babydkj
06-10-2005, 03:17 PM
I started sobbing in the doctor's office yesterday morning during just a pre-op appointment for my first cystoscopy. I just said "I'm so frustrated" and kept crying. the Dr. was really nice, just kind of sat there and nodded his head. I spent the rest of the day crying on and off about IC. I can't stand this sometimes, and then the more i think about it, the worse my symptoms become. I think this was compounded by the fact that I've been on a really strict elimination diet for 3 weeks, and i'd become very tired of beige foods. my symptoms haven't improved since i cut out, well, everything not on the "few foods" list, so i've been afraid to add anything back in, because then how will i know if it's a bad food for me? I start thinking I'm going to be one of the unlucky ones whose symptoms never improve after diet change or trying different medications. What type of multi-vitamin can I take so that I can at least get some vitamins while I'm waiting to add vitamin-rich foods back into my diet? Oh and what do IC people do when they get colds about the vitamin C thing?
The other thing that's wierd is that I've dropped about 10 lbs in the last 3 weeks from eating so little (I can only eat just so much rice and potatoes). My thought every day is figuring out what of my few foods I hate the least in order to get enough energy to make it through the day, and I'm tired and weak and cranky all the time, but........then my friends all say "but you look great!" since i've lost 10 lbs or so. I know that they are well-meaning, but I just don't feel like going into my sad story sometimes. One friend even said "I wish I had what you have." Other people just can't comprehend the diet thing because it's not nutrition-based, just pain-based.
there is no theme to this post, just some questions and rantings, I'm trying to stay connected to this network. It helps to talk about this stuff with people who know what I'm talking about.
The other thing that's wierd is that I've dropped about 10 lbs in the last 3 weeks from eating so little (I can only eat just so much rice and potatoes). My thought every day is figuring out what of my few foods I hate the least in order to get enough energy to make it through the day, and I'm tired and weak and cranky all the time, but........then my friends all say "but you look great!" since i've lost 10 lbs or so. I know that they are well-meaning, but I just don't feel like going into my sad story sometimes. One friend even said "I wish I had what you have." Other people just can't comprehend the diet thing because it's not nutrition-based, just pain-based.
there is no theme to this post, just some questions and rantings, I'm trying to stay connected to this network. It helps to talk about this stuff with people who know what I'm talking about.