I've been helped by a glyconutrient called *********

[Mollper23]

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I want to share that my IC seems to have gone into near-remission after using a glyconutrient. I had been on it at a very low dose (1/2 tsp/day) for a year or so with little improvement. At that time I was advised by a physician, Dr. Connie Godenick :angel: , to increase the dose. Once I began taking 2 rounded teaspoons a day, I began to notice that my symptoms were growing less. At the current time (and long may it last), I am pain-free, have noticeably less frequency, practically no urgency, no bladder spasms, and I am eating a near-normal diet. :woohoo: I still avoid citrus and tomatoes because I avoided them for so long that I'm still afraid of them! Neither do I eat hot, spicy food, but that's really a personal preference. But I can eat chocolate, drink coffee, use mayo, have vinegar in salad dressings, and enjoy summer fruit again, which I do moderately. My uro told me on my last visit that he could tell just from looking at my urine that I had much less inflammation in my bladder. I had told him all along about my taking ****, and he would just nod his head dismissively. This time he asked me, "What's that stuff you're taking?"

Knowing how much I had been suffering with IC -- and knowing the enormus suffering that so many people are enduring because of IC -- I feel compelled to share my story. I don't know if everyone would have the same result, but if just one other person benefits, it will be worth it. **** isn't a medication -- it's a supplement -- which isn't "designed" to heal any particular illness. Its effect is to bolster one's immune system -- to allow better cellular communication, if you will -- and thus allow the body to heal itself.

I hope you will permit this post to go through, for it might benefit many people. I wanted to share what happened to me so that other IC sufferers who might benefit will at least know about ********* and perhaps choose to try it. I feel like I have my life back again, and I never stop being grateful; I wish the same for others.

[mags]

can you just purchase this at a health store?

[Hangin' Tough]

I am pleased that this has helped your symptoms. I would strongly urge anyone who is thinking of taking this supplement to consult their physician. I have seen advertisements for this product, some of its distributors are claiming that it "cures" downs syndrome. Please be careful.

Steve

[Mollper23]

Your tip is a good one. **** shouldn't be touted as a "cure" for anything. Hopefully, it will strengthen the individual's immune system to better fight whatever disease is present. In many cases, including mine, it does so excellently, but it's a supplement, not a medicine, and isn't supposed to be marketed as a cure. Since I was so helped, I wanted to let others know about it, in the hope that others could be helped as well. But caution is always advised.

[ICLori]

Hi, Mollper, I'm a big believer in natural remedies for helping with symptoms. I was curious though, were you taking any other medicine at the same time, like Elmiron or Elavil or anything like that? Sometimes it's so hard for us to figure out what is helping us if we take several things at the same time....

I will have to look into this stuff, thank you for posting this..

Blessings, Lori

[ICLori]

Hmmm...I don't think I will buy this, despite the testimony....it's only sold through one company in a multi-level marketing scheme, at outrageous prices, and I just googled a bunch of conversations about this and didn't find anything good, just bad stuff people were saying. I'm not trying to discourage anyone else from trying this, but please do a google search on what people are saying about it before you commit...

Blessings, Lori

[Mollper23]

Hi, Lori,

I'll answer both your messages at once. Yes, I was on 2 medications for my IC. I was on Imipramine HCL, which, after 18 months, I had to get off because of severe constipation. Imipramine is a TCA like Elavil; it's a generic of the TCA Tofranil. Unfortunately, Imipramine was of little help to me, and the side effects, added to the IC sufferings, were intolerable. I had simultaneously been on Hydroxyz HCL (a generic of Atarax) and am still take 25 mg/day. It doesn't seem to help or hurt, and I intend to ask my uro on my next visit if I should get off it and see if my symptoms return. Fact is, when I was on the Hydroxyz without the larger dose of ****, my IC symptoms were still severe. The only thing that has helped me seems to be the ****.

