View Full Version : I get so jealous!
08-18-2005, 06:39 AM
Hello again, I seem to of been posting alot recently but I just keep getting questions and the support from this forum feels wonderful!!
I don't know if anyone else ever feels like this but sometimes I just feel so jealous of all my NON IC friends (which is all of them-don't actually know anyone with IC apart from you guys obviously) :) Sometimes they can be so inconsiderate I feel completley jealous when they talk of how much they enjoy sex and how they can so freely pick up a glass of wine go on long trips etc. I just so badly want to be like that I just feel like a freak sometimes with this awful disease! I REALLY hope they can find a cure for it soon! I find it really hard to hold together a relationship I guess its true when they say sex is only ever an issue when your not having any! I have lost so many friends to because I cant go out and socialse as much any more.
Heres hoping for a better day!
Thanks for listening
Leanne x x
08-18-2005, 06:52 AM
I know what you mean! When I used to be in pain all the time, I'd watch people or watch t.v. and everyone would carry on their day to day lives without a care in the world about their bladder. I'd see people plop down in chairs, drink wine, ride horses, etc. and I'd be so envious. I'm much better now after years of treatment though.
Right there with you guys. Since I have not been at work lately I am addicted to the Food Network..Been cooking for my hubby. Very hard to cook all these new dishes for him and not be able to eat all of them. I do miss sex too...more than the food..Just know we all uderstand how ya feel.
08-18-2005, 07:33 AM
While sex may be out of the picture temporarily, there are other ways to be intimate :) I know it may not be the same, but at least you will be close to the one you love. Give loving massages and curl up on the couch together and cuddle...as for the food & drink...I miss Wild Cherry Pepsi!!!!
08-18-2005, 07:56 AM
This is not meant to feel or be offensive so I apologize in advance if anyone takes offense. I do not ever feel jelous of anyone, if anything I think I'd rather suffer than have the people I love most suffering. My friends some maybe not as good as others, know everything about my life and in no way ever make me feel bad about it. I have surrounded myself w/ people that are good for me and if anything I do my best to be happy for others who are healthy. I know I couldn't probably stand it from being on the healthy end watching my family suffer so I just try to look at it that way. I do however get quite upset when people think I have it made in my life to collect money and not work. Far from it. I consider myself fortunate and do whatever it takes to feel positive cause when I break I really break down. PEACE and JOY, WELLNESS WELLNESS WELLNESS!
08-18-2005, 09:29 AM
We don't want to transfer our pain to other people. We just long for the days when we were "normal" like the people we see around us. I wasn't really talking about my family...just people I see from day to day around me and on t.v.
08-18-2005, 10:14 AM
I'm very fortunate --- I have friends who understand and look after me. If we're working on a project, I don't dare lift anything or there will be a dozen hands there taking whatever it is away from me.
And it's very possible to have a very close relationship. I honestly think my husband and I are much closer than we would be if we hadn't had to work for a physical relationship. It takes a lot of give and take, a lot of open communication and a lot of love, but it's 100% worth every minute.
We've lived with my IC for thirty years now and through my husband's open heart surgery and his two major back surgeries and we have a closeness I never could have imagined.
08-19-2005, 06:42 AM
Please pray for me please. I've been without Internet since yesterday and feel so lost not having had any contact w/ this board as I have come to feel quite comfy here. We're on our way out of town and I am so desparately hoping for a no flare time, I'm following every diet rule on this trip and ask if you could pray for me I'd be grateful. Donna thanks for sharing your post there and when I come back if I could chat w/ you, makes me feel real hopeful after your writing about what you've been through so thanks for that! Most appreciated! PEACE, JOY and WELLNESS WELLNESS WELLNESS!
09-05-2005, 01:00 PM
I feel so disconnected from my husband. We rarely have sex at all anymore. It is not just the pleasure that I miss, it is the closeness.
09-05-2005, 01:50 PM
My mom told me to " Just hold it a little longer" the other day...I have explained and explained this disease to my parents, she was even at my uro's appt last week when we agreed on bladder removal.... :bonk: ..sheesh...anyways only 6 more days until my consult with the urosurgeon in Seattle...I can't wait to get this defective diseased worthless thing out of my body! I am still peeing 45+ times a day and capacity is now about 2 oz...I am counting the hours...
09-25-2005, 06:46 PM
I know exactly how you feel. It doesn't even have to be friends...I just see people walking around and I know they aren't feeling anything down there. I gets me down sometimes...but hey...I just try to think of how worse things could be. I have my legs, my eyesight, my hair...I don't have to tell any sexual partners that I have an STD. I try to hold onto that.
I have bad days too. I just gotta try to cope. Still working out things like the right combo of meds. I just started taking 10mg of Ditropan XL. So far so good. My next appt. with the UroGyn is this week. Hope I can get another 10mg dosage added on.
Okie...looks like I've rambled on.
I send you many warm tidings for better days to come.
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