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songbird7
06-19-2005, 10:52 AM
Last night I had one of those flares where my IC belly looked like I was 9 months pregnant. It was very difficult to deal with plus an asthma attack. Today I walked about 5 blocks and need to lie down and rest. I guess that's normal for IC. I used to be quite a walker before IC. Feeling frustrated about it. The weather is mild and lovely and I need to rest in bed a bit just because of the tiny walk I did. Can anyone relate to this?
((((( ))))))))) :welcome:

pottywoman
06-19-2005, 01:49 PM
Yes, I can relate. Sometimes I'm just so tired from doing nothing but I did find I felt somewhat better even if all i could do was walk for 5 minutes. The more I sit the more tired I get.

emilyrose197377
06-19-2005, 01:55 PM
I am so sorry you are going through this and yes I can relate what you are going through. I am sending hugs and prayers.

Take Care
Kim

Melanie
06-20-2005, 03:24 PM
I totally relate. I call it managing my "up and down time". I really have to watch how much I physically do (chores, errands, exercise) and balance that with down time (rest, tv, reading, etc).

Physical pain, urinary frequency, and disturbed sleep from urgency all lead to more fatigue. And the cycle just continues.....

trytosmile
06-20-2005, 03:36 PM
I can relate to you so much. I have the "ic belly" daily. I've just moved back to my home town and so many people that don't know my situation ask my parents "oh I see your going to have another grandchild"....geesh !

Like you physical exercise is hard. I used to work out 6 days a week, ran, played whatever sport I could squeeze in. Today I walk as much as I can, some days further than others. I do yoga and a lite version of pilates. It helps keep the joints limber. Still no 60 minute spin class but such is life.

Leslye
06-20-2005, 04:40 PM
Each day I always say I will do everything that I did not to today. I lay in the bed & look around at Everything I WANT to do & everything that NEEDS to be done & tomorrow I will feel better & I WILL do these things. We moved into our home on the 12 of May, I still have sheets over my bedroom windows (my husband did hang the blinds) & the guest bedroom has Nothing on the windows & collects the Full,Half Full & Empty boxes. My bathroom is still a wreck & my kitchen is Almost finished. I still have more things in storage than in my house. Which makes me ask myself, do I really need this stuff?LOL I do not have ANYTHING on my walls. I get so SAD because I want to be able to walk into my Home & see MY things(feel homey). I miss all my things & feeling comfortable. I feel sorry for my WONDERFUL husband who without ever fussing,goes to work comes in & washes the dishes,clothes,irons,vacuums & does what ever else needs to be done & still asks me while he tucks me into bed if there is anything that he can do for me or get me? I cry alot because I really want to do these things & miss doing them. Tomorrow, I am going to hang pics,curtains & work on my bathroom.Hugs to you ALL!!

Tunia
06-20-2005, 05:38 PM
Another "IC belly" here! There are days that are sooooo uncomfortable that even sweats won't fit...good grief. The fatigue is one of the things that surprises me the most. I take the majority of my meds at night b/c they conk me out, and am so very lethargic in the morning. Sometimes just going to the bathroom for the first time of the morning just exhausts me, and I'm back in bed for a few hours. Each day starts with such good intentions, but the exhaustion eliminates most of my planned chores and activities. At any given time I'm afraid to blink for too long b/c my eyes close and I'm nodding off. As now, spending any time on the computer puts me in a haze.

Off to bed again...

trytosmile
06-21-2005, 02:39 AM
Lesley...

I can so relate to what you are saying. Jan 2004 I started a task that I will NEVER do again. I completely gutted a century farm home that has been in our family for years. It was my grandparents home, the home my father grew up in. Alot of memories for me. Well, as I mentioned we gutted right down to the brick wall, moved walls, moved room, you name it we did it. My belongings where in storage for 16 months. We just moved in this April and we are no where close being finished. There are so many 1/2 started projects. Like you, I want a "HOME", I have no kitchen except for a table, stove and fridge. No cupboards, no sink. Doing dishes in a tupperware container. We found the original plank floors but they are not refinished yet. I hate it !!!

My "other half" works 60+ hours a week and wants to do "all the reno's" himself. Ok, when working that many hours exactly when will this get done. It has been a huge struggle and my ways have had to change dramatically. As I look around I see total chaios. :ignore: Boxes everywhere because rooms not done. Just once I'd like to see a wall, finished floors. :help:

mink47
06-21-2005, 04:37 AM
When you say "IC Belly" do you mean bloating? I get that too but I didn't know if it was from IC or something else?

songbird7
06-21-2005, 04:46 AM
Hi everyone. Thank you for letting me know I am not alone with this. It's one thing to know in my mind that IC is tiring and another to experience it and get validation from others here who understand. I pray for gentle healing for everyone here. You all mean a lot to me, you really do.
((((((( ))))))))))))))

mela414
06-23-2005, 02:37 AM
I too am exhausted from all this! sometimes I am a wreck emotionally and it drains me physcially. Most often I need to pace myself as i will only make things worse if I over do it. I have fibro and fatibue everyday so I am worn out all the time....but....i always try to push myself. The trick is knowing when NOT to push. I try to read the signals from my body. For me morning are the worse too! getting out of bed is a chore and since I've started some new meds I am wiped in the morning. My day is actually starting later and later but I guess I have to give my body the rest that it craves (from durgs or not!).