to run, and do all those excercises...I RAN to the bathroom after EVERY class, before lunch and when lunch was almost over..before I got on the bus and as soon as I got home....long bus trips to away football games? forget that....assemblies were a NIGHTMARE..it all was a nightmare..it still is a nightmare..I look back at my childhood and all my school years including 2 years of college....they were all like this..I have suffered all my life with this horrible disease. After 39 years of my bladder running every single aspect of my life, after a year of the most aggressive treatments I am having my bladder removed.
ICNDonna
08-31-2005, 04:50 AM
I suggest you talk with your doctor about this. He/she may be able to help you.
Donna
MissCasey1055
08-31-2005, 08:41 AM
Back when I was in high school in the 70's, no one knew what I had..I suffered greatly at school and esp on the bus trip home as I was the last stop.....being in P.E. was horrible..we had to run, and do all those excercises...I RAN to the bathroom after EVERY class, before lunch and when lunch was almost over..before I got on the bus and as soon as I got home....long bus trips to away football games? forget that....assemblies were a NIGHTMARE..it all was a nightmare..it still is a nightmare..I look back at my childhood and all my school years including 2 years of college....they were all like this..I have suffered all my life with this horrible disease. After 39 years of my bladder running every single aspect of my life, after a year of the most aggressive treatments I am having my bladder removed.
oh, I'm so there! My day is basically planned around when I can get to the bathroom
~*~Christine~*~
08-31-2005, 09:04 AM
lol, our lives are quite similar :)
I also have a father who's not fully understanding of IC so he's like "when are you going to finish school and have a life?", heck no dad, I just LOVE having no life and not being able to leave the house! :rolleyes:
I've been 'homebound' off and on since my IC got really bad, at 16. I'd leave in the middle of semesters than go back and do the same thing, I just couldn't handle it. I'm 21 and still have to finish a few more credits for my high school diploma, which I will do online in the fall. I'm also still living with my parents and am on disability to pay for things that my parents insurance don’t pay for such as catheters and lidocaine that I have to use daily.
This is a very adult decision so if you believe that it's so bad that you wont be able to sit through classes or/and concentrate because of the pain you should stay at home. If your parents don't believe you have them come in to your next urology appointment so your urologist can explain it to them. My mom always comes with me so she knows the severity of the pain and mental anguish it causes
Good luck to you in whatever you do and God bless :kissing:
To Casey's mom and dad: your daughter isn't exaggerating. IC can be a very painful and disabling disease; even very strong painkillers such as morphine and Demerol barely work to help the pain.
Although the symptoms are not on the surface like others with disabilities I can assure you that inside we are truly suffering to the point that many of us struggle to do day-to-day things that ‘healthy people’ take for granted
MissCasey1055
08-31-2005, 09:15 AM
lol, our lives are quite similar :)
I also have a father who's not fully understanding of IC so he's like "when are you going to finish school and have a life?", heck no dad, I just LOVE having no life and not being able to leave the house! :rolleyes:
I've been 'homebound' off and on since my IC got really bad, at 16. I'd leave in the middle of semesters than go back and do the same thing, I just couldn't handle it. I'm 21 and still have to finish a few more credits for my high school diploma, which I will do online in the fall. I'm also still living with my parents and am on disability to pay for things that my parents insurance don’t pay for such as catheters and lidocaine that I have to use daily.
This is a very adult decision so if you believe that it's so bad that you wont be able to sit through classes or/and concentrate because of the pain you should stay at home. If your parents don't believe you have them come in to your next urology appointment so your urologist can explain it to them. My mom always comes with me so she knows the severity of the pain and mental anguish it causes
Good luck to you in whatever you do and God bless :kissing:
To Casey's mom and dad: your daughter isn't exaggerating. IC can be a very painful and disabling disease; even very strong painkillers such as morphine and Demerol barely work to help the pain.
Although the symptoms are not on the surface like others with disabilities I can assure you that inside we are truly suffering to the point that many of us struggle to do day-to-day things that ‘healthy people’ take for granted
Thanks so much! I'm really hoping my dad will finally understand this stuff. This morning he yelled at me and told me it was all in my head. :cussing: It makes me angry because I just love sitting around my house not being able to move because it hurts so bad.
