I am 23 and just found out i have ic

[jamie lynn]

Hi. I am 23 years old and just found out i have ic. When i got tested i could only hold 100ml of water in my bladder before i was in so much pain it brought tears to my eyes. I am going in for surgery to stretch my bladder soon and it just makes me so nervous.
I am glad to finally have answers and know what i have but its all kinda scary once you know what you have too. It makes it easier to have a site where you can go talk to people who have the same thing and can relate to you.

[theoutlaw77]

Welcome and good luck! I too am recently diagnosed. I am 28. It was such a long hard road to my diagnosis, and I am thankful now that I know what is wrong with me. This message board has been a life saver for me, and I'm sure you will soon see that for yourself! Just wanted to say HELLO! Sometimes the hydro/cysto (is that what you are having done?) can help with symptoms. WELCOME!

[emilyrose197377]

Welcome to the board and good luck to you.

[K9wife]

Yes- Welcome! I laughed when I read an earlier post that asked, "We're a strange bunch,aren't we?" because all of the years I have had IC (over 25) I thought I was the only strange one! It is so good to know there is a place I can come and no longer feel like the only one in the world that may be experiencing a particular dilemna with IC. Even though we can not cure you here, you will feel a lot better when you leave, from personal experience. Welcome to the club!

[emilyrose197377]

I only can hold 50cc before I feel pain but don't fell the urgency because of the neurogenic bladder. but I do feel the pain.

[Kiyoka]

Jamie, welcome to the board. I'm glad you found a answer. I"m 22, if you ever want to talk i'm here always. I have had ic for about three years now.

[Imustpee]

Welcome...I am glad you found us...I have had I.C. for 38 years...

[VickiB]

Glad to have you join us, Jamie.

I felt the same way at first, -Happy to have a name for what I was living with and scared when I found out exactly what it was! The more I learned about IC, the less scared I became. And this site is a great place to learn how to live with IC!

Welcome!

Vicki

[Sarojini]

Glad you found us -- it can be hard at first but most patients find treatments that help them immensely and begin to feel better. Most of us go on to live normal lives! :)

[jamie lynn]

Thank you so much everyone for replying. I am so glad to have some where to go when i need someone to talk to about ic. kiyoka thank you for saying if i need someone to talk to that i can talk to you. I appreciate that so much and it goes both ways i am here if you ever want to talk too.

[Kiyoka]

hello Jamie, your very welcome. I'm always glad to help you out; in any way possible. I would love to get to know you more.

[Katrina]

:welcome: :hi: Jamie, sorry you have IC and suffering so. I sure hope that the hydrodistention helps you! I am very glad that you found us!! :grouphug:

http://www.ic-network.com/forum/sho...90935#post90935 Newbie kit from the oldies to the newbies
http://www.ic-network.com/forum/showthread.php?t=7562 this link is a pain managment post.
The second page has 4 attachments...the last one is a list of ideas for IC pain.....take a look if pain is problem for you.

[shirley47]

Jamie,I"m also sorry that you have IC,but you have came to the right place to get information and all kinds of friendly advice,we have all been where you are right now.The beginning,especially without not ever having heard of this disease before.I was told by a er doctor several years ago,that there was"nt anything wrong with me and to never come back to his er again! But I was took to a specialist and guess what IC,But we all have our bad days & good days,its rough I won"t lie to you,but with all our support,you"re make it! My name is Shirley,another friend if you need to talk.

[jamie lynn]

Everyone is so nice and i am so greatful to have found this site. Its strange to me not knowing what is the ic and what might be something else. I have been off work sick since jan. First i ended up in the hospital sick and ended up in icu and they didn't know what was wrong and then ended up taking my gullbladder out and then went home soon after ended up back in a couple days later with pain in my back and stomach so bad it hurt to breath and came out a week or so later and didn't find out what was wrong and a couple weeks later ended up going back in was given a medication for a bladder infection that i was allergic to and took them two days to figure out that it was the reason why i was full of fluid about twenty pounds of fluid. and sunday i ended up with pain in my back and stomach again and wonder maybe its part of my ic. I am getting so frustrated. They have me on Darvon for the pain and its just not working. I don't mean to sound like a pity story i just wish i could figure out whats all wrong.

[SuperMegs]

Welcome to the board!

I'm also in my 20's (I'm 25) and I suffer from IC as well. I haven't started ANY kind of treatment yet, but I am on the road to getting all of that worked out. After reading a magazine article about IC a year or so ago, I thought I may have it, and this week, I found out that I do.

If you ever want to talk, or you need someone to vent to, feel free to post or e-mail me! I have found this message board to be a great place for support!

Megan :)

[Katrina]

One thing I think may be part of why sometimes our stomachs hurt with our IC flare up is that we are overly acidic there too...It definatly seems to be likely for me! I know quite a few times before I was diagnosed I would go to the doctor or ER thinking I had the flu because of my stomach pain....and was told I had a urinary infection. hmm??

I am so sorry you are in so much pain and went through so much to get diagnosed.
When my IC flared up to the point where I pushed hard for a diagnosis...I ended up having a lot more going on than just IC that got diagnosed that year...even more the next...a big struggle but with treatments I sure feel a lot better than I did than. I hope you get relief!! :grouphug:

[jamie lynn]

Thank you megan, i am here to if you ever need someone to talk to. Its so nice to have people to talk to. I am getting really down lately. I am so tired of being sick and wish i had more energy to do things with my children. everyone on here is so nice and its so nice to have a place to go to where you can talk to people who understand what your feeling and your fears.