Re your second message about the multi-level marketing, outrageous prices, negative comments (were they about the supplement itself or about the pricing and marketing?) -- I hear you. I was there, too. In fact, I tried a different and less expensive glyconutrient, which has in it the same 10 saccharides that **** does, and within days my symptoms were coming back. (I don't think the symptom return was all in my head or because of the placebo effect, because I WANTED the cheaper stuff to work, but to my regret it didn't.) So far as the multi-level marketing -- I don't like it either. And I deplore the high prices. It's not easy for me to pay the price, but for some it is outright impossible -- but the **** seems to work for me. I don't know what others are saying about it, but the difference it has made in my quality of life is enormous. I was feeling guilty that I wasn't sharing with the IC community what my experience has been. That's why I posted. I have no axe to grind. I don't sell the stuff or benefit in any way from others' use of it; I am a consumer and would love to be able to get it for less or have my insurance cover it. But living without pain, spasm, extraordinary frequency and urgency, is worth a lot to me, so I stay on it. We'll see what the future brings! I am optimistic.

Thanks for sharing your feelings, doubts, and concerns. It's important to be skeptical--I'm that way myself! Yet here is my experience; I offer it for whatever it's worth to whomever might benefit.

Blessings back to you.

[ICLori]

Thank you, Mollper! :) I'm like you, the Atarax didn't seem to be helping me - in fact it irritated my bladder a bit each time I took it. :(

I read one post on the internet that said one of the supplements I am already taking, which is also offered by the same company (although that's not where I'm buying mine from), is included in this formula. I thought that was kind of interesting.

Most of the complaints were about the marketing strategy and the price and people felt they were being pushed to sell it. No one that I read, had any complaints about the nutrients themselves, although to be honest I read a couple of posts where people said they didn't think it helped them for whatever problem they were taking it for.

Thank you for your replies, and for sharing your success.

Blessings, Lori

[mags]

Mollper23,

When i look this up i see it comes in different sizes, like 100g or 50g. Which one do you take? I also notice there are capsules instead of powder, would those work just as well? I am just trying to get more info. before i decide to buy.

[Mollper23]

What I use is a powder. It's cheaper than the capsules. I buy the 100 g container, and twice a day I put a heaping tsp of the powder in a little bowl and add about a tsp of carob powder and enough water to make it into a paste and eat it like that. The carob is a little bitter, but I've gotten used to it. I used to add in a sprinkle of Splenda (which seems OK with my bladder), but I rarely even do that now. Usually they recommend mixing the powder with water and drinking it that way, but I found that a lot of the powder still stuck to the glass, and at the price I'm paying for this stuff, I want to get every last morsel of it down my throat! So now I make the paste and literally scrape it all up with my finger! If you were able to tolerate yogurt (and I know, most IC sufferers can't, it used to irritate me, too), you could mix the powder into that. FYI, I've been told that you can mix the **** powder into anything, even hot food, and it retains its properties.

Capsules absolutely can be used, but at the amt I'm using, that would be a lot of capsules and cost even more of a fortune than what I pay now. The 100 gm container lasts me 3-4 weeks; 4 weeks is pushing it.

You'd have to experiment to see how much you need to get results. For me, until I bumped it up to 2 heaping tsp twice a day, I wasn't seeing any benefit. At some point I'll experiment to see if I can get by with less powder, but at the moment my feeling is, "if it ain't broke, don't fix it."

I wish you all the luck in the world. If you try it, may it work for you as it has for me!

Take care.

[Mollper23]

That IS interesting, Lori, about the overlap of ingredients with the ********* stuff and the supplement you take. Whatever it is, I hope you find that it helps you.

Yeah, the marketing strategy leaves a lot to be desired. I've been pretty clear that selling it isn't my thing, but I can imagine that if I opened that door they might be all over me like bees to honey. Don't know, but I'm not giving them the chance. The company sometimes is a little too rah-rah for me, but like with so many things in life, I take from it what makes sense for me and then I leave the rest behind. I'm just grateful for every good day I get.

I have a friend who after muscle testing felt that ****wouldn't work for her either and so never started on it. We each have to find our own best path.

Best regards to you.

[mags]

thanks. still haven't decided whether to try it or not but thanks for the info.

[Teddysmom]

How long did it take on the 2 tsp. to feel better?

[Mollper23]

You're welcome.

[Mollper23]

I started noticing that I had less pain and urinated a little less often after 2-3 weeks. After 4-5 weeks, I was significantly better.