~*~Christine~*~
08-31-2005, 09:20 AM
No problem :)
I hope it helps opens his eyes because saying "it's all in your head" doesn't make the pain go away, it just makes people angry. On the same note, who would lie about having pain in their 'bladder'?! :loco:
MissCasey1055
08-31-2005, 09:20 AM
No problem :)
I hope it helps opens his eyes because saying "it's all in your head" doesn't make the pain go away, it just makes people angry. On the same note, who would lie about having pain in their 'bladder'?! :loco:
exactly!
Imustpee
08-31-2005, 09:26 AM
To Miss Casey's parent....please listen to your daughter...what she is telling you is true... there is no "Giving in" to I.C....It controls you, everyday and every night. ..I.C. is the absolute worst thing that could happen to anyone. It takes everything from you..finding a toliet is all we live for..My bladder capcaity is 2.9 ounces..go see just how much that is in a measuring cup..as my bladder fills past a few drops worth of urnine it starts to hurt, more and more and more,,finally it's all I can think about..the NEED to pee is so overwhelming because inside our bladders we have raw open sores called glomerulations...some of us have Hunner's ulcer's...these are even worse....they never heal ..imagine having terrible road rash from falling off your bike and then I come over and pour lemon juice in it...You would want to run and rinse it with water wouldn't you? ..Then after 3 minutes I pour more lemon juice on it...and so on and so on, everyday for the rest of your life....this is a little of what I live with everyday....my dad FINALLY understood yesterday after 39 years how serious this disease is and how much it has affected my quality of life.....my parents came with me to my uros appointment...my doctor told them my bladder has crippled me....I can't do anything anymore..and he is now behind me with my choice to get my life back, one which I have never had.
Here is a copy of a letter I sent yesterday to Dr Pritchett at Virginia Mason hospital in Seattle...this doctor specializes in bladder removal...please read it as this could very well be the same path your daughter will end up following if you can't support her and make sure she get's all the oppourtunities for medicines and treatments...one of the worst things I had to deal with was my parents NOT believeing me...that hurt as bad as the I.C...
Dear Dr Pritchett;
I am praying that this letter will help you understand my anguish and frustration and that you will decide to help me with my request. I want my bladder removed.
I have had I.C. since I was 6 years old. First symptoms started when I was in Kindergarten in 1966, I will be 45 next month. I have suffered with I.C. for 39 years. I have no life. Days are spent doing nothing but running to the toilet. I can’t work. I can’t collect Social Security Disability because I haven’t worked enough. On good “ I.C. days I pee 20 – 30 times a day and 3 – 7 times at night, when I flare I pee 50 – 60 times a day and this last Friday night I was using the toilet 17 times after I went to bed. I got out of bed at 11:00 to give myself another Elmiron instill. I am always exhausted. I am miserable and in pain. I always feel the urge to urinate, and then when I do, I stand up and urine dribbles down my legs. I can’t eat hardly anything but the blandest of foods. I can’t drink anything but water. I can’t take bubble baths, wear blue jeans or panty hose. I wear old lady stretch pants, I hate them. I can’t even walk my dog, go to the gym, and sit through a movie or a nice dinner out with my family. Airplanes and car trips are a nightmare. I carry a female urinal in my car.
My parents took me to many Navy doctors. They told them I would grow out of it, then later that my bladder was just small. My dad was career navy and we moved allot. Dad wouldn't stop the car every 30 minutes so I could pee so mom brought a Folgers Coffee can for me to pee in. How humiliating. Right there in the back seat next to my brother and sister. I felt like a freak. In 1976 when I was 16, mom took me to Madigan Army Hospital to see a specialist in urology. He took x-rays, injected dye into my arm to watch it travel through my system, then they filled my bladder with water and told me to "Pee". This is while I was lying on the table under the x-ray machine. I couldn't do it, and I finally couldn't stand the pain anymore and got up and went into the bathroom. This Dr told me I had "I.C' and he was going to give me a D.M.S.O. treatment. He did, but he didn't get it into my bladder. When I got up off the table it ran down my legs and soaked my socks and I reeked all the way home. That was my first D.M.S.O. treatment. The years past and I just lived with it, what else could I do? I heard comments all the time like " How can you possibly have to pee again? You just went! I made up excuses to go to the bathroom so people wouldn't think I was crazy. I had to pass on so many things, job offers, and trips hiking or boating. My bladder ran my life. It still does. I can't stand it.
