cystoscopy

[kazi]

I was just wondering in the last few months i've recently had a cystoscopy.however when the results came back all the doctors found was a smll bit of scar tissue in my bladder and trabacula (i think it was called) its a bacteria.Since then the bacteria has been treated and gone. However im still getting pain of which i feel seems like the pain thats described as IC on here. Only problem is whats confusing me is that i asked my doctor if he thought i had IC and he said it was very unlikely because he said it would have been picked up during the cystoscopy?? Is this correct is this how IC is then diagnosed? Or can it be overlooked somehow?? And if its not IC then what else does anyone think it could be?? please help me i dont know what to do!!

[Sarojini]

Did you have a cystoscopy in the doctor's office, or did you have a cystoscopy with hydrodistention (stretching of the bladder with water) in the hospital under anesthesia?

Often, in-office cystoscopies miss the classical signs of IC (pinpoint bleeding, etc). Usually, it is only when the bladder is distended under anesthesia that these signs become apparent.

You may want to get a second opinion and see how it goes from there if you are still in pain :grouphug:

[kazi]

yes i had it done in hospital with hydrodistention under anesthesia.And the results came out that all i had was a bit of bacteria as well as scar tissue from previous UTI's.So in most cases would you or anyone for that matter say that IC is mostly diagnosed and found during this procedure??

[sweetangel2080]

Yes they would have been able to tell about inflammation or signs of IC through the hydro
What kind of pain do you have and have you told the doctor about it and how it is still there after the antibitiotics?
You may find the procedure itself caused pain for a week or two

[ICNJess]

IC is generally dx'd through a cysto/hydro, but some people are dx'd through the Potassium Sensitivity Test. I had scar tissue in my bladder, too, but the doc said it was from IC.

[Ginny]

Did you get a copy of the biopsy report? Hopefully he did a biopsy. That is where it would say you have inflammation.

Ginny

[kazi]

Yes i dont believe that from what i was told that i've had a biopsy done. The only thing that was said to me was that all they found in there was some bacteria. And yes since then i've been on bactrim that had helped me a bit, compared to what i had before. I had my cystoscopy donelast year in october since then i would say that the pain has stayed the same.The thing is ive seen numerous urologists and they said that if i had IC they would have picked it up during the cystoscopy that i had. So all the doctors i've seen have said they have pretty much ruled it out....So why am i still in pain?? because my symptoms seem to be the same as what most are experiencing on here.. Plus i have suffered with UTi's all my life.. since i have been little iv been in and out of hospital suffering with urinary problems, so all this is nothing new to me... But its new in the sense that now it seems to be like at least a few times a week i feel like i have the feeling of a uti...when i drink water it seems to go away.. and then when i go to the doctors and get tested theirs never any bacteria... So i mean could the doctors be wrong ruling out the fact that i dont have IC? Is it easily missed under cystoscopy's?Or because i've been having these problems all my life could i ahve somthing different?? What does everyone else think?? And how is your potassium count procedure done to be able to tell if you have IC??

God sorry everyone you all must think im so annoying writting all this.. it's just that ii feel so alone i dont know what to do!!!

thankyou kazi

[helenprestegard]

Hi Im not used to writing on these pages yet, but I have had urinary tract infections for 6 yrs. I am moving to Perth at xmas , Can anyone give me the address of a good urologist there, one that Believes in IC. I also read that one of you ladies had been told IC is diagnoised with a bladder distention and BIopsy. IC cannot be diagnised by an hydro distention or Biopsy! IC can only be diagonised by a serious of questions your uro can ask you to eliminate other uro problems. This I have learned the hard way, unfortunatly IC can not be seen, which is one of the problems, a lot of urologists have in accessing it. I feel now if I walk into a doctor and they dont believe in my symptoms, I quickly turn and run, and find one that does believe in this very painful disease.