Mecrodynes
05-20-2005, 09:33 AM
I had my cystoscopy last week and I went today for my post-op and he told me that's what I had. I suspected I had that for awhile now, but it was actually confirmed.
My name's Danielle, I'm 18 and from Florida, currently living in Missouri. I'm engaged and will be getting married this summer and moving back to Florida afterwards :)
My symptoms have been going on for maybe four years now. I had an iron bladder when I younger, but that all changed at around 14. I started getting constant UTI's and went from having to urinate a couple of times a day to dozens of times. It's just gotten worse over the years. Sex is always excruciating, urinating is always painful, and now I have to go about 40-50 times a day. I finally went to see a urologist about six months ago, and he prescribed me Detrol LA. He told me that if that didn't help that he had his suspicions it was something called interstitial cystitis.
Of course, Detrol LA didn't do anything, and I agreed to have a cystoscopy done. So that's that, and now I'm taking Elmiron.
Others things....
I have been clinically depressed for about five years. Nothing has ever worked for me, but now that I know a lot of it may be caused by IC, it gives me some hope that maybe things will get better once I get treatment. Not cured, but improved :)
I am scared to death to get a job again. I worked in a restaurant for about a year but quit a few months ago. It was really difficult, because I would HAVE to go to the bathroom every fifteen minutes or so, even on Friday nights when we were incredibly busy. Customers and employees would always kind of look at me funny, sometimes even ask me about it. It was pretty humiliating. At the time some family members were convincing me that it was all psychological and "in my head," and that I had to control myself. Do any of you explain to your employers about your condition? Because it's a really worry to me.
My name's Danielle, I'm 18 and from Florida, currently living in Missouri. I'm engaged and will be getting married this summer and moving back to Florida afterwards :)
My symptoms have been going on for maybe four years now. I had an iron bladder when I younger, but that all changed at around 14. I started getting constant UTI's and went from having to urinate a couple of times a day to dozens of times. It's just gotten worse over the years. Sex is always excruciating, urinating is always painful, and now I have to go about 40-50 times a day. I finally went to see a urologist about six months ago, and he prescribed me Detrol LA. He told me that if that didn't help that he had his suspicions it was something called interstitial cystitis.
Of course, Detrol LA didn't do anything, and I agreed to have a cystoscopy done. So that's that, and now I'm taking Elmiron.
Others things....
I have been clinically depressed for about five years. Nothing has ever worked for me, but now that I know a lot of it may be caused by IC, it gives me some hope that maybe things will get better once I get treatment. Not cured, but improved :)
I am scared to death to get a job again. I worked in a restaurant for about a year but quit a few months ago. It was really difficult, because I would HAVE to go to the bathroom every fifteen minutes or so, even on Friday nights when we were incredibly busy. Customers and employees would always kind of look at me funny, sometimes even ask me about it. It was pretty humiliating. At the time some family members were convincing me that it was all psychological and "in my head," and that I had to control myself. Do any of you explain to your employers about your condition? Because it's a really worry to me.