When I was in my mid 30's I tried another urologist. He too started me on D.M.S.O. treatments. also known in my house as " Mom is getting the stink treatment again. RUN! After several stink treatments with little results I quit going. Why bother? It didn't help. Life went on and so did my average 30 minutes during the day and 5 - 8 times a night bathroom trips. This was my life. I knew nothing different. I often thought that I had been in the bathroom more times than all my family members combined. sad huh? My poor husband never complains. He will gladly stop whenever I needed to go.
July 2004 I thought about seeing the Dr again. I wasn't sure why, after all he hadn't been able to help me in the past, but something told me to go. I had to find a new Dr since my old one retired (Probably on all that money he made giving me stink treatments.hahha). The new Dr seemed surprised when I told him I had I.C.he said, " Oh, what makes you think you have that?” I told him my life's story, just as I am telling you. He agreed that yes, I surely did have it and he also told me that he knows of no other patient that has lived with I.C. so long. I hold the "Office I.C. Record".
My new Dr Theodore Johnsrude told me I was going to be very happy. I said " Oh yeah"? And why is that"? He told me about Elmiron. I was excited. We started in - bladder treatments that day. I came for them 3 times a week for 5 weeks, 2 times a week for 5 weeks, 1 time a week for 5 weeks... and I also take 4 - 100mg Elmirons a day, and 25 - 50 mgs of Hydroxizine. That first night I slept 5 hours straight!! I have NEVER done that before!! I was so happy, and that is the greatest thing that has ever happened to me! When I told my dad how great my night was after the first in bladder treatment, he told me " That's good honey" "You just need to get out of that bad habit" After all the office instills were over I had 3 months of remission that ended in June and now it's back. It’s worse than ever. I have been in a 6-week flare peeing every 15 minutes. I cannot hold more than 3 oz's with out being in terrible pain. I was doing instills 2 times a day on most days...nothing helped. Dr Garvin performed a Cysto/hydro this last Thursday. Bladder capacity is less than 100 cc, and I have many glomerulations...he was able to distend it to 450…. Dr Johnsrude told me I have the worst case he has seen. I now take 6 – Elmiron capsules, 25 – 50 mgs of hydroxizine, aloe Vera gel, self cath instills, tums, Vicodin as needed, prelief, and the others listed below as needed. I am on my second week of antibiotics for yet another infection. Then next month or next week there will be another flare and another infection.
This disease has taken everything from me. When do I get to live my life pain and bathroom free? I have talked seriously with my family about this choice I have made. I have all their support. I cannot see and reason to keep this diseased defective bladder. I want to drink a big glass of ice-cold lemonade. I want to have a Hazelnut latte and a piece of chocolate cake. I want to have tacos and margaritas. I want to have BBQ, pizza and beer, orange juice and coffee, lemon meringue pie, bubble baths, spaghetti and red wine, oranges, pineapple, hot chocolate, mustard, onions and tomatoes on my hamburger. I want to wear blue jeans. I have gained 27 pounds on the meds. I tried going to the gym but I ended up having to pee every 10 minutes, and more flares. I want to exercise, go to the gym, walk my puppy, have sex with my husband without pain and days of agony afterwards. I want to be normal. I deserve to have a life. Please, I have suffered enough.
Here is a list of medications I am currently taken or have taken this year.
Ditropan XL
Nortriptyline
25 – 50 mg Hydroxizine
Elmiron, 4 – 6 caps daily
Cysta-Q
Aloe-Vera
DMSO
Prelief
Celebrex
Prilosec
Claritin,
Benedryl
diuretics
Ibuprofen
Oxycodone
Hydrocodone
Elmiron cocktails --- Elmiron Sodium bi-carb Lidocain
Tums
Lo-estren
Hydro distention
Cystoscopies
Acupuncture
Cipro
Amoxicillin
I hope this letter puts more of a human element to me and my story. That’s why I wanted to write it. I knew that just the medical records alone wouldn’t tell you about me, the real person and how hard and difficult my life has been. I am to see both Drs tomorrow (Aug 30th) and I will sign a release so you can see my medical records. What will be sent is my history with these 2 uros only, but I wanted you to see that my struggle with I.C. goes back so much further. When I called your office this morning I was referred to another doctor that specializes in I.C. . I told them no. I do not need or want to see another I.C. doctor. I have seen enough I.C. doctors and they have done all they can for me. I know everything there is to know about it. I want to see you. You are the one that can help me. I want my bladder removed. Please, help me. Don’t I deserve to have a life?
