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icnmgrjill
08-15-2005, 11:20 AM
I lost a family member and good friend yesterday. She passed after suffering brain damage during a not unexpected heart attack after having hip replacement surgery last Thursday. Jenny was 42 and had suffered for years from Juvenile Diabetes. The last ten years were a decade of anguish for her and her family as the diabetes took a terrible toll on her body with the loss of sensation in her limbs, coronary heart failure, bypass surgery five years ago, amputation of the toes on both of her feet, constant bed sores that lasted for months. Oh god.. the list just goes on and on.

But, I tell her story not to be sad or morose... but to actually tell a story of a woman who, despite the loss of her limbs, still lived a full, energetic life. She may have died yesterday but she truly lived every moment to the best of her ability and did things that I, who was far more healthy than her, would have hesitated to do. This is really a story of hope and courage. It proves that human beings, even when suffering, have a capacity to live life to the fullest, to give to others and to be a joy to those around them.

For the two years, Jenny had been living at various rehabilitation and, for the last 9 months, at a convalescent hospital about ten miles from my house out in Sonoma. But, her scooter was her independence. Nearly every day, she scooted away from that depressing, sad place to toot around town. Every week, sometimes twice a week, she'd catch the county bus (thankfully they all had lifts) and drive all the way up the Sonoma Valley (past our office) and into Santa Rosa where she'd cruise up and down the mall. Though she was so terribly ill, she knew that she needed to get out and see people, talk, and appreciate the skies and the animals and the birds and the butterflies!

And whenever you talked with her, she never said that she was feeling badly. She always said that she was doing okay, even hours after they had saved her life yet again from insulin shock. When I visited her in the hospital a few nights ago, I remarked about how tan she was. She proudly announced that she'd just been to our county fair, not once, but twice in the previous week all by herself.

How she did it?? I don't know. When I'm not feeling well, I stay at home. I'm much more comfortable being within the four secure walls where I know that if I'm not doing my best, I will be well cared for. But Jenny didn't need that. She didn't want that. I think it was because she had been ill for so long, for all of her life, that she just went out and did it! She participated in the Society of Creative Anachronism... where she was a Lady of her shire. She participated in a few other historical societies. She volunteered for her city museum when she could. She trained to be a medical transcriptionist.

Jenny filled much of her time reading like a beast. Whenever we got together, we ALWAYS talked books, whether they be Stephen King or the latest romance. She was so excited to that the new Harry Potter had come out... she'd looked forward to it for months... and I'm so glad that she got to read it. She loved it. I'm the saddest that we won't be able to have our great talks about her and my favorite author, Diana Gabaldon. I'm really sad that she won't be able to read that book but, perhaps from above, she'll read it over my shoulder with me. I'll certainly be thinking of her.

In 20 years, I never saw her feel sorry for herself.... even when her marriage ended or when she lost a child through miscarriage. I never saw regret in her eyes and, honestly, I don't know how she did it. She always had a positive attitude. To her, life was good... even if she was in the hospital or waiting yet another two weeks before she could scoot again.

And so, the reason I write this column today, is to share her life and her spirit and to help me through the grieving process. I've had so many days when I'd be so angry about my IC or so frustrated about having my medical problems. Yet, compared to what she had lived with, mine were minor. She taught me perspective and composure.

I ask this of you. If you have any friends or family members in the hospital. Please... go visit them. They need to see friendly faces every week... and call them every day to check in. In our family, only three family members went to see her regularly. The rest didn't... and it's their loss.... but it was also hers too. I wish that I had gone to see her more frequently in the past year but they had a major virus outbreak at the hospital of a very contagious virus and it kept me away most of the Spring months. I just didn't want to risk bring that home to my elderly parents. But, now that she's gone, I sure wish that I had spent more time with her. She deserved the company and I would have just loved to have, one more time, a great discussion about Jamie & Claire Fraser!

Jenny lass, you've lived a good life. I hope that you're now romping through the heavenly highlands, playing with your cat & dancing with your da. Jamie would say that you're a fine, braw lassie ... ye are!

