could I have endo too?

[theoutlaw77]

When my dr diagnosed me with IC, he told me- well, that is at least ONE of your problems. I think that he also thinks that I may have endo too. He says that most people who have IC also have endo. I do not really want to have the laproscopy right now, as I have been to so many doctors for the IC...And, I really do not want to have anything else wrong with me. But, if I do have endo also, I would like to do what I can to treat it.

I guess what I am wondering is- what are symptoms of endo other than horrible and irregular periods. I never thought that I could have endo because my periods are pretty normal- though, they have been worse lately. But, they are very regular (I also take birth control pills) and I did not have trouble getting pregnant (I have one child.) I do have pain during sex (sometimes and only with deep penetration.) I also have horrible thigh pain. And, of course the bladder burning which I know is the IC.

I know that these are IC symptoms, but are they endo symptoms too? Could I have that also, or is it probably just the IC? Thanks for any input! Jonee

[emilyrose197377]

The symptoms of endo are really heavy periods and horrible mentrual cramps I also had back pains. I also had abdominal swelling also. I also had this feeling something was pulling on my insides that was adhesions. and sharp atabbing pain. I just had endo and adhesions and also ovarian cyst 4 weeks ago and I am going to be starting lupron soon. They only way to find out if you have endo is a lap. Good luck to you. How are you feeling?
Take Care
Kim

[emilyrose197377]

I meant stabbing pain

[diane57]

I have endo and have never had any symptoms of it - it was discovered during a laparoscopy for ovarian cysts - the gyn said it was old and established (though relatively mild). My periods have always been regular and pain-free, except for a brief year or so in my 20s when I had some moderate cramps every month. I never had excessive bleeding or abdominal pain. It was weird to get that diagnosis since I'd never had any symptoms...

[theoutlaw77]

Diane57, I have heard of people having endo and not having symptoms. I also would like to know if I have it or not because if it is causing some of my pain, maybe if I had it lazered or whatever they do, it may ease some of my pain. But, I know that if I do that, I risk scar tissue and all of that fun stuff. I am also sort of worried about having laproscopy because I do not want that to make my IC worse. Any one have any experience with this?

[caprice19742002]

I Had A Laporscopy Done Last Night My Doctor Said He Did Find Endo And I Also Had No Signs Of Having It.i Just Had Pain From Time To Time Thinking It Was Just Ic.but Anyways The Lap Has Made Me Feel Better Today

[diane57]

I think that with the laser removal of endo there's very little risk of scar tissue - that's what my doc told me. My IC did not get worse after my lap, I think because they don't go through the vagina, they just make two tiny incisions around your pubic hair area. It didn't bother my bladder at all, but that might not always be the case for everyone...

[Portia17]

Well, I Do Not Have Endo And I Do Have I.c. The First Thing They Checked Was For Endo With Laproscopy And Came Out Nothing. So Maybe Some Cases People With I.c. Have Endo, But Not All

I Suggest You Talk To Your Gynocologist

[tbokay]

I had lap done April 21, 2005 (6 days before my birthday) and the doctor was surprised when she did NOT find endo. I have almost all of the symptoms and did remove some fluid around the right ovary .. but she is thinking that was a ruptured cyst.

I'm glad I don't have endo ... but today I saw a new uro/gyn and he suspects PFD. I am tired of doctors "practicing" meds on me ... "its uti ~ no wait, it's IC ~ no wait, its Endo. Well lets try PFD now". I wish I could find one doctor who could just admit me into a hospital ~ run every possible test they can ~ rule out everything and give me a final answer!

It's been 11 months since they first noted that I didn't empty my bladder completely ... and I'm tired of going to ER for pain control, self-cathing myself, going to doctors, paying for meds I can take for a short time and then either have side effects or doc changes meds.

It's like when I have gallbladder problems ... it took 2 yrs before I found a doctor to confirm it was the gallbladder and took it out. I tend to be on the wierd side for symptoms of anything. I have broken my foot twice - and both times it took me a month to go to doctor and know it was broke. I go to doc when I think I have uti - and it will be negative ~ then I go to ER for asthma attack and they tell me I have uti I didn't even know I had. :bonk:

I asked my new doc if he could recommend support group today .. and he said I don't need one. I have such a mild case, he doesn't think I need to go be with people who are worse then me ~ that could cause me to be depressed knowing how bad it MAY become. We will just try to keep me at the mild side of this disease. I wish he still would have referred me - cuz my family, friends and coworkers are tired of me complaining. I have no one left to talk to about this -- and to not talk about it bothers me too. :headbang:

I need a vacation from my body and health problems. Anyone know where I can go? :hmm:

[Regina06]

Yeah I heard that from my uro too oh u have a mild case.. u do not have enough cells for i.c. but bad inflammation. well buddy, i said I am in pain and getting releif from pain mgmt and maybe your dmso. I said to him u might know how to diagnose but until you are in my shoes with my pain, then don't tell me how I feel. He shut up after that

[theoutlaw77]

I know what you mean tbokay, about needing to talk to someone who understands! There is no IC support group in my area. The closest one is 1 1/2 hours away. The next meeting is at the end of Aug., and I can not wait to go. It is so frustrating when people do not understand, get sick of hearing about it...but, it's like I HAVE to talk about it. It is a major part of my life whether I like it or not! Please feel free to pm or email me whenever you want to talk. I am so greatful to this message board and my online support group here!

[PamIvanicki]

I had surgery last month for endo and they found it all over my right ovary and adhesions on my bowel as well. They did a hydro at the same time,and I have felt great ever since. They were able to diagnose the IC during the hydro, so I know that it was probably both the endo and the IC causing me problems.

[theoutlaw77]

I just thought of another question. I had a pelvic ultrasound awhile back when I was going through all of the tests to find out what was wrong with me. There were no cysts seen on my ovaries or anything. If I had endo,would you have been able to see it on an ultrasound,or can it not be seen on an ultrasound?

[diane57]

I think they usually cannot see it on an ultrasound - they have to go in with a lap and have a look to see it. I had an ultrasound before my lap, and it was not visible on the ultrasound, but they definitely saw it when they did the lap.

[emilyrose197377]

Outlaw they can not see endo on an ultrsound only through a surgery called a laproscopy where they view your pelvic organs and take out an suspicous growths they see. I just had one over a month ago where they removed endo and adhesions and an ovarian cyst they saw my cyst through an ultrasound. but they never saw the adhesions and endo till I had my laproscopy surgery.

[dminton]

Well, I just got back from an appt. with a new gyno, who told me that all of the symptoms I've been having, including the bladder ones, can be caused by endo, and he couldn't believe I've been sick this long and no one suggested looking for endo. So, since I need a hysterectomy and A & P repair, he will be looking for endo at the same time. I might also have my uro do a hydro at the same time, as that's never been done. So, with all of the syptoms I have I still don't really know if I have IC or not; it could all be endo. I left his office with the first ray of hope that I'd had in a long time!

[PamIvanicki]

Endo does not show up on an ultrasound. Sometimes cysts don't even show up. You need a lap to diagnose endo.