~*~Christine~*~
08-31-2005, 09:41 AM
OMG Imustpee, I actually got teary-eyed reading your life story :(
I...don't know what to say but sorry, you didn't deserve to go through that, no one does, especially by their own parents. I hope you finally get your bladder removed so you can start living your life :grouphug:
MissCasey1055
08-31-2005, 09:44 AM
OMG Imustpee, I actually got teary-eyed reading your life story :(
I...don't know what to say but sorry, you didn't deserve to go through that, no one does, especially by their own parents. I hope you finally get your bladder removed so you can start living your life :grouphug:
I agree! Yours should be a big help for me. Thanks so much!
Imustpee
08-31-2005, 09:48 AM
You are very welcome..I hope it helps you
MissCasey1055
08-31-2005, 09:53 AM
I'm sure it will! And another one of my big things about not wanting to be at school, I hate having to explain to my friends and other people at school what's wrong with me because it's kind of embarassing. I'm 17 years old and I have to pee every 5 minutes. People tend to notice when you leave your class, which is only 47 minutes long, 20 times before it's over. Then I'm missing everything that's going on and if the teachers lecturing, forget about it. I can't really interrupt him to say i need to go to the bathroom. So I sit there in pain and I can't concentrate on anything he's saying. Basically, I'm not learning anything at all at school because of that. I'm trying to get it to where I can do homebound half a day, 4 classes, and then my mom takes me to my tech school at noon. At my tech school it's not a structured class. I do graphics and photography and I can go to the bathroom anytime I need to. Especially since it's my senior year. I already know everything I'm supposed to be doing and how to do everything, so it's not a problem. And as long as my doctor signs the paper for that, it'll work. What do you guys think?
Imustpee
08-31-2005, 10:00 AM
when I was 17 and a senior school was so very hard...I.C. was unknown ..I didn't know what to tell people so I made up excuses..." I have to go adjust my bra strap"..I have something in my eye"..I am going to go fix my hair"..my hands feel dirty, I need to wash them":..you get the drift.... so mom wrote notes to my teachers. They said " Please excuse Lesa if she needs to use the restroom..she has "bladder trouble"..The notes usually didn't work for long and I got dirty looks from teachers because I would just get up and leave... seems I got into alot of trouble for that and there were meetings with the principals about it..
Imustpee
08-31-2005, 10:12 AM
Here is what I just sent to your mom...it is too long so I will submit it in 2 postings...
To Miss Casey's parents:
My name is Lesa McCabe and I met your daughter this morning on the I.C.N. board...she is a lovely young woman, and I enjoy talking with her. She posted about how hard school is for her., and I responded with my experiences of schools and I.C...
....please listen to your daughter...what she is telling you is true... there is no "Giving in" to I.C....It controls you, everyday and every night. ..I.C. is the absolute worst thing that could happen to anyone. It takes everything from you..finding a toliet is all we live for..My bladder capcaity is 2.9 ounces..go see just how much that is in a measuring cup..as my bladder fills past a few drops worth of urine it starts to hurt, more and more and more,,finally it's all I can think about..the NEED to pee is so overwhelming because inside our bladders we have raw open sores called glomerulations...some of us have Hunner's ulcer's...these are even worse....they never heal ..imagine having terrible road rash from falling off your bike and then I come over and pour lemon juice in it...You would want to run and rinse it with water wouldn't you? ..Then after 3 minutes I pour more lemon juice on it...and so on and so on, everyday for the rest of your life....this is a little of what I live with everyday....my dad FINALLY understood yesterday after 39 years how serious this disease is and how much it has affected my quality of life.....my parents came with me to my uros appointment...my doctor told them my bladder has completely crippled me....I can't do anything anymore..and he is now behind me with my choice to get my life back, one which I have never had. I am 44 and they are 67. That's a long time to not be believed. It made me feel terrible and sad. I am basically homebound these days...funny thing is I look completely healthy on the outside...no one believes just how sick I am.
Here is a copy of a letter I sent yesterday to Dr Pritchett at Virginia Mason hospital in Seattle...this doctor specializes in bladder removal...please read it as this could very well be the same path your daughter will end up following if you can't support her and make sure she get's all the oppourtunities for medicines and treatments...one of the worst things I had to deal with was my parents NOT believeing me...that hurt as bad as the I.C...and no treatments available...
