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CHRIS31
06-10-2005, 06:30 AM
Hi. My name is Christine, I am 31, :loco: and I was "diagnosed" with IC last October. I had been going to the doctor for what seemed like every month for bladder infections. I did actually have infections several times, but when no infection showed up twice, I was sent to a urologist. The first urologist I saw only gave me a quick exam down there, and gave me a list of foods to avoid since she only believed I had an irritated bladder. I found this hard to believe since I had been keeping my own food diary for IBS problems and could not find a connection with any food (except maybe that alcohol and coffee definitely made them worse.) Months later I went to another urologist and told him my symtoms. He did an ultrasound, exam, and then a painful potassium sensitivity test. Because I reacted to the potassium, I was told I have IC. He told me I could go on medication, but since my symptoms were not debilitating, I could just basically live with the annoyance.

My problem is that after doing some research on IC, it seems that a major symptom of IC is frequency. I do not really have this problem. I feel like I have to go often, but even then it is not that strong of an urge. my main problem is a weird, irritating feeling "down there". It hurts like a bladder infection would, and sometimes throbs. I notice it hurts more when I am really hungry, before my period, or after I had a bowel movement (sorry!) I feel bloated alot and just pressure down there.

Another problem I have is that I keep reading the only sure way to detect IC is thru a cyscopty (?) done in the hospital. I don't think he has ever really looked at my bladder and there fore I am afraid I don't really have IC. What if I just overreacted to the potassium because the nurse kept saying I might have one?

One thing that made me somewhat hopeful if I really do have IC is that it doesn't seem to really be progressive? Is that true? I have these symptoms for about 3 years now, and I have bad days and better days, but it never stops my life completely. I have so much sympathy for those of you have extreme pain everyday...I couldn't imagine having to deal with that seeing what it can do in a moderate case.

Anyway, I just wanted to introduce myself, tell those who are suffering you are in my prayers, and ask that anyone who could shed some light on this for me, i would greatly appreciate it. Thanks.

Hopey77
06-10-2005, 09:49 AM
I feel the same symptoms - do you know if you have a fibroid? I myself am confused because my 'irritation' could be the fibroid or a combo of IBS and IC... I stress out a lot and this tends to make things worse (as does beer and coffee!) I am hoping to see a uro-gyno soon! Keep looking for a uro that will listen to you.

SharonA
06-10-2005, 11:04 AM
Hello Chris and :welcome: to the ICN...

IC can be a very frustrating disease because there are so many symptoms. For some, frequency is a problem...for others, pain. And still others have a feeling resembling pressure in the bladder/pelvic area.

No, IC is not necessarily progressive. For a very small percentage, it is. For most of us, once we find the meds/treaments that help, it can get better. I have been diagnosed since August 2001 and I feel good most days.

The potassium sensitivity test is a good diagnostic tool. Most of us have been diagnosed by cystoscopy/hydrodistention. If you would feel better about using that test, then I would suggest you do so.

:) :) :)

emilyrose197377
06-10-2005, 12:30 PM
welcome to the icn board you will find alot of info about ic and support. Ic is a very frustrating condition to treat and it is a long process I hope you find relief soon. and find the right meds for you.

Take Care
Kim

ICNDonna
06-11-2005, 03:10 AM
Somehow I have a problem with an ICer being told to learn to live with pain! There are many treatment options for IC and most of us do find a treatment plan that allows us to live normal lives. My suggestion would have to be to see another urologist for a second opinion --- and be sure it's someone who isn't in the same office as the one you have already seen.

You can read about treatments in the Patient Handbook at http://www.ic-network.com/handbook

My IC was diagnosed by hydrodistention in a hospital operating room thirty years ago. The biggest advantage of having the hydro is that in about 50% of ICers, the procedure itself significantly helps symptoms.

Donna