Jill

patricia1
08-15-2005, 11:36 AM
Jill very well said!!! I am sure she is now doing as you said romping around in Heaven. She sounded like a lovely person....I agree attitude is everything when dealing with a life long illness. Bless you and your family!!!

dancemomof2
08-15-2005, 11:47 AM
So agree attitude is a key point in handling anything.

tbokay
08-15-2005, 12:05 PM
Jill ~ thank you for that reminder, that life does go on and we need to make the best of our situations and not let IC control our lives and keep us from things we enjoy and people we love.
May God grant your family comfort and peace in the days, weeks, months and years ahead.
:grouphug: n :kissing:

ICNJess
08-15-2005, 12:11 PM
It always amazes me that people who go through the most difficult things in life, have the most amazing outlook. So positive and so strong. I admire that so very much.

I am so sorry for your loss. :grouphug:

dyno
08-15-2005, 02:54 PM
She sounds like she was a very special person. I am very sorry for your loss of a special friend too.

ICNDonna
08-15-2005, 05:58 PM
Jenny sounds like a true hero. Just as you are very fortunate that you had her in your life, she is equally fortunate that you came her way. God bless you both.

Warm hugs,
Donna

Babs RN
08-15-2005, 07:52 PM
She sounds as if she was one of those people that made each and every interaction with her like wind blowing down a mountain side---brisk, invigorating, and a rush. Jenny sounded phenomenal. Most instances in our lives, in fact each morning we awake, we are given the choice as to whether it is going to be a good day or a bad day. Even in her weakened condition, she made sure she had a good day. What inspiration to all of us. These bladders can be miserable, they won't kill us, and it is our ability as rational thinking adults to take on the symptoms with joy, or let them bring us down.

Prayers to you and your family, Jill.

Hugs,
Barb and Lindsey :kissing: :grouphug:

Sarojini
08-16-2005, 05:03 AM
Thank you for writing this. Jenny really does sound like a real hero....

stacey79
08-16-2005, 10:59 AM
Thanks for sharing such an inspiring story. I think we all need a reminder about living life to the fullest and having a good attitude. I'm sorry for your loss. Your family will be in my prayers. :grouphug:

fireflicker285
08-16-2005, 12:41 PM
Sorry for your loss. She sounds like she was a wonderful person with a great perspective on life.

A lovely post in tribute to her.

marsi4
08-20-2005, 08:53 AM
I'm sorry for your loss. She was truly very courageous and inspiring. I can only hope that I can find the same strength in myself to deal with ic. I hope she has found peace and tranquility and I want to commend you for your kind words and compassionate heart. Thank you for making this network available. It has gotten me through the darkest of moments.

icsonja
08-20-2005, 02:47 PM
Jill , so sorry for your loss, I will be praying and thinking of you and will be asking that you have peace. Jenny already is out of pain and those left on earth are the ones who suffer the loss.
My love to you, you have always been a rock foe me to leaupon, now if you need to, lean on me.
Sonja

emilyrose197377
08-20-2005, 02:50 PM
Jill I am sorry for your loss. Thanks for sharing your story with us.

Iris
08-20-2005, 03:23 PM
Jill, so sorry to read about the loss of your friend, but what a wonderful person she must have been. She certainly did not let life get her down, and her story is a wonderful inspiration to read. Thank you for posting, and my heart goes out to you losing such a wonderful human being in your life, Iris. :flower:

csocain
08-20-2005, 03:48 PM
Thanks for letting us share in your grief. I'll be praying for you and for others who knew and loved Jenny. Blessings of peace and grace to all of you.

Shirley2
08-21-2005, 10:55 AM
Jill I am so sorry to hear that. My prayers are with you and her family.
I will think of your story about her and i will stop and think i am blessed at this time. I only have ic and there is others out there that need our prayers so very much so than me. She sounds like a great person!
God Bless you and the family
Shirley2
:grouphug:

Julie B
08-21-2005, 05:40 PM
You write as though you were lucky to have her in your life........as you were..............but she was also lucky to have you..........someone who loved her for who she was.............{{{{{{{{{{{Jill**************************