Dear Dr Pritchett;
I am praying that this letter will help you understand my anguish and frustration and that you will decide to help me with my request. I want my bladder removed.
I have had I.C. since I was 6 years old. First symptoms started when I was in Kindergarten in 1966, I will be 45 next month. I have suffered with I.C. for 39 years. I have no life. Days are spent doing nothing but running to the toilet. I can’t work. I can’t collect Social Security Disability because I haven’t worked enough. On good “ I.C. days I pee 20 – 30 times a day and 3 – 7 times at night, when I flare I pee 50 – 60 times a day and this last Friday night I was using the toilet 17 times after I went to bed. I got out of bed at 11:00 to give myself another Elmiron instill. I am always exhausted. I am miserable and in pain. I always feel the urge to urinate, and then when I do, I stand up and urine dribbles down my legs. I can’t eat hardly anything but the blandest of foods. I can’t drink anything but water. I can’t take bubble baths, wear blue jeans or panty hose. I wear old lady stretch pants, I hate them. I can’t even walk my dog, go to the gym, and sit through a movie or a nice dinner out with my family. Airplanes and car trips are a nightmare. I carry a female urinal in my car.
Imustpee
08-31-2005, 10:14 AM
My parents took me to many Navy doctors. They told them I would grow out of it, then later that my bladder was just small. My dad was career navy and we moved allot. Dad wouldn't stop the car every 30 minutes so I could pee so mom brought a Folgers Coffee can for me to pee in. How humiliating. Right there in the back seat next to my brother and sister. I felt like a freak. In 1976 when I was 16, mom took me to Madigan Army Hospital to see a specialist in urology. He took x-rays, injected dye into my arm to watch it travel through my system, then they filled my bladder with water and told me to "Pee". This is while I was lying on the table under the x-ray machine. I couldn't do it, and I finally couldn't stand the pain anymore and got up and went into the bathroom. This Dr told me I had "I.C' and he was going to give me a D.M.S.O. treatment. He did, but he didn't get it into my bladder. When I got up off the table it ran down my legs and soaked my socks and I reeked all the way home. That was my first D.M.S.O. treatment. The years past and I just lived with it, what else could I do? I heard comments all the time like " How can you possibly have to pee again? You just went! I made up excuses to go to the bathroom so people wouldn't think I was crazy. I had to pass on so many things, job offers, and trips hiking or boating. My bladder ran my life. It still does. I can't stand it.
When I was in my mid 30's I tried another urologist. He too started me on D.M.S.O. treatments. also known in my house as " Mom is getting the stink treatment again. RUN! After several stink treatments with little results I quit going. Why bother? It didn't help. Life went on and so did my average 30 minutes during the day and 5 - 8 times a night bathroom trips. This was my life. I knew nothing different. I often thought that I had been in the bathroom more times than all my family members combined. sad huh? My poor husband never complains. He will gladly stop whenever I needed to go.
July 2004 I thought about seeing the Dr again. I wasn't sure why, after all he hadn't been able to help me in the past, but something told me to go. I had to find a new Dr since my old one retired (Probably on all that money he made giving me stink treatments.hahha). The new Dr seemed surprised when I told him I had I.C.he said, " Oh, what makes you think you have that?” I told him my life's story, just as I am telling you. He agreed that yes, I surely did have it and he also told me that he knows of no other patient that has lived with I.C. so long. I hold the "Office I.C. Record".
My new Dr Theodore Johnsrude told me I was going to be very happy. I said " Oh yeah"? And why is that"? He told me about Elmiron. I was excited. We started in - bladder treatments that day. I came for them 3 times a week for 5 weeks, 2 times a week for 5 weeks, 1 time a week for 5 weeks... and I also take 4 - 100mg Elmirons a day, and 25 - 50 mgs of Hydroxizine. That first night I slept 5 hours straight!! I have NEVER done that before!! I was so happy, and that is the greatest thing that has ever happened to me! When I told my dad how great my night was after the first in bladder treatment, he told me " That's good honey" "You just need to get out of that bad habit" After all the office instills were over I had 3 months of remission that ended in June and now it's back. It’s worse than ever. I have been in a 6-week flare peeing every 15 minutes. I cannot hold more than 3 oz's with out being in terrible pain. I was doing instills 2 times a day on most days...nothing helped. Dr Garvin performed a Cysto/hydro this last Thursday. Bladder capacity is less than 100 cc, and I have many glomerulations...he was able to distend it to 450…. Dr Johnsrude told me I have the worst case he has seen. I now take 6 – Elmiron capsules, 25 – 50 mgs of hydroxizine, aloe Vera gel, self cath instills, tums, Vicodin as needed, prelief, and the others listed below as needed. I am on my second week of antibiotics for yet another infection. Then next month or next week there will be another flare and another infection.
This disease has taken everything from me. When do I get to live my life pain and bathroom free? I have talked seriously with my family about this choice I have made. I have all their support. I cannot see and reason to keep this diseased defective bladder. I want to drink a big glass of ice-cold lemonade. I want to have a Hazelnut latte and a piece of chocolate cake. I want to have tacos and margaritas. I want to have BBQ, pizza and beer, orange juice and coffee, lemon meringue pie, bubble baths, spaghetti and red wine, oranges, pineapple, hot chocolate, mustard, onions and tomatoes on my hamburger. I want to wear blue jeans. I have gained 27 pounds on the meds. I tried going to the gym but I ended up having to pee every 10 minutes, and more flares. I want to exercise, go to the gym, walk my puppy, have sex with my husband without pain and days of agony afterwards. I want to be normal. I deserve to have a life. Please, I have suffered enough.
Here is a list of medications I am currently taken or have taken this year.
Ditropan XL
Nortriptyline
25 – 50 mg Hydroxizine
Elmiron, 4 – 6 caps daily
Cysta-Q
Aloe-Vera
DMSO
Prelief
Celebrex
Prilosec
Claritin,
Benedryl
diuretics
Ibuprofen
Oxycodone
Hydrocodone
Elmiron cocktails --- Elmiron Sodium bi-carb Lidocain
Tums
Lo-estren
Hydro distention
Cystoscopies
Acupuncture
Cipro
Amoxicillin
I hope this letter puts more of a human element to me and my story. That’s why I wanted to write it. I knew that just the medical records alone wouldn’t tell you about me, the real person and how hard and difficult my life has been. I am to see both Drs tomorrow (Aug 30th) and I will sign a release so you can see my medical records. What will be sent is my history with these 2 uros only, but I wanted you to see that my struggle with I.C. goes back so much further. When I called your office this morning I was referred to another doctor that specializes in I.C. . I told them no. I do not need or want to see another I.C. doctor. I have seen enough I.C. doctors and they have done all they can for me. I know everything there is to know about it. I want to see you. You are the one that can help me. I want my bladder removed. Please, help me. Don’t I deserve to have a life?
.
Back when I was in high school in the 70's, no one knew what I had..I suffered greatly at school and esp on the bus trip home as I was the last stop.....being in P.E. was horrible..we had to run, and do all those excercises...I RAN to the bathroom after EVERY class, before lunch and when lunch was almost over..before I got on the bus and as soon as I got home....long bus trips to away football games? forget that....assemblies were a NIGHTMARE..it all was a nightmare..it still is a nightmare..I look back at my childhood and all my school years including 2 years of college....they were all like this..I have suffered all my life with this horrible disease. After 39 years of my bladder running every single aspect of my life, after a year of the most aggressive treatments I am having my bladder removed
MissCasey1055
08-31-2005, 10:36 AM
Thank you so much. =) :grouphug:
Imustpee
08-31-2005, 10:45 AM
Your welcome...let me know how it goes.... :)
MissCasey1055
08-31-2005, 10:49 AM
Your welcome...let me know how it goes.... :)
def. will! Thanks again. I'm gonna have my mom make another appointment with my Uro soon so i can talk to him about the homebound and see if there's any meds for my insomnia/hypersomnia.
Imustpee
08-31-2005, 10:50 AM
If your mom and dad go with you to your appts and hear what the dr says they will take you much more seriously..
MissCasey1055
08-31-2005, 11:01 AM
If your mom and dad go with you to your appts and hear what the dr says they will take you much more seriously..
Hopefully. lol. I just want them to try out homebound for just a little while and see how it works cause i can guarantee they'll see a difference in my grades. i'll be able to concentrate, and it'll save me the humility of getting up every 5 minutes at school to go to the bathroom, or worse, not making it to the bathroom.
If they are concerned about your grades.... my brother was taught homebound for a year when he had horrible stomach pain and headaches. He now has a Ph.d. in Psychology so I'd say he's doing just fine. ;)
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